Psychological wellbeing among parents of a child living with a serious chronic illness: A cross-sectional survey study.

Caregivers child health chronic disease psychological distress psychosocial functioning

Journal

Journal of child health care : for professionals working with children in the hospital and community
ISSN: 1741-2889
Titre abrégé: J Child Health Care
Pays: England
ID NLM: 9806360

Informations de publication

Date de publication:
29 Mar 2024
Historique:
medline: 29 3 2024
pubmed: 29 3 2024
entrez: 29 3 2024
Statut: aheadofprint

Résumé

Parents of a child with a chronic illness can experience greater distress than the average population, yet little is understood about differences between illness groups. This cross-sectional survey study aimed to compare parents' psychological distress and perceived wellbeing across five chronic illnesses. Parents from one Australian pediatric hospital completed the Kessler Psychological Distress Scale and seven purpose-designed items about their wellbeing. Data from 106 parents (cancer = 48, cystic fibrosis [CF] = 27, kidney disease = 12, gastrointestinal condition/disorder = 9, developmental and epileptic encephalopathy [DEE] = 10) was analysed using bivariate Pearson's Correlation and linear mixed-effects models. Parents' distress scores differed between groups (

Identifiants

pubmed: 38551845
doi: 10.1177/13674935241238485
doi:

Types de publication

Journal Article

Langues

eng

Pagination

13674935241238485

Déclaration de conflit d'intérêts

Declaration of conflicting interestsThe author(s) declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article.

Auteurs

Eden G Robertson (EG)

Discipline of Paediatrics and Child Health, School of Clinical Medicine, UNSW Medicine and Health, UNSW Sydney, Randwick, NSW, Australia.
Behavioural Sciences Unit, Kids Cancer Centre, Sydney Children's Hospital, Randwick, NSW, Australia.

Lauren Kelada (L)

Discipline of Paediatrics and Child Health, School of Clinical Medicine, UNSW Medicine and Health, UNSW Sydney, Randwick, NSW, Australia.
Behavioural Sciences Unit, Kids Cancer Centre, Sydney Children's Hospital, Randwick, NSW, Australia.

Robert Ilin (R)

Discipline of Paediatrics and Child Health, School of Clinical Medicine, UNSW Medicine and Health, UNSW Sydney, Randwick, NSW, Australia.
Behavioural Sciences Unit, Kids Cancer Centre, Sydney Children's Hospital, Randwick, NSW, Australia.

Elizabeth Emma Palmer (EE)

Discipline of Paediatrics and Child Health, School of Clinical Medicine, UNSW Medicine and Health, UNSW Sydney, Randwick, NSW, Australia.
Centre for Clinical Genetics, Sydney Children's Hospitals Network, Randwick, NSW, Australia.

Ann Bye (A)

Discipline of Paediatrics and Child Health, School of Clinical Medicine, UNSW Medicine and Health, UNSW Sydney, Randwick, NSW, Australia.
Department of Neurology, Sydney Children's Hospital, Randwick, NSW, Australia.

Adam Jaffe (A)

Discipline of Paediatrics and Child Health, School of Clinical Medicine, UNSW Medicine and Health, UNSW Sydney, Randwick, NSW, Australia.
Department of Respiratory Medicine, Sydney Children's Hospital, Randwick, NSW, Australia.

Sean E Kennedy (SE)

Discipline of Paediatrics and Child Health, School of Clinical Medicine, UNSW Medicine and Health, UNSW Sydney, Randwick, NSW, Australia.
Department of Nephrology, Sydney Children's Hospital, Randwick, NSW, Australia.

Chee Y Ooi (CY)

Discipline of Paediatrics and Child Health, School of Clinical Medicine, UNSW Medicine and Health, UNSW Sydney, Randwick, NSW, Australia.
Department of Gastroenterology, Sydney Children's Hospital, Randwick, NSW, Australia.

Donna Drew (D)

Kids Cancer Centre, Sydney Children's Hospital, Randwick, NSW, Australia.

Claire E Wakefield (CE)

Discipline of Paediatrics and Child Health, School of Clinical Medicine, UNSW Medicine and Health, UNSW Sydney, Randwick, NSW, Australia.
Behavioural Sciences Unit, Kids Cancer Centre, Sydney Children's Hospital, Randwick, NSW, Australia.

Classifications MeSH