Privacy Barriers in Health Monitoring: Scoping Review.

Humans Privacy / legislation & jurisprudence Monitoring, Physiologic / methods
health monitoring technologies legal concerns privacy attitudes privacy barriers privacy concerns social psychology

Journal

JMIR nursing
ISSN: 2562-7600
Titre abrégé: JMIR Nurs
Pays: Canada
ID NLM: 101771299

Informations de publication

Date de publication:
09 May 2024
Historique:
received: 11 10 2023
accepted: 13 03 2024
revised: 20 12 2023
medline: 10 5 2024
pubmed: 10 5 2024
entrez: 9 5 2024
Statut: epublish

Résumé

Health monitoring technologies help patients and older adults live better and stay longer in their own homes. However, there are many factors influencing their adoption of these technologies. Privacy is one of them. The aim of this study was to provide an overview of the privacy barriers in health monitoring from current research, analyze the factors that influence patients to adopt assisted living technologies, provide a social psychological explanation, and propose suggestions for mitigating these barriers in future research. A scoping review was conducted, and web-based literature databases were searched for published studies to explore the available research on privacy barriers in a health monitoring environment. In total, 65 articles met the inclusion criteria and were selected and analyzed. Contradictory findings and results were found in some of the included articles. We analyzed the contradictory findings and provided possible explanations for current barriers, such as demographic differences, information asymmetry, researchers' conceptual confusion, inducible experiment design and its psychological impacts on participants, researchers' confirmation bias, and a lack of distinction among different user roles. We found that few exploratory studies have been conducted so far to collect privacy-related legal norms in a health monitoring environment. Four research questions related to privacy barriers were raised, and an attempt was made to provide answers. This review highlights the problems of some research, summarizes patients' privacy concerns and legal concerns from the studies conducted, and lists the factors that should be considered when gathering and analyzing people's privacy attitudes.

Sections du résumé

BACKGROUND BACKGROUND
Health monitoring technologies help patients and older adults live better and stay longer in their own homes. However, there are many factors influencing their adoption of these technologies. Privacy is one of them.
OBJECTIVE OBJECTIVE
The aim of this study was to provide an overview of the privacy barriers in health monitoring from current research, analyze the factors that influence patients to adopt assisted living technologies, provide a social psychological explanation, and propose suggestions for mitigating these barriers in future research.
METHODS METHODS
A scoping review was conducted, and web-based literature databases were searched for published studies to explore the available research on privacy barriers in a health monitoring environment.
RESULTS RESULTS
In total, 65 articles met the inclusion criteria and were selected and analyzed. Contradictory findings and results were found in some of the included articles. We analyzed the contradictory findings and provided possible explanations for current barriers, such as demographic differences, information asymmetry, researchers' conceptual confusion, inducible experiment design and its psychological impacts on participants, researchers' confirmation bias, and a lack of distinction among different user roles. We found that few exploratory studies have been conducted so far to collect privacy-related legal norms in a health monitoring environment. Four research questions related to privacy barriers were raised, and an attempt was made to provide answers.
CONCLUSIONS CONCLUSIONS
This review highlights the problems of some research, summarizes patients' privacy concerns and legal concerns from the studies conducted, and lists the factors that should be considered when gathering and analyzing people's privacy attitudes.

Identifiants

DOI: 10.2196/53592 PMID: 38723253
pubmed: 38723253
pii: v7i1e53592
doi: 10.2196/53592
doi:

Types de publication

Journal Article Review Research Support, Non-U.S. Gov't

Langues

eng

Sous-ensembles de citation

IM

Pagination

e53592

Informations de copyright

©Luyi Sun, Bian Yang, Els Kindt, Jingyi Chu. Originally published in JMIR Nursing (https://nursing.jmir.org), 09.05.2024.

Auteurs

Luyi Sun (L)

Department of Information Security and Communication Technology, Faculty of Information Technology and Electrical Engineering, Norwegian University of Science and Technology, Gjøvik, Norway.
ORCID: 0000-0001-8997-9152

Bian Yang (B)

Department of Information Security and Communication Technology, Faculty of Information Technology and Electrical Engineering, Norwegian University of Science and Technology, Gjøvik, Norway.
ORCID: 0000-0001-6189-1976

Els Kindt (E)

Centre for IT & IP Law, Faculty of Law and Criminology, KU Leuven, Leuven, Belgium.
ORCID: 0000-0002-6951-7871

Jingyi Chu (J)

Administrative Law, Faculty of Law, China University of Political Science and Law, Beijing, China.
ORCID: 0000-0002-2393-4485

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Classifications MeSH

questionsmedicales.fr › Eucaryotes › Animaux › Chordés › Vertébrés › Mammifères › Eutheria › Primates › Haplorhini › Catarrhini › Hominidae › Humains › Privacy Barriers in Health Monitoring: Scoping Review.
questionsmedicales.fr › Organisations et économie des soins de santé › Contrôle social formel › Législation comme sujet › Vie privée › Privacy Barriers in Health Monitoring: Scoping Review.
questionsmedicales.fr › Diagnostic › Techniques et procédures diagnostiques › Monitorage physiologique › Privacy Barriers in Health Monitoring: Scoping Review.