Evidence-based recruitment strategies for clinical research: Study personnel's and research participants' perceptions about successful methods of outreach for a U.S. Autism-Research Cohort.

Research recruitment autism parent/caregiver participant enrollment

Journal

Journal of clinical and translational science
ISSN: 2059-8661
Titre abrégé: J Clin Transl Sci
Pays: England
ID NLM: 101689953

Informations de publication

Date de publication:
2024
Historique:
received: 02 09 2023
revised: 15 02 2024
accepted: 25 03 2024
medline: 1 5 2024
pubmed: 1 5 2024
entrez: 1 5 2024
Statut: epublish

Résumé

Under enrollment of participants in clinical research is costly and delays study completion to impact public health. Given that research personnel make decisions about which strategies to pursue and participants are the recipients of these efforts, we surveyed research staff ( In Study 1, research personnel were asked to report recruitment strategies that they tried for SPARK and to indicate which ones they would and would not repeat/recommend. In Study 2, SPARK participants were asked to indicate all the ways they heard about the study prior to enrollment and which one was most influential in their decisions to enroll. Staff rated Results suggest that a combination of strategies is likely to be most effective in reaching diverse audiences. Findings have implications for the selection of strategies that meet a study's specific needs, as well as recruitment-strategy "combinations" that may enhance the influence of outreach efforts.

Identifiants

pubmed: 38690223
doi: 10.1017/cts.2024.512
pii: S2059866124005120
pmc: PMC11058577
doi:

Types de publication

Journal Article

Langues

eng

Pagination

e65

Informations de copyright

© The Author(s) 2024.

Déclaration de conflit d'intérêts

None.

Auteurs

Robin P Goin-Kochel (RP)

Baylor College of Medicine, Houston, TX, USA.
Texas Children's Hospital, Houston, TX, USA.

Ivana Lozano (I)

Baylor College of Medicine, Houston, TX, USA.
Texas Children's Hospital, Houston, TX, USA.

Gabrielle Duhon (G)

Baylor College of Medicine, Houston, TX, USA.
Texas Children's Hospital, Houston, TX, USA.

Gabriela Marzano (G)

Baylor College of Medicine, Houston, TX, USA.
Texas Children's Hospital, Houston, TX, USA.

Amy Daniels (A)

Simons Foundation, New York, NY, USA.
Boston Children's Hospital, Harvard Medical School, Boston, MA, USA.

J Kiely Law (JK)

Simons Foundation, New York, NY, USA.
Boston Children's Hospital, Harvard Medical School, Boston, MA, USA.

Katharine Diehl (K)

Simons Foundation, New York, NY, USA.
Boston Children's Hospital, Harvard Medical School, Boston, MA, USA.

LeeAnne Green Snyder (L)

Simons Foundation, New York, NY, USA.

Pamela Feliciano (P)

Simons Foundation, New York, NY, USA.
Boston Children's Hospital, Harvard Medical School, Boston, MA, USA.

Wendy K Chung (WK)

Simons Foundation, New York, NY, USA.
Boston Children's Hospital, Harvard Medical School, Boston, MA, USA.

Classifications MeSH