The cost of providing care by family and friends (informal care) in the last year of life: A population observational study.

Little is known about replacement costs of care provided by informal carers during the last year of life for people dying of cancer and non-cancer diseases. To estimate informal caregiving costs and explore the relationship with carer and decedent characteristics. National observational study of bereaved carers. Questions included informal end-of-life caregiving into the 2017 Health Survey for England including estimated recalled frequency, duration and intensity of care provision. We estimated replacement costs for a decedent's last year of life valuing time at the price of a substitutable activity. Spearman rank correlations and multivariable linear regression were used to explore relationships with last year of life costs. Adult national survey respondents - England. A total of 7997 adults were interviewed from 5767/9612 (60%) of invited households. Estimated replacement costs of We provide a first adult general population estimate for replacement informal care costs in the last year of life of £41,000 per carer per decedent and highlight characteristics associated with greater costs. This presents a major challenge for future universal care coverage as the pool of people providing informal care diminish with an ageing population.

Déclaration de conflit d'intérêts

Declaration of conflicting interestsThe author(s) declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article.