Facilitators and barriers of implementing end-of-life care volunteering in a hospital in five European countries: the iLIVE study.
End of life care
Hospital volunteer
Implementation
Inpatient
Volunteering
Journal
BMC palliative care
ISSN: 1472-684X
Titre abrégé: BMC Palliat Care
Pays: England
ID NLM: 101088685
Informations de publication
Date de publication:
02 Apr 2024
02 Apr 2024
Historique:
received:
11
07
2023
accepted:
26
03
2024
medline:
2
4
2024
pubmed:
2
4
2024
entrez:
2
4
2024
Statut:
epublish
Résumé
End-of-life (EoL) care volunteers in hospitals are a novel approach to support patients and their close ones. The iLIVE Volunteer Study supported hospital volunteer coordinators from five European countries to design and implement an EoL care volunteer service on general wards in their hospitals. This study aimed to identify and explore barriers and facilitators to the implementation of EoL care volunteer services in the five hospitals. Volunteer coordinators (VCs) from the Netherlands (NL), Norway (NO), Slovenia (SI), Spain (ES) and United Kingdom (UK) participated in a focus group interview and subsequent in-depth one-to-one interviews. A theory-inspired framework based on the five domains of the Consolidated Framework for Implementation Research (CFIR) was used for data collection and analysis. Results from the focus group were depicted in radar charts per hospital. Barriers across all hospitals were the COVID-19 pandemic delaying the implementation process, and the lack of recognition of the added value of EoL care volunteers by hospital staff. Site-specific barriers were struggles with promoting the service in a highly structured setting with many stakeholders (NL), negative views among nurses on hospital volunteering (NL, NO), a lack of support from healthcare professionals and the management (SI, ES), and uncertainty about their role in implementation among VCs (ES). Site-specific facilitators were training of volunteers (NO, SI, NL), involving volunteers in promoting the service (NO), and education and awareness for healthcare professionals about the role and boundaries of volunteers (UK). Establishing a comprehensive EoL care volunteer service for patients in non-specialist palliative care wards involves multiple considerations including training, creating awareness and ensuring management support. Implementation requires involvement of stakeholders in a way that enables medical EoL care and volunteering to co-exist. Further research is needed to explore how trust and equal partnerships between volunteers and professional staff can be built and sustained. NCT04678310. Registered 21/12/2020.
Sections du résumé
BACKGROUND
BACKGROUND
End-of-life (EoL) care volunteers in hospitals are a novel approach to support patients and their close ones. The iLIVE Volunteer Study supported hospital volunteer coordinators from five European countries to design and implement an EoL care volunteer service on general wards in their hospitals. This study aimed to identify and explore barriers and facilitators to the implementation of EoL care volunteer services in the five hospitals.
METHODS
METHODS
Volunteer coordinators (VCs) from the Netherlands (NL), Norway (NO), Slovenia (SI), Spain (ES) and United Kingdom (UK) participated in a focus group interview and subsequent in-depth one-to-one interviews. A theory-inspired framework based on the five domains of the Consolidated Framework for Implementation Research (CFIR) was used for data collection and analysis. Results from the focus group were depicted in radar charts per hospital.
RESULTS
RESULTS
Barriers across all hospitals were the COVID-19 pandemic delaying the implementation process, and the lack of recognition of the added value of EoL care volunteers by hospital staff. Site-specific barriers were struggles with promoting the service in a highly structured setting with many stakeholders (NL), negative views among nurses on hospital volunteering (NL, NO), a lack of support from healthcare professionals and the management (SI, ES), and uncertainty about their role in implementation among VCs (ES). Site-specific facilitators were training of volunteers (NO, SI, NL), involving volunteers in promoting the service (NO), and education and awareness for healthcare professionals about the role and boundaries of volunteers (UK).
CONCLUSION
CONCLUSIONS
Establishing a comprehensive EoL care volunteer service for patients in non-specialist palliative care wards involves multiple considerations including training, creating awareness and ensuring management support. Implementation requires involvement of stakeholders in a way that enables medical EoL care and volunteering to co-exist. Further research is needed to explore how trust and equal partnerships between volunteers and professional staff can be built and sustained.
TRIAL REGISTRATION
BACKGROUND
NCT04678310. Registered 21/12/2020.
Identifiants
pubmed: 38561727
doi: 10.1186/s12904-024-01423-5
pii: 10.1186/s12904-024-01423-5
doi:
Banques de données
ClinicalTrials.gov
['NCT04678310']
Types de publication
Journal Article
Langues
eng
Sous-ensembles de citation
IM
Pagination
88Investigateurs
Simon Allan
(S)
Pilar Barnestein-Fonseca
(P)
Mark Boughey
(M)
Andri Christen
(A)
Nora Lüthi
(N)
Martina Egloff
(M)
Steffen Eychmüller
(S)
Sofia C Zambrano
(SC)
Gustavo G De Simone
(GG)
Eline E C M Elsten
(EECM)
Eric C T Geijteman
(ECT)
Iris Pot
(I)
Carin C D van der Rijt
(CCD)
Carl Johan Fürst
(CJ)
Birgit H Rasmussen
(BH)
Maria E C Schelin
(MEC)
Christel Hedman
(C)
Gabriel Goldraij
(G)
Svandis Iris Halfdanardottir
(SI)
Valgerdur Sigurdardottir
(V)
Tanja Hoppe
(T)
Melanie Joshi
(M)
Julia Strupp
(J)
Raymond Voltz
(R)
Maria Luisa Martín-Roselló
(ML)
Silvi Montilla
(S)
Verónica I Veloso
(VI)
Vilma Tripodoro
(V)
Katrin Ruth Sigurdardottir
(KR)
Hugo M van der Kuy
(HM)
Lia van Zuylen
(L)
Michael Berger
(M)
Rosemary Hughes
(R)
Hana Kodba-Ceh
(H)
Ida J Korfage
(IJ)
Urska Lunder
(U)
Stephen Mason
(S)
Beth Morris
(B)
Kjersti Solvåg
(K)
Informations de copyright
© 2024. The Author(s).
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