Tourette Syndrome: A Catalyst for Operationalizing Neurodiversity.
Journal
Neurology
ISSN: 1526-632X
Titre abrégé: Neurology
Pays: United States
ID NLM: 0401060
Informations de publication
Date de publication:
23 Jul 2024
23 Jul 2024
Historique:
medline:
13
6
2024
pubmed:
13
6
2024
entrez:
13
6
2024
Statut:
ppublish
Résumé
Our goal, taking Tourette syndrome as a case example, is to introduce neurologists to, and motivate discussion on, the neurodiversity paradigm. This philosophical construct considers some neurologic conditions in diversity, instead of simply disease. Moving from philosophical idea to empirical construct draws from patient and family perspectives on (1) quality of life and discrimination, (2) disability pride, and (3) unique profiles of different patient cohorts. Listening to patient voices, attending to family, advocacy group, and societal views on neurologic disorders can strengthen precision neurology practice. Dialogs on neurodiversity, including antitherapy sentiments, offer to enhance neurologic care, patient agency, and autonomy; encourage respectful communications with patients who challenge the idea their condition is pathologic; and to set the stage for future empirical investigations and practice guidelines.
Identifiants
pubmed: 38870461
doi: 10.1212/WNL.0000000000209572
doi:
Types de publication
Journal Article
Langues
eng
Sous-ensembles de citation
IM