Tourette Syndrome: A Catalyst for Operationalizing Neurodiversity.


Journal

Neurology
ISSN: 1526-632X
Titre abrégé: Neurology
Pays: United States
ID NLM: 0401060

Informations de publication

Date de publication:
23 Jul 2024
Historique:
medline: 13 6 2024
pubmed: 13 6 2024
entrez: 13 6 2024
Statut: ppublish

Résumé

Our goal, taking Tourette syndrome as a case example, is to introduce neurologists to, and motivate discussion on, the neurodiversity paradigm. This philosophical construct considers some neurologic conditions in diversity, instead of simply disease. Moving from philosophical idea to empirical construct draws from patient and family perspectives on (1) quality of life and discrimination, (2) disability pride, and (3) unique profiles of different patient cohorts. Listening to patient voices, attending to family, advocacy group, and societal views on neurologic disorders can strengthen precision neurology practice. Dialogs on neurodiversity, including antitherapy sentiments, offer to enhance neurologic care, patient agency, and autonomy; encourage respectful communications with patients who challenge the idea their condition is pathologic; and to set the stage for future empirical investigations and practice guidelines.

Identifiants

pubmed: 38870461
doi: 10.1212/WNL.0000000000209572
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Pagination

e209572

Auteurs

Abraham Graber (A)

From the Department of Biomedical Education and Anatomy (A.G.); Nisonger Center Affiliate Faculty (A.G.), The Ohio State University; and Department of Neurological Sciences (M.R.), University of Nebraska Medical Center.

Matthew Rizzo (M)

From the Department of Biomedical Education and Anatomy (A.G.); Nisonger Center Affiliate Faculty (A.G.), The Ohio State University; and Department of Neurological Sciences (M.R.), University of Nebraska Medical Center.

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