Improving Diagnostic Procedures in Autism for Girls and Women: A Narrative Review.

Biases exist in the diagnostic process for autism spectrum disorder (henceforth "autism"), which result in some girls and women being diagnosed later or missed entirely. Current diagnostic tools may not capture the full range of behavioural presentations of autism, leading to under-identification. This review explores why these biases may occur, and how diagnostic procedures could be adapted to better identify autistic girls and women. We recommend that diagnostic assessments are adjusted to capture a broader range of behavioural exemplars of autism; that camouflaging of autistic traits is taken into account; and that care is taken to ensure co-occurring mental health conditions do not overshadow autism diagnosis. We offer recommendations, building on gold-standard diagnostic guidelines, for how diagnostic procedures can be improved for girls and women.

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© 2024 Cook et al.

Déclaration de conflit d'intérêts

Julia Cook and Laura Hull are co-first authors for this study. Dr Julia Cook reports funding from UK National Health Service (NHS) for part of her salary for clinical sessions in the NHS, during the conduct of the study. Dr Laura Hull reports grants and fellowship award from Rosetrees Trust & Elizabeth Blackwell Institute, University of Bristol, during the conduct of the study; consulting fees from One Green Bean PR, outside the submitted work. Prof WIll Mandy reports during the writing of this article receiving funding from the NIHR, ESRC, ERC, Dunhill Medical Trust and Autistica. The authors report no other conflicts of interest in this work.