PatientsLikeMe and Online Patient Support Communities in Dermatology.

Humans Dermatology / organization & administration Internet Self-Help Groups / organization & administration Social Support
PLM PatientsLikeMe atopic dermatitis community engagement demographics discussion boards forums internet lived experience misinformation online support communities prevalence representation social media

Journal

JMIR dermatology
ISSN: 2562-0959
Titre abrégé: JMIR Dermatol
Pays: Canada
ID NLM: 101770607

Informations de publication

Date de publication:
26 Jun 2024
Historique:
received: 30 06 2023
accepted: 09 06 2024
revised: 03 05 2024
medline: 26 6 2024
pubmed: 26 6 2024
entrez: 26 6 2024
Statut: epublish

Résumé

Online patient-oriented platforms such as PatientsLikeMe (PLM) offer a venue for individuals with various diagnoses to share experiences and build community, though they may not be representative of the larger patient population. This potentially limits generalizability and raises concerns about the spread of misinformation, emphasizing the need for informed use and health care provider engagement.

Identifiants

DOI: 10.2196/50453 PMID: 38924778
pubmed: 38924778
pii: v7i1e50453
doi: 10.2196/50453
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Pagination

e50453

Informations de copyright

©Mindy D Szeto, Michelle Hook Sobotka, Emily Woolhiser, Pritika Parmar, Jieying Wu, Lina Alhanshali, Robert P Dellavalle. Originally published in JMIR Dermatology (http://derma.jmir.org), 26.06.2024.

Auteurs

Mindy D Szeto (MD)

Department of Dermatology, University of Minnesota Medical School, Minneapolis, MN, United States.
ORCID: 0000-0003-3642-3753

Michelle Hook Sobotka (M)

Arizona College of Osteopathic Medicine, Midwestern University, Glendale, AZ, United States.
ORCID: 0009-0008-8622-3665

Emily Woolhiser (E)

College of Osteopathic Medicine, Kansas City University, Kansas City, MO, United States.
ORCID: 0009-0000-2631-5551

Pritika Parmar (P)

Department of Dermatology, University of Colorado Anschutz Medical Campus, Aurora, CO, United States.
ORCID: 0000-0003-2549-699X

Jieying Wu (J)

School of Medicine, Rocky Vista University College of Osteopathic Medicine, Parker, CO, United States.
ORCID: 0000-0002-6277-3960

Lina Alhanshali (L)

Department of Dermatology, SUNY Downstate College of Medicine Brooklyn, New York, NY, United States.
ORCID: 0000-0002-5107-9543

Robert P Dellavalle (RP)

Department of Dermatology, University of Minnesota Medical School, Minneapolis, MN, United States.
Dermatology National Executive Program Director, Dermatology Service, Minneapolis VA Medical Center, Minneapolis, MN, United States.
ORCID: 0000-0001-8132-088X

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Classifications MeSH

questionsmedicales.fr › Eucaryotes › Animaux › Chordés › Vertébrés › Mammifères › Eutheria › Primates › Haplorhini › Catarrhini › Hominidae › Humains › PatientsLikeMe and Online Patient Support...
questionsmedicales.fr › Professions de santé › Médecine › Dermatologie › PatientsLikeMe and Online Patient Support...
questionsmedicales.fr › Sciences de l'information › Méthodologies informatiques › Systèmes informatiques › Réseaux de communication entre ordinateurs › Internet › PatientsLikeMe and Online Patient Support...
questionsmedicales.fr › Organisations et économie des soins de santé › Organismes › Groupes d'entraide › PatientsLikeMe and Online Patient Support...
questionsmedicales.fr › Sciences sociales › Sociologie › Facteurs sociologiques › Environnement social › Soutien social › PatientsLikeMe and Online Patient Support...