Moving between positions: a qualitative study of mentoring relationships in chronic eating disorders.

ED (Eating Disorders)

Journal

Journal of eating disorders
ISSN: 2050-2974
Titre abrégé: J Eat Disord
Pays: England
ID NLM: 101610672

Informations de publication

Date de publication:
16 May 2024
Historique:
received: 23 07 2023
accepted: 17 04 2024
medline: 17 5 2024
pubmed: 17 5 2024
entrez: 16 5 2024
Statut: epublish

Résumé

Eating disorders (ED) are chronic and challenging-to-treat conditions, often persisting over extended periods. Some patients with EDs require prolonged intensive rehabilitation services, which may include weekly home visits by paraprofessional mentors serving as support persons, providing guidelines, emotional care, and assistance. This study aims to enhance our understanding of the nature of the relationship formed between mentors and patients with EDs. Fifteen in-depth qualitative interviews were conducted with patients and paraprofessional mentors. Interviews were analyzed using a descriptive phenomenological approach by two researchers to enhance reliability. Qualitative analysis highlighted that mentors play a crucial role in patients' rehabilitation. Mentors adapt two positions (investigative and embracing) to address the encountered difficulties, including conflicts, tension, and confusion associated with (in)equality and reciprocity in the mentoring relationship. Paraprofessional mentors can assist people with ED in their rehabilitation process. To support patients with EDs effectively, it is crucial to train and supervise the mentors in navigating between roles and dealing with boundaries, secrets, lies, and exposure to various aspects of the rehabilitation process. Additionally, we recommend further research using quantitative and empirical tools to complement the qualitative findings presented. Eating disorders (ED) can be challenging to treat, often requiring long-term intensive support. Paraprofessional mentors are support persons who make weekly home visits to help patients in the rehabilitation process.The study aims to understand the relationship between mentors and patients with ED. Researchers interviewed 15 patients and mentors. They discovered that mentors play a key role in helping patients get better by taking on two important roles. First, mentors act like investigators, trying to understand the challenges and problems that patients face. Second, mentors act as supporters, offering comfort and assistance during difficult times.The study emphasizes the importance of including mentorship in ED treatment and rehabilitation. It also suggests that training and supervision for paraprofessional mentors are crucial to help them handle their roles effectively, especially when dealing with boundaries and complex situations.

Autres résumés

Type: plain-language-summary (eng)
Eating disorders (ED) can be challenging to treat, often requiring long-term intensive support. Paraprofessional mentors are support persons who make weekly home visits to help patients in the rehabilitation process.The study aims to understand the relationship between mentors and patients with ED. Researchers interviewed 15 patients and mentors. They discovered that mentors play a key role in helping patients get better by taking on two important roles. First, mentors act like investigators, trying to understand the challenges and problems that patients face. Second, mentors act as supporters, offering comfort and assistance during difficult times.The study emphasizes the importance of including mentorship in ED treatment and rehabilitation. It also suggests that training and supervision for paraprofessional mentors are crucial to help them handle their roles effectively, especially when dealing with boundaries and complex situations.

Identifiants

pubmed: 38755674
doi: 10.1186/s40337-024-01007-x
pii: 10.1186/s40337-024-01007-x
doi:

Types de publication

Journal Article

Langues

eng

Pagination

59

Informations de copyright

© 2024. The Author(s).

Références

Barbour RS. (2001). Checklists for improving rigour in qualitative research: A case of the tail wagging the dog? In British Medical Journal (Vol. 322, Issue 7294, pp. 1115–1117). BMJ Publishing Group. https://doi.org/10.1136/bmj.322.7294.1115 .
Basile B. Self-disclosure in eating disorders. Eating and Weight disorders - studies on Anorexia. Bulimia Obes. 2004;9(3):217–23. https://doi.org/10.1007/BF03325070 .
doi: 10.1007/BF03325070
Beveridge J, Phillipou A, Jenkins Z, Newton R, Brennan L, Hanly F, Torrens-Witherow B, Warren N, Edwards K, Castle D. Peer mentoring for eating disorders: results from the evaluation of a pilot program. J Eat Disorders. 2019;7(1):1–10.
Cockell SJ, Zaitsoff SL, Geller J. Maintaining change following eating disorder treatment. Prof Psychology: Res Pract. 2004;35(5):527–34. https://doi.org/10.1037/0735-7028.35.5.527 .
doi: 10.1037/0735-7028.35.5.527
Englander M. (2016). The interview: Data collection in descriptive phenomenological human scientific research. In Journal of Phenomenological Psychology (Vol. 47, Issue 1, pp. 13–35). Brill Academic Publishers. https://doi.org/10.1163/156916212X632943 .
Finaret AE, Shor R. Perceptions of professionals about the nature of Rehabilitation relationships with persons with Mental Illness and the dilemmas and conflicts that characterize these relationships. Qualitative Social Work. 2006;5(2):151–66. https://doi.org/10.1177/1473325006064252 .
doi: 10.1177/1473325006064252
Finlay L. Debating Phenomenological Research methods. Phenomenology Pract. 2009;3(1):6–25. https://doi.org/10.29173/pandpr19818 .
doi: 10.29173/pandpr19818
Fogarty S, Ramjan L, Hay P. Eating behaviors a systematic review and meta-synthesis of the effects and experience of mentoring in eating disorders and disordered eating. Eat Behav. 2016;21:66–75. https://doi.org/10.1016/j.eatbeh.2015.12.004 .
doi: 10.1016/j.eatbeh.2015.12.004 pubmed: 26761787
Fokuo JK, Goldrick V, Rossetti J, Wahlstrom C, Kocurek C, Larson J, Corrigan P. Decreasing the stigma of mental illness through a student-nurse mentoring program: a qualitative study. Commun Ment Health J. 2017;53:257–65.
doi: 10.1007/s10597-016-0016-4
Galmiche M, Déchelotte P, Lambert G, Tavolacci MP. Prevalence of eating disorders over the 2000–2018 period: a systematic literature review. Am J Clin Nutr. 2019;109(5):1402–13.
doi: 10.1093/ajcn/nqy342 pubmed: 31051507
Haley MA. (2005). The prevelence of secrecy in eating disorders [unpublished dissertation] Wissconsin University.
Haley MA. (2005). The prevelence of secrecy in eating disorders [unpublished dissertation] Wissconsin University.
Hanly F, Torrens-Witherow B, Warren N, Castle D, Phillipou A, Beveridge J, Jenkins Z, Newton R, Brennan L. Peer mentoring for individuals with an eating disorder: a qualitative evaluation of a pilot program. J Eat Disorders. 2020;8(1):1–13.
Hennink M, Kaiser BN. Sample sizes for saturation in qualitative research: a systematic review of empirical tests. Soc Sci Med. 2022;292:114523.
doi: 10.1016/j.socscimed.2021.114523 pubmed: 34785096
Kotilahti E, West M, Isomaa R, Karhunen L, Rocks T, Ruusunen A. Treatment interventions for severe and enduring eating disorders: systematic review. Int J Eat Disord. 2020;53(8):1280–302.
doi: 10.1002/eat.23322 pubmed: 32488936
Latzer Y. Stopping the revolving door : Zeida Laderech, a unique rehabilitation house for young adults with severe and enduring eating disorders. J Clin Psychol. 2019;75(8):1469–81. https://doi.org/10.1002/jclp.22791 .
doi: 10.1002/jclp.22791 pubmed: 30995354
Lippi deborahe. (2000). The impact of a mentoring relationship upon women in the process of recovering from eating disorders [unpublished dissertation] Temple university.
Lopez KA, Willis DG. Descriptive versus interpretive phenomenology: their contributions to nursing knowledge. Qualitative Health Res (Vol. 2004;14:726–35. https://doi.org/10.1177/1049732304263638 . SAGE Publications.
doi: 10.1177/1049732304263638
Monteleone AM, Fernandez-Aranda F, Voderholzer U. Evidence and perspectives in eating disorders: a paradigm for a multidisciplinary approach. World Psychiatry. 2019;18(3):369.
doi: 10.1002/wps.20687 pubmed: 31496108 pmcid: 6732696
Petrucelli J. Secrets of eating and eating of secrets: daring to be known. Psychoanalytic perspectives on knowing and being known. Routledge; 2019. pp. 51–8.
Quick VM, Byrd-Bredbenner C, Neumark-Sztainer D. Chronic illness and disordered eating: a discussion of the literature. Adv Nutr. 2013;4(3):277–86.
doi: 10.3945/an.112.003608 pubmed: 23674793 pmcid: 3650496
Ramjan LM, Hay P, Fogarty S. Benefits of a mentoring support program for individuals with an eating disorder: a proof of concept pilot program. BMC Res Notes. 2017;10(1):1–6.
doi: 10.1186/s13104-017-3026-6
Ramjan LM, Fogarty S, Nicholls D, Hay P. Instilling hope for a brighter future: a mixed-method mentoring support programme for individuals with and recovered from anorexia nervosa. J Clin Nurs. 2018;27(5–6):e845–57. https://doi.org/10.1111/jocn.14200 .
doi: 10.1111/jocn.14200 pubmed: 29193481
Ranzenhofer LM, Wilhelmy M, Hochschild A, Sanzone K, Walsh BT, Attia E. Peer mentorship as an adjunct intervention for the treatment of eating disorders: a pilot randomized trial. Int J Eat Disord. 2020;53(5):767–79.
doi: 10.1002/eat.23258
Santomauro DF, Melen S, Mitchison D, Vos T, Whiteford H, Ferrari AJ. The hidden burden of eating disorders: an extension of estimates from the global burden of Disease Study 2019. Lancet Psychiatry. 2021;8(4):320–8.
doi: 10.1016/S2215-0366(21)00040-7 pubmed: 33675688 pmcid: 7973414
Todres L. (2005). Clarifying the life-world: descriptive phenomenology.
Tufford L, Newman P. Bracketing in qualitative research. Qualitative Social Work: Res Pract. 2012;11(1):80–96. https://doi.org/10.1177/1473325010368316 .
doi: 10.1177/1473325010368316
van Hoeken D, Hoek HW. Review of the burden of eating disorders: mortality, disability, costs, quality of life, and family burden. Curr Opin Psychiatry. 2020;33(6):521.
doi: 10.1097/YCO.0000000000000641 pubmed: 32796186 pmcid: 7575017
Vandereycken W, Van Humbeeck I. Denial and concealment of eating disorders: a retrospective survey. Eur Eat Disorders Rev. 2008;16:109–14. https://doi.org/10.1002/erv .
doi: 10.1002/erv
Vitousek K, Watson S, Wilson GT. Enhancing motivation for change in treatment-resistant eating disorders. Clin Psychol Rev. 1998;18(4):391–420.
doi: 10.1016/S0272-7358(98)00012-9 pubmed: 9638355
Wright K, Hacking S. An angel on my shoulder: a study of relationships between women with anorexia and healthcare professionals. J Psychiatr Ment Health Nurs. 2012;19(2):107–15. https://doi.org/10.1111/j.1365-2850.2011.01760.x .
doi: 10.1111/j.1365-2850.2011.01760.x pubmed: 22074235

Auteurs

Roni Elran-Barak (R)

Faculty of Social Welfare and Health Sciences, University of Haifa, 199 Aba Khoushy Ave, Mount Carmel, Haifa, 3498838, Israel. relranbar@univ.haifa.ac.il.

Shiran Elmalah-Alon (S)

Faculty of Social Welfare and Health Sciences, University of Haifa, 199 Aba Khoushy Ave, Mount Carmel, Haifa, 3498838, Israel.

Classifications MeSH