Research priorities in trans health: a Delphi-study.


Journal

Frontiers in public health
ISSN: 2296-2565
Titre abrégé: Front Public Health
Pays: Switzerland
ID NLM: 101616579

Informations de publication

Date de publication:
2024
Historique:
received: 11 10 2023
accepted: 02 04 2024
medline: 29 4 2024
pubmed: 29 4 2024
entrez: 29 4 2024
Statut: epublish

Résumé

Progress has been made in understanding trans health needs, but research priorities are often set by policy or healthcare professionals without trans input, which may not reflect public needs. Our study sought to identify trans health research priorities in France from both researchers and the trans community. Expert stakeholders (health and social sciences professionals, trans individuals, and their families) answered a three-round Delphi survey on trans health research priorities. The first round involved an open-ended questionnaire, analyzed qualitatively. In the second round, participants ranked research propositions from round one using a Likert scale. The study's second phase involved a two-hour workshop with experts and trans individuals. 53 participants (32% trans individuals/relatives, 60% health professionals) contributed 217 responses to open-ended questions, leading to 44 research priorities. After the two voting rounds, a total of five proposals reached a strong consensus cut-off and were considered as the main research priorities: evaluation of the effect of puberty blocker use in trans children and adolescents (95%), evaluation of the effect of supporting trans children and adolescents (92%), study of the support systems available for trans youth and their parents (86%), persistence of trans identity around puberty (prevalence, persistent persons characteristics) (86%), and needs assessment survey of the support for adolescents and their families (83%). Thirteen other proposals were considered moderate priorities. The main consensus in our French study concerned research on trans-youth care and support needs. Our results may guide further trans-health research that meets the public's needs and desires.

Identifiants

pubmed: 38680933
doi: 10.3389/fpubh.2024.1307531
pmc: PMC11045899
doi:

Types de publication

Journal Article Research Support, Non-U.S. Gov't

Langues

eng

Sous-ensembles de citation

IM

Pagination

1307531

Informations de copyright

Copyright © 2024 Jurek, De la Chenelière, Lapoirie and Neuville.

Déclaration de conflit d'intérêts

The authors declare that the research was conducted in the absence of any commercial or financial relationships that could be construed as a potential conflict of interest.

Auteurs

Lucie Jurek (L)

Child and Adolescent Psychiatry Department, Centre Hospitalier Le Vinatier, Bron, France.
RESHAPE, Research on Healthcare Performance, Claude Bernard Lyon 1 University, Lyon, France.

Marie De la Chenelière (M)

Maison Dispersée de Santé, Lille, France.

Marion Lapoirie (M)

Service de Médecine de la Reproduction, Hôpital Femme-mère-enfant, Hospices Civils de Lyon, Bron, France.

Paul Neuville (P)

Urology Department, Hôpital Lyon Sud, Hospices Civils de Lyon, Lyon, France.
Claude Bernard University Lyon 1, Lyon, France.

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