Client and family experiences with telehealth-delivered early psychosis services.
COVID‐19 pandemic
early intervention for psychosis
family
mental health services
qualitative research
telehealth
youth
Journal
Early intervention in psychiatry
ISSN: 1751-7893
Titre abrégé: Early Interv Psychiatry
Pays: Australia
ID NLM: 101320027
Informations de publication
Date de publication:
30 Jun 2024
30 Jun 2024
Historique:
revised:
02
03
2024
received:
31
08
2023
accepted:
08
05
2024
medline:
1
7
2024
pubmed:
1
7
2024
entrez:
30
6
2024
Statut:
aheadofprint
Résumé
The COVID-19 pandemic prompted a significant shift to delivering early psychosis services using telehealth. Little is known about the experience of using telehealth in early psychosis services. This quality improvement qualitative project investigated the experiences of program participants and family members with telehealth services in OnTrackNY, an early intervention program for psychosis in New York State during the COVID-19 pandemic. The project team conducted individual interviews and focus groups. Data analyses used a matrix approach. Nineteen OnTrackNY program participants and nine family members participated in five focus groups and nine individual interviews. Data were organized into five themes (a) accessibility: most individuals had a device and internet access and challenges were related to connectivity, such as image freezing and sound breaking; (b) convenience/flexibility: benefits included the reduced commute and costs; (c) levels of comfort/privacy with telehealth: program participants felt less judged and less anxiety leading up to in-person appointments while also expressing privacy concerns; (d) sense of connectedness: in-person social connections were deemed important and not replaceable by telehealth; and (e) suggestions: program participants expressed a preference for in-person group activities and suggested hybrid options, highlighting the importance of in-person visits to establish rapport at the beginning of treatment before transitioning to telehealth. Telehealth services were generally well accepted. Suggestions for future service delivery include offering a combination of telehealth and in-person services based on program participants' preferences and prioritizing in-person services during the early phase of treatment.
Types de publication
Journal Article
Langues
eng
Sous-ensembles de citation
IM
Subventions
Organisme : NIMH NIH HHS
ID : R01MH120597
Pays : United States
Organisme : NIMH NIH HHS
ID : R01MH120597-02S1
Pays : United States
Informations de copyright
© 2024 The Author(s). Early Intervention in Psychiatry published by John Wiley & Sons Australia, Ltd.
Références
Abraham, A., Jithesh, A., Doraiswamy, S., Al‐Khawaga, N., Mamtani, R., & Cheema, S. (2021). Telemental health use in the COVID‐19 pandemic: A scoping review and evidence gap mapping. Frontiers in Psychiatry, 12, 748069. https://doi.org/10.3389/fpsyt.2021.748069
Appleton, R., Williams, J., Vera San Juan, N., Needle, J. J., Schlief, M., Jordan, H., Sheridan Rains, L., Goulding, L., Badhan, M., Roxburgh, E., Barnett, P., Spyridonidis, S., Tomaskova, M., Mo, J., Harju‐Seppänen, J., Haime, Z., Casetta, C., Papamichail, A., Lloyd‐Evans, B., … Johnson, S. (2021). Implementation, adoption, and perceptions of Telemental health during the COVID‐19 pandemic: Systematic review. Journal of medical Internet research, 23(12), e31746. https://doi.org/10.2196/31746
Bello, I., Lee, R., Malinovsky, I., Watkins, L., Nossel, I., Smith, T., Ngo, H., Birnbaum, M., Marino, L., Sederer, L. I., Radigan, M., Gu, G., Essock, S., & Dixon, L. B. (2017). OnTrackNY: The development of a coordinated specialty care program for individuals experiencing early psychosis. Psychiatric Services, 68(4), 318–320.
Birt, L., Scott, S., Cavers, D., Campbell, C., & Walter, F. (2016). Member checking: A tool to enhance trustworthiness or merely a nod to validation? Qualitative Health Research, 26(13), 1802–1811.
Camacho, E., & Torous, J. (2021). Interest and readiness for digital mental health in coordinate specialty care for early course psychosis: A survey study of 42 programs in 30 states. Early Intervention in Psychiatry, 15(5), 1243–1255.
Camacho‐Gomez, M., & Castellvi, P. (2020). Effectiveness of family intervention for preventing relapse in first‐episode psychosis until 24 months of follow‐up: A systematic review with meta‐analysis of randomized controlled trials. Schizophrenia Bulletin, 46(1), 98–109.
Creswell, J. W., & Creswell, J. D. (2017). Research design: Qualitative, quantitative, and mixed methods approaches. Sage publications.
Dong, F. H., Jumper, M. B. E., Becker‐Haimes, E. M., Vatza, C., Miao, L., Conroy, C., Bennett, M., Sarpal, D. K., Abegunde, C., Kohler, C. G., & Calkins, M. E. (2023). Tele‐mental health transitions for Pennsylvania coordinated specialty care programs for early psychosis during the COVID‐19 pandemic. Psychiatric Quarterly, 94(2), 89–102. https://doi.org/10.1007/s11126-023-10015-0
Doran, J. M., & Lawson, J. L. (2021). The impact of COVID‐19 on provider perceptions of telemental health. Psychiatric Quarterly, 92(3), 1241–1258. https://doi.org/10.1007/s11126-021-09899-7
di Carlo, F., Sociali, A., Picutti, E., Pettorruso, M., Vellante, F., Verrastro, V., Martinotti, G., & di Giannantonio, M. (2021). Telepsychiatry and other cutting‐edge technologies in COVID‐19 pandemic: Bridging the distance in mental health assistance. International Journal of Clinical Practice, 75(1), e13716. https://doi.org/10.1111/ijcp.13716
Hailey, D., Roine, R., & Ohinmaa, A. (2008). The effectiveness of telemental health applications: A review. Canadian Journal of Psychiatry‐Revue Canadienne De Psychiatrie, 53(11), 769–778. https://doi.org/10.1177/070674370805301109
Heinssen, R., Goldstein, A., & Azrin, S. (2014). Evidence‐based treatments for first episode psychosis: Components of coordinated specialty care. National Institute of Mental Health.
Hoffman, L., Wisniewski, H., Hays, R., Henson, P., Vaidyam, A., Hendel, V., Keshavan, M., & Torous, J. (2020). Digital opportunities for outcomes in recovery services (DOORS): A pragmatic hands‐on group approach toward increasing digital health and smartphone competencies, autonomy, relatedness, and alliance for those with serious mental illness. Journal of Psychiatric Practice, 26(2), 80–88.
Hubley, S., Lynch, S. B., Schneck, C., Thomas, M., & Shore, J. (2016). Review of key telepsychiatry outcomes. World Journal of Psychiatry, 6(2), 269–282.
Humensky, J. L., Bello, I., Malinovsky, I., Nossel, I., Patel, S., Jones, G., Cabassa, L. J., Radigan, M., Sobeih, T., Tobey, C., Basaraba, C., Scodes, J., Smith, T., Wall, M., Labouliere, C., Stanley, B., & Dixon, L. B. (2020). OnTrackNY's learning healthcare system. Journal of Clinical and Translational Science, 4(4), 301–306. PII S2059866120000357. https://doi.org/10.1017/cts.2020.35
Jones, N., Basaraba, C., Piscitelli, S., Jewell, T., Nossel, I., Bello, I., … Dixon, L. B. (2021). Clients' preferences for family involvement and subsequent family contact patterns within OnTrackNY early psychosis services. Psychiatric Services, 72(4), 399–407. https://doi.org/10.1176/appi.ps.202000241
Lal, S., Abdel‐Baki, A., & Lee, H. (2022). Telepsychiatry services during COVID‐19: A cross‐sectional survey on the experiences and perspectives of young adults with first‐episode psychosis. Early Intervention in Psychiatry., 17, 368–377. https://doi.org/10.1111/eip.13332
Lipschitz, J. M., Connolly, S. L., Van Boxtel, R., Potter, J. R., Nixon, N., & Bidargaddi, N. (2022). Provider perspectives on telemental health implementation: Lessons learned during the COVID‐19 pandemic and paths forward [article; early access]. Psychological Services. https://doi.org/10.1037/ser0000625
McFarlane, W. R., Dixon, L., Lukens, E., & Lucksted, A. (2003). Family psychoeducation and schizophrenia: A review of the literature. Journal of Marital and Family Therapy, 29(2), 223–245.
Nelson, E. B., Franco, O. H., Patton, B. A., Schmidt, L. R., Lawley, H. S., Calkins, M. E., & Kohler, C. G. (2022). Telehealth of coordinated specialty Care in Early Psychosis during COVID‐19. The Journal of Clinical Psychiatry, 84(1), 21m14259.
Nicholas, J., Bell, I. H., Thompson, A., Valentine, L., Simsir, P., Sheppard, H., & Adams, S. (2021). Implementation lessons from the transition to telehealth during COVID‐19: A survey of clinicians and young people from youth mental health services. Psychiatry Research, 299, 113848.
Padgett, D. K. (2011). Qualitative and mixed methods in public health. Sage publications.
Patel, S. R., Stefancic, A., Bello, I., Pagdon, S., Montague, E., Riefer, M., Lyn, J., Archard, J., Rahim, R., Cabassa, L. J., Mathai, C. M., & Dixon, L. B. (2024). “Everything changed, would you like me to elaborate?”: A qualitative examination of the impact of the COVID‐19 pandemic on community participation among young adults with early psychosis and their families. Community Mental Health Journal., 60, 27–36. https://doi.org/10.1007/s10597-022-01049-y
Randall, L. A., Raisin, C., Waters, F., Williams, C., Shymko, G., & Davis, D. (2022). Implementing telepsychiatry in an early psychosis service during COVID‐19: Experiences of young people and clinicians and changes in service utilization. Early Intervention in Psychiatry, 17(5), 470–477. https://doi.org/10.1111/eip.13342.
Santesteban‐Echarri, O., Piskulic, D., Nyman, R. K., & Addington, J. (2020). Telehealth interventions for schizophrenia‐spectrum disorders and clinical high‐risk for psychosis individuals: A scoping review. Journal of Telemedicine and Telecare, 26(1–2), 14–20.
Siegel, A., Zuo, Y. S., Moghaddamcharkari, N., McLntyre, R. S., & Rosenblat, J. D. (2021). Barriers, benefits and interventions for improving the delivery of telemental health services during the coronavirus disease 2019 pandemic: A systematic review. Current Opinion in Psychiatry, 34(4), 434–443. https://doi.org/10.1097/yco.0000000000000714
Wood, H. J., Gannon, J. M., Chengappa, K. N. R., & Sarpal, D. K. (2021). Group teletherapy for first‐episode psychosis: Piloting its integration with coordinated specialty care during the COVID‐19 pandemic. Psychology and Psychotherapy‐Theory Research and Practice, 94(2), 382–389. https://doi.org/10.1111/papt.12310
Zangani, C., Ostinelli, E. G., Smith, K. A., Hong, J. S. W., Macdonald, O., Reen, G., Reid, K., Vincent, C., Syed Sheriff, R., Harrison, P. J., Hawton, K., Pitman, A., Bale, R., Fazel, S., Geddes, J. R., & Cipriani, A. (2022). Impact of the COVID‐19 pandemic on the global delivery of mental health services and Telemental health: Systematic review. Jmir Mental Health, 9(8), e38600. https://doi.org/10.2196/38600