Data analysis plan of the OECD PaRIS survey: leveraging a multi-level approach to analyse data collected from people living with chronic conditions and their primary care practices in 20 countries.


Journal

BMC research notes
ISSN: 1756-0500
Titre abrégé: BMC Res Notes
Pays: England
ID NLM: 101462768

Informations de publication

Date de publication:
06 Jun 2024
Historique:
received: 29 02 2024
accepted: 30 05 2024
medline: 7 6 2024
pubmed: 7 6 2024
entrez: 6 6 2024
Statut: epublish

Résumé

In view of the increasing number of people with (multiple) chronic conditions, the Organisation for Economic Co-operation and Development (OECD) initiated the International Survey of People Living with Chronic Conditions (PaRIS survey), which aims to provide insight in patient-reported outcomes and experiences of chronic care provided by primary care practices to support policy development. The objective of this research note is to describe the structure of the data, collected in the PaRIS survey and how the data will be analysed in a multilevel approach for cross-country comparison. The data structure of the PaRIS survey represents three levels: countries/health systems, primary care practices and patients. Multilevel analysis is used because of its accuracy in estimating country-level outcomes, its flexibility in modelling relationships, and its opportunities in connecting to relevant policy questions. Country-level outcomes will be estimated to facilitate cross-country comparison and (future) within-country comparison over time. Characteristics of patients that potentially explain variation in patient-reported outcomes and experiences can be linked to primary care practice and country/health system characteristics. This makes it possible to address policy-relevant questions relating, e.g., to the impact of chronic care management on patients with a specific chronic condition.

Identifiants

pubmed: 38845064
doi: 10.1186/s13104-024-06815-7
pii: 10.1186/s13104-024-06815-7
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Pagination

157

Subventions

Organisme : OECD
ID : No ID
Organisme : OECD
ID : No ID
Organisme : OECD
ID : No ID
Organisme : OECD
ID : No ID
Organisme : OECD
ID : No ID
Organisme : OECD
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Organisme : OECD
ID : No ID
Organisme : 20 participating countries
ID : No ID
Organisme : 20 participating countries
ID : No ID
Organisme : 20 participating countries
ID : No ID
Organisme : 20 participating countries
ID : No ID
Organisme : 20 participating countries
ID : No ID
Organisme : 20 participating countries
ID : No ID
Organisme : 20 participating countries
ID : No ID
Organisme : european commission
ID : No ID
Organisme : european commission
ID : No ID
Organisme : european commission
ID : No ID
Organisme : european commission
ID : No ID
Organisme : european commission
ID : No ID
Organisme : european commission
ID : No ID
Organisme : european commission
ID : No ID

Informations de copyright

© 2024. The Author(s).

Références

OECD. Patient-reported indicators survey (PaRIS). Measuring what matters. Public version of the revised proposal submitted to the Health Committee. Paris: Organisation for Economic Co-operation and Development; 2018.
De Boer D, Van den Berg M, Ballester M, Bloemeke J, Boerma WGW, de Bienassis K, et al. Assessing the outcomes and experiences of care from the perspective of people living with chronic conditions, to support countries in developing people-centred policies and practices: study protocol of the International Survey of people living with chronic conditions (PaRIS survey). BMJ Open. 2022;12:e061424.
doi: 10.1136/bmjopen-2022-061424 pubmed: 36123114 pmcid: 9486339
Leyland AH, Groenewegen PP. Multilevel analysis for public health and health services research: health in context. New York etc.: Springer International Publishing; 2020.
Bloemeke J, Groene O, Ballester de Santiago M, Guanais F, Groenewegen PP, Kendir C et al. Measuring primary care practice characteristics for health system performance assessment: cross-cultural development and field testing of the primary care practice questionnaire for the PaRIS survey. Submitted. 2024.
Porter I, Rijken M, Groene O, Suñol R, Williams R, van den Berg M, et al. The International Survey of people living with chronic conditions (PaRIS survey): development of the patient questionnaire. Qual Life Res. 2021;30:542.
Rijken M, Ballaster M, Bloemeke J, de Boer D, Boerma WGW, de Bienassis K et al. Updates on the study protocol for the OECD international PaRIS survey and on its implementation. BMJ Open. 2023;13.
Groenewegen PP, Spreeuwenberg P, Leyland AH, De Boer D, Boerma WGW. Case-mix adjustments for patient reported experience and outcome measures in primary care: an empirical approach to identify patient characteristics as case-mix adjusters based on a secondary analysis of an international survey among patients and their general practitioners in 34 countries. J Patient Rep Outcomes. 2023;7:127.
doi: 10.1186/s41687-023-00667-8 pubmed: 38048040 pmcid: 10695892
Schielzeth H. Simple means to improve the interpretability of regression coefficients. Methods Ecol Evol. 2010;1:103–13.
doi: 10.1111/j.2041-210X.2010.00012.x
Bryan ML, Jenkins SP. Multilevel modelling of Country effects: a cautionary tale. Eur Sociol Rev. 2016;32(1):3–22.
doi: 10.1093/esr/jcv059
Goerres A, Siewert MB, Wagemann C. Internationally comparative research designs in the social sciences: fundamental issues, case selection logics, and research limitations. Kölner Zeitschrift für Soziologie Und Sozialpsychologie.71:75–97.
Raudenbush SW, Sampson RJ. Ecometrics: toward a science of assessing ecological settings, with application to the systematic social observation of neighborhoods. Sociol Methodol. 1999;29:1–41.
doi: 10.1111/0081-1750.00059
Raudenbush SW. The quantitative assessment of neighborhood social environments. In: Kawachi I, Berkman LF, editors. Neighborhoods and health. Oxford: Oxford University Press; 2003.

Auteurs

Peter Groenewegen (P)

Nivel, Netherlands Institute for Health Services Research, PO Box 1568, Utrecht, 3500BN, Netherlands. p.groenewegen@nivel.nl.

Peter Spreeuwenberg (P)

Nivel, Netherlands Institute for Health Services Research, PO Box 1568, Utrecht, 3500BN, Netherlands.

Rob Timans (R)

Nivel, Netherlands Institute for Health Services Research, PO Box 1568, Utrecht, 3500BN, Netherlands.

Oliver Groene (O)

Vice Chair of the Board, OptiMedis AG, Hamburg, Germany.
Department of Management and Entrepreneurship, Faculty of Business, Economics and Society, University of Witten/Herdecke, Witten, Germany.

Rosa Suñol (R)

Avedis Donabedian Research Institute, Barcelona, Spain.
Red de investigación en servicios de salud en enfermedades crónicas (REDISSEC), Barcelona, Spain.

Jose Maria Valderas (JM)

Health Services & Policy Research Group, University of Exeter, Exeter, UK.
Centre for Research in Health Systems Performance, Yon Loo Lin School of Medicine, Department of Family Medicine, National University of Singapore, National University Health System, Singapore, Singapore.
Department of Family Medicine, National University Health System, Singapore, Singapore.

Mieke Rijken (M)

Nivel, Netherlands Institute for Health Services Research, PO Box 1568, Utrecht, 3500BN, Netherlands.
Department of Health and Social Management, University of Eastern Finland, Kuopio, Finland.

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