Lived Experience of Parastomal Bulging: A Mixed Methods Study.
hernia
parastomal bulging
parastomal hernia
self-management
stoma
Journal
Journal of abdominal wall surgery : JAWS
ISSN: 2813-2092
Titre abrégé: J Abdom Wall Surg
Pays: Switzerland
ID NLM: 9918713888406676
Informations de publication
Date de publication:
2024
2024
Historique:
received:
27
11
2023
accepted:
15
03
2024
medline:
12
4
2024
pubmed:
12
4
2024
entrez:
12
4
2024
Statut:
epublish
Résumé
This United Kingdom study aimed to explore people's experiences of living with, and self-managing parastomal bulging. Seventeen people were interviewed and 61 people completed an online survey. Parastomal bulging has a detrimental impact on quality of life including a negative impact on stoma function, daily activities, body image, physical intimacy, and socialising; access to specialist information and support for addressing the problem of bulging was inequitable; support garments were the most common self-management intervention; there was confusion about what exercise would be beneficial or how being active would help in terms of parastomal bulging self-management; peer support is no substitute for high quality specialist support. People need equitable access to information and support to self-manage and treat parastomal bulging. Research about other types of self-management interventions, for example, exercise is required so that people do not have to rely solely on support garments to self-manage parastomal bulging.
Identifiants
pubmed: 38606041
doi: 10.3389/jaws.2024.12478
pii: 12478
pmc: PMC11007663
doi:
Types de publication
Journal Article
Langues
eng
Pagination
12478Informations de copyright
Copyright © 2024 Munro, Hubbard, Goodman, Beeken and Oliphant.
Déclaration de conflit d'intérêts
The authors declare that the research was conducted in the absence of any commercial or financial relationships that could be construed as a potential conflict of interest.