Implementing advance care planning in palliative and end of life care: a scoping review of community nursing perspectives.
Advance care planning
Community nurse
Confidence
Education
Nurse
Palliative and end of life care
Patient
Primary care
Relationships
Journal
BMC geriatrics
ISSN: 1471-2318
Titre abrégé: BMC Geriatr
Pays: England
ID NLM: 100968548
Informations de publication
Date de publication:
28 Mar 2024
28 Mar 2024
Historique:
received:
02
04
2023
accepted:
13
03
2024
medline:
29
3
2024
pubmed:
29
3
2024
entrez:
29
3
2024
Statut:
epublish
Résumé
Advance care planninganning (ACP) is a priority within palliative care service provision. Nurses working in the community occupy an opportune role to engage with families and patients in ACP. Carers and family members of palliative patients often find ACP discussions difficult to initiate. However, community nurses caring for palliative patients can encourage these discussions, utilising the rapport and relationships they have already built with patients and families. Despite this potential, implementation barriers and facilitators continue to exist. To date, no research synthesis has captured the challenges community nurses face when implementing ACP, nor the facilitators of community nurse-led ACP. Considering this, the review question of: 'What factors contribute to or hinder ACP discussion for nurses when providing care to palliative patients?' was explored. To capture challenges and facilitators, a global qualitative scoping review was undertaken in June 2023. The Arksey and O'Malley framework for scoping reviews guided the review methodology. Six databases were searched identifying 333 records: CINAHL (16), MEDLINE (45), PUBMED (195), EMBASE (30), BJOCN (15), IJOPN (32). After de-duplication and title and abstract screening, 108 records remained. These were downloaded, hand searched (adding 5 articles) and subject to a full read. 98 were rejected, leaving a selected dataset of 15 articles. Data extracted into a data extraction chart were thematically analysed. Three key themes were generated: 'Barriers to ACP', 'Facilitators of ACP' and 'Understanding of professional role and duty'. Key barriers were - lack of confidence, competence, role ambiguity and prognostic uncertainty. Key facilitators concerned the pertinence of the patient-practitioner relationship enabling ACP amongst nurses who had both competence and experience in ACP and/or palliative care (e.g., palliative care training). Lastly, nurses understood ACP to be part of their role, however, met challenges understanding the law surrounding this and its application processes. This review suggests that community nurses' experience and competence are associated with the effective implementation of ACP with palliative patients. Future research is needed to develop interventions to promote ACP uptake in community settings, enable confidence building for community nurses and support higher standards of palliative care via the implementation of ACP.
Sections du résumé
BACKGROUND
BACKGROUND
Advance care planninganning (ACP) is a priority within palliative care service provision. Nurses working in the community occupy an opportune role to engage with families and patients in ACP. Carers and family members of palliative patients often find ACP discussions difficult to initiate. However, community nurses caring for palliative patients can encourage these discussions, utilising the rapport and relationships they have already built with patients and families. Despite this potential, implementation barriers and facilitators continue to exist. To date, no research synthesis has captured the challenges community nurses face when implementing ACP, nor the facilitators of community nurse-led ACP. Considering this, the review question of: 'What factors contribute to or hinder ACP discussion for nurses when providing care to palliative patients?' was explored.
METHOD
METHODS
To capture challenges and facilitators, a global qualitative scoping review was undertaken in June 2023. The Arksey and O'Malley framework for scoping reviews guided the review methodology. Six databases were searched identifying 333 records: CINAHL (16), MEDLINE (45), PUBMED (195), EMBASE (30), BJOCN (15), IJOPN (32). After de-duplication and title and abstract screening, 108 records remained. These were downloaded, hand searched (adding 5 articles) and subject to a full read. 98 were rejected, leaving a selected dataset of 15 articles. Data extracted into a data extraction chart were thematically analysed.
RESULTS
RESULTS
Three key themes were generated: 'Barriers to ACP', 'Facilitators of ACP' and 'Understanding of professional role and duty'. Key barriers were - lack of confidence, competence, role ambiguity and prognostic uncertainty. Key facilitators concerned the pertinence of the patient-practitioner relationship enabling ACP amongst nurses who had both competence and experience in ACP and/or palliative care (e.g., palliative care training). Lastly, nurses understood ACP to be part of their role, however, met challenges understanding the law surrounding this and its application processes.
CONCLUSIONS
CONCLUSIONS
This review suggests that community nurses' experience and competence are associated with the effective implementation of ACP with palliative patients. Future research is needed to develop interventions to promote ACP uptake in community settings, enable confidence building for community nurses and support higher standards of palliative care via the implementation of ACP.
Identifiants
pubmed: 38549045
doi: 10.1186/s12877-024-04888-4
pii: 10.1186/s12877-024-04888-4
doi:
Types de publication
Journal Article
Langues
eng
Sous-ensembles de citation
IM
Pagination
294Informations de copyright
© 2024. The Author(s).
Références
Scottish Government. Anticipatory Care Planning: Frequently Asked Questions. 2010. https://www.gov.scot/publications/anticipatory-care-planning-frequently-asked-questions/ Accessed 29 June 2021.
Sudore RL, Lum HD, You JJ, Hanson LC, Meier DE, Pantilat SZ, Matlock DD, Rietjens JAC, Korfage IJ, Ritchie CS, Kutner JS, Teno JM, Thomas J, McMahan RD, Heyland DK. Defining advance care planning for adults: A consensus definition from a multidisciplinary Delphi panel. J Pain Symptom Manage. 2017;53(5):821–32.
pubmed: 28062339
pmcid: 5728651
doi: 10.1016/j.jpainsymman.2016.12.331
Marie Curie Foundation. Changing the Conversation, Care and Support for People with a Terminal Illness now and in the Future. 2015. https://www.mariecurie.org.uk/globalassets/media/documents/policy/campaigns/changing-the-conversation-report.pdf Accessed 21 July 2021.
World Health Organisation. Palliative Care, 2020. https://www.who.int/news-room/fact-sheets/detail/palliative-care Accessed 19 Aug 2023
National Institute on Aging. What are Palliative Care and Hospice Care? 2021. https://www.nia.nih.gov/health/what-are-palliative-care-and-hospice-care Accessed 18 August 2021.
Khairuddin NNB, Lau ST, Ang WHD, Tan PH, Goh ZWD, Ang NKE, Lau Y. Implementing advance care planning: A qualitative exploration of nurses’ perceived benefits and challenges. J Nurs Manag. 2020;28:1080–7.
pubmed: 32479695
doi: 10.1111/jonm.13056
Yates P. Advance Care Planning: The Pros and Cons. J Thorac Oncol. 2017;12(11):S1642-1643.
doi: 10.1016/j.jtho.2017.09.160
Harrison S, Meier DE, Arnold RM. What’s wrong with Advance Care Planning. JAMA. 2021;326(16):1575–6.
doi: 10.1001/jama.2021.16430
Meeussen K, Van den Block L, Echteld M, Bossuyt N, Bilsen J, Van Casteren V, Abarshi E, Donker G, Onwuteaka-Philipsen B, Deliens L. Advance care planning in Belgium and The Netherlands: a nationwide retrospective study via sentinel networks of general practitioners. J Pain Symptom Manage. 2011. https://doi.org/10.1016/j.jpainsymman.2011.01.011 .
doi: 10.1016/j.jpainsymman.2011.01.011
pubmed: 21530152
Hamilton IJ. Advance care planning in general practice: Promoting patient autonomy and shared decision making. Br J Gen Pract. 2017;67(656):104–5.
pubmed: 28232333
pmcid: 5325625
doi: 10.3399/bjgp17X689461
Health and Disability Commissioner. Code of Health and Disability Services Consumers' Rights Regulations 1996. 1996. https://www.hdc.org.nz/your-rights/about-the-code/code-of-health-and-disability-services-consumers-rights/ Accessed 19 July 2021.
Department of Health. Mental Capacity Act. London: HMSO; 2005.
Stein GL, Fineberg IC. Advance Care Planning in the USA and UK: A comparative analysis of policy, implementation, and the social work role. Bri J Soc Work. 2013;43(2):233–48.
doi: 10.1093/bjsw/bct013
Orlovic M, Callender T, Riley J, Darzi A, Droney J. Impact of advance care planning on dying in hospital: Evidence from urgent care records. Plos One, 2020; https://doi.org/10.1371/journal.pone.0242914 . eCollection 2020.
Roa JK, Anderson LA, Lin FC, Laux JP. Completion of Advance Directives Among U.S. Consumers. Am J Prev Med 2014;46:1:65–70
Patient Protection and Affordable Care Act, Public Law 148, U.S. Statutes at Large 124. 2010; 119–1024. http://housedocs.house.gov/energycommerce/ppacacon.pdf Accessed 19 Aug 2023
Carr D, Luth EA. Advance care planning: Contemporary issues and future directions. Innov Aging. 2017;1(1):1–10.
doi: 10.1093/geroni/igx012
Knight T, Malyon A, Fritz Z, Subbe C, Cooksley T, Holland M, Lasserson D. Advance care planning in patient referred to hospital for acute medical care: results of a National Day of Care survey. EClinicalMedicine. 2020. https://doi.org/10.1016/j.eclinm.2019.12.005 .
doi: 10.1016/j.eclinm.2019.12.005
pubmed: 32055788
pmcid: 7005412
Royal College of Physicians. End of Life Care Audit – Dying in Hospital. 2016. https://www.rcplondon.ac.uk/projects/outputs/end-life-care-audit-dying-hospital-national-report-england-2016 Accessed 29 June 2021
Lovell A, Yates P. Advance Care Planning in palliative care: A systematic literature review of contextual factors influencing uptake 2008–2012. Palliat Med. 2014;28(8):1026–35.
pubmed: 24821708
doi: 10.1177/0269216314531313
Tapsfield J, Hall C, Lunan C, McCutcheon H, McLoughlin P, Rhee J, Leiva A, Spiller J, Finucane A, Murray SA. Many people in Scotland now benefit from anticipatory care before they die: an after-death analysis and interviews with general practitioners. BMJ Support Palliat Care. 2015. https://doi.org/10.1136/bmjspcare-2015-001014 .
doi: 10.1136/bmjspcare-2015-001014
Brooke J, Kirk M. Advance care planning for people living with Dementia. Br J Community Nurs. 2014;19(10):490–5.
pubmed: 25284185
doi: 10.12968/bjcn.2014.19.10.490
Ludwick R, Baughman KR, Jarjoura D, Kropp DJ. Advance care planning: An exploration of the beliefs, self-efficacy, education, and practices of RNs and LPNs. Am J Nurs. 2018;118(12):26–32.
pubmed: 30418182
doi: 10.1097/01.NAJ.0000549664.43827.ce
Head BA, Song M, Wiencek C, Nevidjon B, Fraser D, Mazanec P. Nurses leading change and transforming care: The nurse’s role in communication and advance care planning. J Hosp Palliat Nurs. 2018;20(1):23–9.
pubmed: 30063610
doi: 10.1097/NJH.0000000000000406
Butler R, Monsalve M, Thomas GW, Herman T, Segre AM, Polgreen PM, Suneja M. Estimating time physicians and other health care workers spend with patients in an intensive care unit using a sensor network. Am J Med. 2018. https://doi.org/10.1016/j.amjmed.2018.03.015 .
doi: 10.1016/j.amjmed.2018.03.015
pubmed: 29649458
National Health and Care Excellence. Advance Care Planning – A quick guide for registered managers and home care services. 2019. https://www.nice.org.uk/media/default/about/nice-communities/social-care/quick-guides/advance-care-planning-quick-guide.pdf Accessed 19 Aug 2023
Miller H, Clayton JM, Meller A, Hermiz O, Zwar N, Rhee J. Patient experiences of nurse-facilitated advance care planning in a general practice setting: a qualitative study. BMC Palliat Care. 2019. https://doi.org/10.1186/s12904-019-0411-z .
doi: 10.1186/s12904-019-0411-z
pubmed: 30841925
pmcid: 6404299
Johnson S, Butow P, Kerridge I, Tattersall M. Advance care planning for cancer patients: a systematic review of perceptions and experiences of patients families and healthcare providers. Psychooncology. 2016;23:362–86.
doi: 10.1002/pon.3926
Dowling T, Kennedy S, Foran S. Implementing advance directives – An international literature review of important considerations for nurses. J Nurs Manag. 2020;28:1177–90.
pubmed: 32663341
Firn J, Preston N, Walshe C. What are the views of hospital-based generalist palliative care professionals on what facilitates or hinders collaboration with in-patient specialist palliative care teams? A systematically constructed narrative synthesis. Palliat Med. 2016;30(3):240–56.
pubmed: 26873984
doi: 10.1177/0269216315615483
Kwame A, Petrucka PM. A literature-based study of patient-centered care and communication in nurse-patient interactions: barriers, facilitators, and the way forward. BMC Nurs. 2022. https://doi.org/10.1186/s12912-021-00684-2 .
doi: 10.1186/s12912-021-00684-2
pubmed: 35255908
pmcid: 8900414
Aoki T, Miyashita J, Yamamoto Y, Ikenoue T, Kise M, Fujinuma Y, Fukuma S, Kimachi M, Shimizu S, Fukuhara S. Patient experience of primary care and advance care planning: a multicentre cross-sectional study in Japan. Fam Pract. 2017;34(2):206–12.
pubmed: 28334740
doi: 10.1093/fampra/cmw126
Department of Health. End of Life Care Strategy - Fourth Annual Report. 2012. https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/136486/End-of-Life-Care-Strategy-Fourth-Annual-report-web-version-v2.pdf Accessed 18 July 2021
Holland DE, Vanderboom CE, Dose A, Ingram CJ, Delgado A, Austin CM, Green MJ, Levi B. Nurse-led patient-centred advance care planning in primary care. J Hosp Palliat Nurs. 2017;19(4):368–75.
doi: 10.1097/NJH.0000000000000358
Schallenburger M, Reuters MC, Schwartz J, Fischer M, Roch C, Werner L, Bausewein C, Simon ST, van Oorschot B, Neukirchen M. Inpatient generalist palliative care during the SARS-CoV-2 pandemic – Experiences, challenges and potential solutions from the perspective of health care workers. BMC Palliat Care. 2022. https://doi.org/10.1186/s12904-022-00958-9 .
doi: 10.1186/s12904-022-00958-9
pubmed: 35501750
pmcid: 9061223
Frey R, Balmer D. COVID-19 and hospice community palliative care in New Zealand: A qualitative study. Health Soc Care Commun. 2022. https://doi.org/10.1111/hsc.13810 .
doi: 10.1111/hsc.13810
Beck E, McIlfatrick S, Hasson F, Leavey G. Health care professionals’ perspectives of advance care planning for people with dementia living in long-term care settings: A narrative review of the literature. Dementia. 2017;16(4):486–512.
pubmed: 26378123
doi: 10.1177/1471301215604997
Blackwood DH, Walker D, Mythen MG, Taylor RM, Vindrola-Padros C. Barriers to advance care planning with patients as perceived by nurses and other healthcare professionals: A systematic review. J Clin Nurs. 2019. https://doi.org/10.1111/jocn.15049 .
doi: 10.1111/jocn.15049
pubmed: 31494997
National Institute of Health and Care Excellence. Chapter 9 Community Nursing. 2018; https://www.nice.org.uk/guidance/ng94/evidence/09.community-nursing-pdf-172397464596 Accessed 9 Dec 2023.
Munn Z, Peters MDJ, Stern C, Tufanaru C, McArthur A, Aromataris E. Systematic review or scoping review? Guidance for authors when choosing between a systematic or scoping review approach. BMC Med Res Methodol. 2018. https://doi.org/10.1186/s12874-018-0611-x .
doi: 10.1186/s12874-018-0611-x
pubmed: 30453902
pmcid: 6245623
Poitras M, Chouinard M, Fortin M, Gallagher F. How to report professional practice in nursing? A scoping review. BMC Nurs. 2016. https://doi.org/10.1186/s12912-016-0154-6 .
doi: 10.1186/s12912-016-0154-6
pubmed: 27231437
pmcid: 4880971
Arksey H, O’Malley L. Scoping studies: Towards a methodological framework. Int J Soc Res Methodol. 2005;8(1):19–32.
doi: 10.1080/1364557032000119616
Aromataris E, Munn Z. JBI Manual for Evidence Synthesis. 2020. https://wiki.jbi.global/display/MANUAL/JBI+Manual+for+Evidence+Synthesis . Accessed 29 July 2021.
Tricco AC, Lillie E, Zarin W, O’Brien KK, Colquhoun H, Levac D, Moher D, Peters MDJ, Horsley T, Weeks L, Hempel S, Aki EA, Chang C, McGowan J, Stewart L, Hartling L, Aldcroft A, Wilson MG, Garrity C, Lewin S, Godfrey CM, Macdonald MT, Langlois EV, Soares-Weiser K, Moriarty J, Clifford T, Tunçalp Ö, Strass SE. PRISMA Extension for Scoping Reviews (PRISMAScR): Checklist and Explanation. Ann Intern Med. 2018. https://doi.org/10.7326/M18-0850 .
doi: 10.7326/M18-0850
pubmed: 30178033
Moher D, Liberati A, Tetzlaff J, Altman DG. Preferred Reporting Items for Systematic Reviews and Meta-analyses: The PRISMA Statement. PLoS Med. 2009. https://doi.org/10.1371/journal.pmed1000097 .
doi: 10.1371/journal.pmed1000097
pubmed: 19753108
pmcid: 2735783
Ghalibaf AK, Nazari E, Gholian-Aval M, Tabesh H, Tara M. Comprehensive overview of computer-based health information tailoring: A scoping review protocol. BMJ Open. 2017. https://doi.org/10.1136/bmjopen-2017-019215 .
doi: 10.1136/bmjopen-2017-019215
pubmed: 29284722
pmcid: 5770833
Braun V, Clarke V. Successful Qualitative Research: A practical guide for beginners. London: SAGE; 2013.
Bradbury-Jones C, Aveyard H, Herber OR, Isham L, Taylor J, O’Malley L. Scoping reviews: The PAGER framework for improving the quality of reporting’. Int J Soc Res Methodol. 2021. https://doi.org/10.1080/13645579.2021.1899596 .
doi: 10.1080/13645579.2021.1899596
Seymour J, Almack K, Kennedy S. Implementing advance care planning: A qualitative study of community nurses’ views and experiences. BMC Palliat Care. 2010. https://doi.org/10.1186/1472-684X-9-4 .
doi: 10.1186/1472-684X-9-4
pubmed: 20377876
pmcid: 2854100
Robinson L, Dickinson C, Bamford C, Clark A, Hughes J, Exley C. A qualitative study: Professionals’ experiences of advance care planning in dementia and palliative care, a good idea in theory but. Palliat Med. 2012;27(5):401–8.
pubmed: 23175508
doi: 10.1177/0269216312465651
Davidson R, Banister E, de Vries K. Primary healthcare NZ nurses’ experiences of advance directives: Understanding their potential role. Nursing Praxis. 2013;29:26–33.
Menon S, Kars MC, Malhotra C, Campbell AV, van Delden JJ. Advance care planning in a multicultural family centric community: A qualitative study of health care professionals, patients and caregivers’ perspectives. J Pain Symptom Manage. 2018;56(2):213–21.
pubmed: 29775694
doi: 10.1016/j.jpainsymman.2018.05.007
Glaudemans JJ, de Jong AE, Onwuteaka-Philipsen BD, Wind J, Willems DL. How do Dutch primary care providers overcome barriers to advance care planning with older people? A qualitative study. Fam Pract. 2019;36(2):219–24.
pubmed: 29893922
doi: 10.1093/fampra/cmy055
Minto F, Strickland K. Anticipating emotion: A qualitative study of advance care planning in the community setting. Int J Palliat Nurs. 2011;17:278–84.
pubmed: 21727885
doi: 10.12968/ijpn.2011.17.6.278
Lam L, Ansari AS, Baquir PJ, Chowdhury N, Tran K, Bailey J. Current practices, barriers and enablers for advance care planning among healthcare workers of aged care facilities in western South Wales. Aust Rural Remote Health. 2018. https://doi.org/10.22605/RRH4717 .
doi: 10.22605/RRH4717
Kastbom L, Milberg A, Karlsson M. We have no crystal ball – Advance care planning at nursing homes from the perspective of nurses and physicians. Scand J Prim Health Care. 2019;37(2):191–9.
pubmed: 31122099
pmcid: 6567000
doi: 10.1080/02813432.2019.1608068
Kazmierski M, King N. Role of the community matron in advance care planning and ‘do not attempt CPR’ decision-making: A qualitative study. Br J Commun Nurs. 2015;20(1):19–24.
doi: 10.12968/bjcn.2015.20.1.19
Raphael D, Waterworth S, Gott M. The role of practice nurses in providing palliative and end-of-life care to older patients with long-term conditions. Int J Palliat Nurs. 2014;20(8):373–9.
pubmed: 25151864
doi: 10.12968/ijpn.2014.20.8.373
Walshe C. Aims, actions and advance care planning by district nurses providing palliative care: An ethnographic observational study. Br J Community Nurs. 2020;25:276–86.
pubmed: 32496856
doi: 10.12968/bjcn.2020.25.6.276
Boot M, Wilson C. Clinical nurse specialists’ perspectives on advance care planning conversations. Int J Palliat Nurs. 2014;20(1):9–13.
pubmed: 24464168
doi: 10.12968/ijpn.2014.20.1.9
Schichtel M, MacArtney JI, Wee B, Boylan A. Implementing advance care planning in heart failure. Br J Gen Pract. 2021. https://doi.org/10.3399/BJGP.2020.0973 .
doi: 10.3399/BJGP.2020.0973
pubmed: 33947665
pmcid: 8103928
Shwom BL. Business Communication: Polishing Your Professional Presence 3
Amalberti R, Auroy Y, Berwich D, Barach P. Five system barriers to achieving ultrasafe health care. Ann Int Med. 2005;3(142):756–64.
doi: 10.7326/0003-4819-142-9-200505030-00012
Thoresen L, Pedersen R, Lillemoen L, Gjerberg E, Forde R. Advance care planning in Norwegian nursing homes – limited awareness of residents’ preferences and values? A qualitative study. BMC Geriatr. 2019. https://doi.org/10.1186/s12877-019-1378-6 .
doi: 10.1186/s12877-019-1378-6
pubmed: 31870302
pmcid: 6929496
Hirakawa Y, Aita K, Nishikawa M, Arai H, Miura H. Facilitating advance care planning for patients with severe COPD. Home Healthcare Now. 2021;39(2):81–90.
pubmed: 33662966
pmcid: 7934328
doi: 10.1097/NHH.0000000000000945
Jeong SY, Higgins I and McMillan M. Experiences with advance care planning: Nurses’ perspectives. Int JOlder People Nurs. 2011;6:3:165–175.
Baughman KR, Aultman JM, Ludwick R, O’Neill A. Narrative analysis of the ethics in providing advance care planning. Nurs Ethics, 2014;21:1:53–63.
Boot M. Exploring the district nurse role in facilitating individualised advance care planning’. Br J Community Nurs. 2016;21(3):144–7.
pubmed: 26940617
doi: 10.12968/bjcn.2016.21.3.144
Molina-Mula J, Gallo-Estrada J. Impact of nurse-patient relationship on quality of care and patient autonomy in decision-making. Int J Environ Res Public Health. 2020. https://doi.org/10.3390/ijerph17030835 .
doi: 10.3390/ijerph17030835
pubmed: 33255482
pmcid: 7727835
Östman M, Bäck-Petterson S, Sandvik A. Nurses’ experiences of continuity of care for patients with Heart Failure: A thematic analysis. J Clin Nurs. 2020. https://doi.org/10.1111/jocn.15547 .
doi: 10.1111/jocn.15547
pubmed: 33141466
Colville E, Kennedy C. ACP conversations in clinical practice: Impact of an education initiative’. Br J Community Nurs. 2012;17(5):230–4.
pubmed: 22584402
doi: 10.12968/bjcn.2012.17.5.230
Fang ML, Sixsmith J, Sinclair S, Horst G. A knowledge synthesis of culturally-and spiritually-sensitive end-of-life care: Findings from a scoping review’. BMC Geriatr. 2016. https://doi.org/10.1168/s12877-016-282-6 .
doi: 10.1168/s12877-016-282-6
pubmed: 27193395
pmcid: 4872365
Sinclair C, Auret KA, Evans SF, Williamson F, Dormer S, Wilkinson A, Greeve K, Koay A, Price D, Brims F. Advance care planning uptake among patients with severe lung disease: a randomised patient preference trial of a nurse-led, facilitated advance care planning intervention. BMJ Open. 2017. https://doi.org/10.1136/bmjopen-2016-013415 .
doi: 10.1136/bmjopen-2016-013415
pubmed: 29118054
pmcid: 5695299
Rietze L, Heale R, Roles S, Hill L. Identifying the factors associated with Canadian registered nurses’ engagement in advance care planning. J Hosp Palliat Nurs. 2018;20(3):230–6.
pubmed: 30063673
doi: 10.1097/NJH.0000000000000423
Zwakman M, Milota MM, van der Heide A, Jabbarian LJ, Korfage IJ, Rietjens JAC, van Delden JJM, Kars MC. Unravelling patients’ readiness in advance care planning conversations: a qualitative study as part of the ACTION Study. Support Care Cancer. 2021;29(6):2917–29.
pubmed: 33001268
doi: 10.1007/s00520-020-05799-x
Harrison-Dening K. Dementia: Diagnosis and early interventions. Br J Neurosci Nurs. 2013;9(3):131–7.
doi: 10.12968/bjnn.2013.9.3.131
Canadian Paediatric Society. Advance care planning for paediatric patients. Paediatric Child Health. 2008;13(9):791–6.
doi: 10.1093/pch/13.9.791
Vemuri S, Hynson J, Williams K, Gillam L. Conceptualising paediatric advance care planning: a qualitative phenomenological study of paediatricians caring for children with life-limiting conditions in Australia. BMJ Open. 2021. https://doi.org/10.1136/bmjopen-2021-060077 .
doi: 10.1136/bmjopen-2021-060077
Alcalde J, Zimmermann C. Stigma about palliative care: Origins and solutions. Ecancermedicalscience. 2022. https://doi.org/10.3332/ecancer.2022.1377 .
doi: 10.3332/ecancer.2022.1377
pubmed: 35702413
pmcid: 9116991
Ng SY, Wong EL. The role complexities in advance care planning for end-of-life care – Nursing students’ perception of the nursing profession. Int J Environ Res Public Health. 2021. https://doi.org/10.3390/ijerph18126574 .
doi: 10.3390/ijerph18126574
pubmed: 35010580
pmcid: 8751171
Weaver E, Vaughn T. Successful intervention: Raising awareness of advance care planning in the rural community setting. BMC Supp Palliat Care. 2013. https://doi.org/10.1136/bmjspcare-2013-000491.23 .
doi: 10.1136/bmjspcare-2013-000491.23
Hinders D. Advance directives: Limitations to completion. Am J Hosp Palliat Med. 2012;29(4):286–9.
doi: 10.1177/1049909111419293
Black K. Advance directive communication: nurses’ and social workers’ perceptions of roles’. Am J Hosp Palliat Care. 2006;23(3):175–84.
pubmed: 17060276
doi: 10.1177/1049909106289080
Jimenez G, Virk AK, Tan WS, Car J, Ho AHY, Low CK. Overview of systematic reviews of advance care planning: Summary of evidence and global lessons. J Pain Symptom Manage. 2018;56(3):436–59.
pubmed: 29807158
doi: 10.1016/j.jpainsymman.2018.05.016
Hawley P. Barriers to access palliative care. Palliative Care. 2017. https://doi.org/10.1177/1178224216688887 .
doi: 10.1177/1178224216688887
pubmed: 28469439
pmcid: 5398324
Flo E, Husebo BS, Bruusgaard P, Gjerberg E, Thoresen L, Lillemoen L, Pedersen R. A review of the implementation and research strategies of advance care planning in nursing homes. BMC Geriatr. 2016. https://doi.org/10.1186/s12877-016-0179-4 .
doi: 10.1186/s12877-016-0179-4
pubmed: 27245665
pmcid: 4888256
Chan HYL, Pang SMC. Let me talk-an advance care planning programme for frail nursing home residents. J Clin Nurs. 2010. https://doi.org/10.1111/j.1365-2702.2010.03353.x .
doi: 10.1111/j.1365-2702.2010.03353.x
pubmed: 21040043
Thomas K, Lobo B, Detering K. Advance Care Planning in End-of-Life Care. 2nd ed. Oxford: Oxford University Press; 2018.
doi: 10.1093/oso/9780198802136.001.0001
McCrae N, Blackstock M, Purssell E. Eligibility criteria in systematic reviews: A methodological review. Int J Nurs Stud. 2015;52(7):1269–76.
pubmed: 25726430
doi: 10.1016/j.ijnurstu.2015.02.002