Hyperkinetic Movement Disorder Caused by the Recurrent c.892C>T NACC1 Variant.

NACC1 cyclic hyperkinetic movement disorder

Journal

Movement disorders clinical practice
ISSN: 2330-1619
Titre abrégé: Mov Disord Clin Pract
Pays: United States
ID NLM: 101630279

Informations de publication

Date de publication:
02 May 2024
Historique:
revised: 10 02 2024
received: 17 10 2023
accepted: 25 03 2024
medline: 3 5 2024
pubmed: 3 5 2024
entrez: 3 5 2024
Statut: aheadofprint

Résumé

Genetic syndromes of hyperkinetic movement disorders associated with epileptic encephalopathy and intellectual disability are becoming increasingly recognized. Recently, a de novo heterozygous NACC1 (nucleus accumbens-associated 1) missense variant was described in a patient cohort including one patient with a combined mitochondrial oxidative phosphorylation (OXPHOS) deficiency. The objective is to characterize the movement disorder in affected patients with the recurrent c.892C>T NACC1 variant and study the NACC1 protein and mitochondrial function at the cellular level. The movement disorder was analyzed on four patients with the NACC1 c.892C>T (p.Arg298Trp) variant. Studies on NACC1 protein and mitochondrial function were performed on patient-derived fibroblasts. All patients had a generalized hyperkinetic movement disorder with chorea and dystonia, which occurred cyclically and during sleep. Complex I was found altered, whereas the other OXPHOS enzymes and the mitochondria network seemed intact in one patient. The movement disorder is a prominent feature of NACC1-related disease.

Sections du résumé

BACKGROUND BACKGROUND
Genetic syndromes of hyperkinetic movement disorders associated with epileptic encephalopathy and intellectual disability are becoming increasingly recognized. Recently, a de novo heterozygous NACC1 (nucleus accumbens-associated 1) missense variant was described in a patient cohort including one patient with a combined mitochondrial oxidative phosphorylation (OXPHOS) deficiency.
OBJECTIVES OBJECTIVE
The objective is to characterize the movement disorder in affected patients with the recurrent c.892C>T NACC1 variant and study the NACC1 protein and mitochondrial function at the cellular level.
METHODS METHODS
The movement disorder was analyzed on four patients with the NACC1 c.892C>T (p.Arg298Trp) variant. Studies on NACC1 protein and mitochondrial function were performed on patient-derived fibroblasts.
RESULTS RESULTS
All patients had a generalized hyperkinetic movement disorder with chorea and dystonia, which occurred cyclically and during sleep. Complex I was found altered, whereas the other OXPHOS enzymes and the mitochondria network seemed intact in one patient.
CONCLUSIONS CONCLUSIONS
The movement disorder is a prominent feature of NACC1-related disease.

Identifiants

pubmed: 38698576
doi: 10.1002/mdc3.14051
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Subventions

Organisme : Medical Research Council
ID : MR/S020136/1
Pays : United Kingdom
Organisme : CLC NIH HHS
ID : 5U54-NS078059
Pays : United States
Organisme : CLC NIH HHS
ID : 5U54-NS115198 03
Pays : United States
Organisme : FDA HHS
ID : 5R01-FD005407
Pays : United States

Informations de copyright

© 2024 The Authors. Movement Disorders Clinical Practice published by Wiley Periodicals LLC on behalf of International Parkinson and Movement Disorder Society.

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Auteurs

Jonna Komulainen-Ebrahim (J)

Research Unit of Clinical Medicine, University of Oulu, Oulu, Finland.
Medical Research Center, Oulu University Hospital, University of Oulu, Oulu, Finland.
Department of Children and Adolescents, Division of Pediatric Neurology, Oulu University Hospital, Oulu, Finland.

Salla M Kangas (SM)

Research Unit of Clinical Medicine, University of Oulu, Oulu, Finland.
Medical Research Center, Oulu University Hospital, University of Oulu, Oulu, Finland.
Biocenter Oulu, University of Oulu, Oulu, Finland.

Estrella López-Martín (E)

Institute of Rare Diseases Research, Instituto de Salud Carlos III, Madrid, Spain.

Timothy Feyma (T)

Gillette Children's Specialty Healthcare, Saint Paul, Minnesota, USA.

Fernando Scaglia (F)

Department of Molecular and Human Genetics, Baylor College of Medicine, Houston, Texas, USA.
Texas Children's Hospital, Houston, Texas, USA.
Joint BCM-CUHK Center of Medical Genetics, Prince of Wales Hospital, Shatin, Hong Kong.

Beatriz Martínez-Delgado (B)

Institute of Rare Diseases Research, Instituto de Salud Carlos III, Madrid, Spain.

Outi Kuismin (O)

Research Unit of Clinical Medicine, University of Oulu, Oulu, Finland.
Medical Research Center, Oulu University Hospital, University of Oulu, Oulu, Finland.
Department of Clinical Genetics, Oulu University Hospital, Oulu, Finland.

Maria Suo-Palosaari (M)

Medical Research Center, Oulu University Hospital, University of Oulu, Oulu, Finland.
Department of Diagnostic Radiology, Oulu University Hospital, Oulu, Finland.
Research Unit of Health Sciences and Technology, University of Oulu, Oulu, Finland.

Lucinda Carr (L)

Department of Neurology, Great Ormond Street Hospital, London, United Kingdom.

Reetta Hinttala (R)

Research Unit of Clinical Medicine, University of Oulu, Oulu, Finland.
Medical Research Center, Oulu University Hospital, University of Oulu, Oulu, Finland.
Biocenter Oulu, University of Oulu, Oulu, Finland.

Manju A Kurian (MA)

Department of Neurology, Great Ormond Street Hospital, London, United Kingdom.
Developmental Neurosciences, Zayed Centre for Research into Rare Disease in Children, UCL Great Ormond Street Institute of Child Health, London, United Kingdom.

Johanna Uusimaa (J)

Research Unit of Clinical Medicine, University of Oulu, Oulu, Finland.
Medical Research Center, Oulu University Hospital, University of Oulu, Oulu, Finland.
Department of Children and Adolescents, Division of Pediatric Neurology, Oulu University Hospital, Oulu, Finland.

Classifications MeSH