Prognostic Disclosure to Dying Adolescents Against Parental Wishes: A Point-Counter Point Debate.
Disclosure
Pediatrics
Prognosis
Shared decision-making
Journal
HEC forum : an interdisciplinary journal on hospitals' ethical and legal issues
ISSN: 1572-8498
Titre abrégé: HEC Forum
Pays: Netherlands
ID NLM: 8917455
Informations de publication
Date de publication:
26 Apr 2024
26 Apr 2024
Historique:
accepted:
13
03
2024
medline:
26
4
2024
pubmed:
26
4
2024
entrez:
26
4
2024
Statut:
aheadofprint
Résumé
An adolescent's last moment of life is an emotionally and medically complex time. Children may grapple with understanding the things happening to them and with grief of a future lost; caregivers struggle to simultaneously balance deep sorrow, hope, and love; and healthcare providers fight to maintain sound medical and ethical decision making. Increased discussion regarding adolescent end-of-life care is needed so that clinicians may better understand how to engage in ethically based medical management during these events. This holds particularly true in situations where potentially conflicting ideas exist between clinicians and family members. We describe the case of an acutely and terminally ill adolescent who remained cognitively intact but with rapidly advancing multiple organ failure and whose parents requested that he remain uninformed of his critical illness and prognosis.
Identifiants
pubmed: 38668890
doi: 10.1007/s10730-024-09526-5
pii: 10.1007/s10730-024-09526-5
doi:
Types de publication
Journal Article
Review
Langues
eng
Sous-ensembles de citation
IM
Informations de copyright
© 2024. The Author(s), under exclusive licence to Springer Nature B.V.
Références
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