The women's health needs study among women from countries with high prevalence of female genital mutilation living in the United States: Design, methods, and participant characteristics.


Journal

PloS one
ISSN: 1932-6203
Titre abrégé: PLoS One
Pays: United States
ID NLM: 101285081

Informations de publication

Date de publication:
2024
Historique:
received: 28 07 2023
accepted: 12 04 2024
medline: 31 5 2024
pubmed: 31 5 2024
entrez: 31 5 2024
Statut: epublish

Résumé

The Women's Health Needs Study (WHNS) collected information on the health characteristics, needs, and experiences, including female genital mutilation (FGM) experiences, attitudes, and beliefs, of women aged 18 to 49 years who were born, or whose mothers were born, in a country where FGM is prevalent living in the US. The purpose of this paper is to describe the WHNS design, methods, strengths and limitations, as well as select demographic and health-related characteristics of participants. We conducted a cross-sectional survey from November 2020 -June 2021 in four US metropolitan areas, using a hybrid venue-based sampling (VBS) and respondent-driven sampling (RDS) approach to identify women for recruitment. Of 1,132 participants, 395 were recruited via VBS and 737 RDS. Most were born, or their mothers were born, in either a West African country (Burkina Faso, Guinea, Mali, Mauritania, Sierra Leone, The Gambia) (39.0%) or Ethiopia (30.7%). More than a third were aged 30-39 years (37.5%) with a majority who immigrated at ages ≥13 years (86.6%) and had lived in the United States for ≥5 years (68.9%). Medicaid was the top health insurer (52.5%), followed by private health insurance (30.5%); 17% of participants had no insurance. Nearly half of women reported 1-2 healthcare visits within the past 12 months (47.7%). One in seven did not get needed health care due to cost (14.8%). Over half have ever used contraception (52.1%) to delay or avoid pregnancy and 76.9% had their last pelvic and/or Papanicolaou (pap) exam within the past 3 years. More than half experienced FGM (55.0%). Nearly all women believed that FGM should be stopped (92.0%). The VBS/RDS approach enabled recruitment of a diverse study population. WHNS advances research related to the health characteristics, needs, and experiences of women living in the US from countries where FGM is prevalent.

Sections du résumé

BACKGROUND BACKGROUND
The Women's Health Needs Study (WHNS) collected information on the health characteristics, needs, and experiences, including female genital mutilation (FGM) experiences, attitudes, and beliefs, of women aged 18 to 49 years who were born, or whose mothers were born, in a country where FGM is prevalent living in the US. The purpose of this paper is to describe the WHNS design, methods, strengths and limitations, as well as select demographic and health-related characteristics of participants.
METHODS METHODS
We conducted a cross-sectional survey from November 2020 -June 2021 in four US metropolitan areas, using a hybrid venue-based sampling (VBS) and respondent-driven sampling (RDS) approach to identify women for recruitment.
RESULTS RESULTS
Of 1,132 participants, 395 were recruited via VBS and 737 RDS. Most were born, or their mothers were born, in either a West African country (Burkina Faso, Guinea, Mali, Mauritania, Sierra Leone, The Gambia) (39.0%) or Ethiopia (30.7%). More than a third were aged 30-39 years (37.5%) with a majority who immigrated at ages ≥13 years (86.6%) and had lived in the United States for ≥5 years (68.9%). Medicaid was the top health insurer (52.5%), followed by private health insurance (30.5%); 17% of participants had no insurance. Nearly half of women reported 1-2 healthcare visits within the past 12 months (47.7%). One in seven did not get needed health care due to cost (14.8%). Over half have ever used contraception (52.1%) to delay or avoid pregnancy and 76.9% had their last pelvic and/or Papanicolaou (pap) exam within the past 3 years. More than half experienced FGM (55.0%). Nearly all women believed that FGM should be stopped (92.0%).
CONCLUSION CONCLUSIONS
The VBS/RDS approach enabled recruitment of a diverse study population. WHNS advances research related to the health characteristics, needs, and experiences of women living in the US from countries where FGM is prevalent.

Identifiants

pubmed: 38820266
doi: 10.1371/journal.pone.0302820
pii: PONE-D-23-23872
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Pagination

e0302820

Informations de copyright

Copyright: This is an open access article, free of all copyright, and may be freely reproduced, distributed, transmitted, modified, built upon, or otherwise used by anyone for any lawful purpose. The work is made available under the Creative Commons CC0 public domain dedication.

Déclaration de conflit d'intérêts

The authors have declared that no competing interests exist.

Auteurs

Ghenet Besera (G)

Epidemic Intelligence Service, Centers for Disease Control and Prevention, Atlanta, Georgia, United States of America.
Division of Violence Prevention, Centers for Disease Control and Prevention, Atlanta, Georgia, United States of America.

Margaret Christine Snead (MC)

Division of Reproductive Health, Centers for Disease Control and Prevention, Atlanta, Georgia, United States of America.

Mary Goodwin (M)

Independent Consultant, Atlanta, Georgia, United States of America.

Ashley Smoots (A)

Division of Birth Defects and Infant Disorders, Centers for Disease Control and Prevention, Atlanta, Georgia, United States of America.

Connie L Bish (CL)

Independent Consultant, Atlanta, Georgia, United States of America.

Alicia Ruiz (A)

Division of Reproductive Health, Centers for Disease Control and Prevention, Atlanta, Georgia, United States of America.

Ayeesha Sayyad (A)

Division of Reproductive Health, Centers for Disease Control and Prevention, Atlanta, Georgia, United States of America.

Sabrina Avripas (S)

NORC at the University of Chicago, Chicago, Illinois, United States of America.

Petry Ubri (P)

NORC at the University of Chicago, Chicago, Illinois, United States of America.

Roy Ahn (R)

NORC at the University of Chicago, Chicago, Illinois, United States of America.

Vicki Pineau (V)

NORC at the University of Chicago, Chicago, Illinois, United States of America.

Nicole Warren (N)

Johns Hopkins University School of Nursing, Washington, DC, United States of America.

Doris Mukangu (D)

Amani Women Center, Atlanta, Georgia, United States of America.

Crista E Johnson-Agbakwu (CE)

Collaborative in Health Equity, Office of Health Equity, The University of Massachusetts, Worcester, Massachusetts, United States of America.
Obstetrics & Gynecology, UMass Memorial Health, Worcester, Massachusetts, United States of America.
Division of Preventive and Behavioral Medicine, Population and Quantitative Health Sciences, University of Massachusetts T.H. Chan Medical School, Worcester, Massachusetts, United States of America.

Howard Goldberg (H)

Independent Consultant, Atlanta, Georgia, United States of America.

Ekwutosi Okoroh (E)

Division of Reproductive Health, Centers for Disease Control and Prevention, Atlanta, Georgia, United States of America.

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