Family expectations and demand for home-based videogaming therapy in children with cerebral palsy in Costa Rica: a mixed methods study.

Cerebral palsy exergaming family-centered care healthcare disparities interviews motivation

Journal

Disability and rehabilitation
ISSN: 1464-5165
Titre abrégé: Disabil Rehabil
Pays: England
ID NLM: 9207179

Informations de publication

Date de publication:
30 Jun 2024
Historique:
medline: 1 7 2024
pubmed: 1 7 2024
entrez: 30 6 2024
Statut: aheadofprint

Résumé

To understand the expectations and demand for a movement-tracking videogame (Bootle Blast) for home-based, upper limb (UL) rehabilitation among Costa Rican children with cerebral palsy (CP). Data were collected via telephone screening ( Fifteen dyads participated (1.6 ± 1 recruited/month). All had a flat-screen TV in a suitable location to play, were able to set a UL therapy goal, and established PTGs ranging from 45-120 min per week. Identified themes were: 1) Socio-cultural factors heighten demand, 2) Feelings of hope prevail for the intervention, and 3) Collaborative goal setting supports realistic expectations for Bootle Blast. Dyads had positive and realistic expectations about implementing the proposed videogaming intervention. This study provides insights on tailoring a family-centered, therapy gaming intervention to improve access to motor rehabilitation for children with CP in rural/remote settings and low-middle income countries. Costa Rican children have limited access to upper limb rehabilitation due to a combination of economic barriers, societal factors and the family context.Costa Rican children with cerebral palsy and their families expected home-based therapy gaming to be adaptable to their routines and aligned with their interests.Families perceived therapy gaming interventions as a promising path to access, participation, and enjoyment of at home upper limb motor therapy.

Autres résumés

Type: plain-language-summary (eng)
Costa Rican children have limited access to upper limb rehabilitation due to a combination of economic barriers, societal factors and the family context.Costa Rican children with cerebral palsy and their families expected home-based therapy gaming to be adaptable to their routines and aligned with their interests.Families perceived therapy gaming interventions as a promising path to access, participation, and enjoyment of at home upper limb motor therapy.

Identifiants

pubmed: 38946018
doi: 10.1080/09638288.2024.2362952
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Pagination

1-12

Auteurs

Daniela Chan-Víquez (D)

Bloorview Research Institute, Holland Bloorview Kids Rehabilitation Hospital, Toronto, Canada.
Rehabilitation Sciences Institute, University of Toronto, Toronto, Canada.

Heilyn Fernández-Huertas (H)

Escuela de Tecnologías en Salud, Universidad de Costa Rica, San José, Costa Rica.

Fernanda Chacón-Vargas (F)

Escuela de Tecnologías en Salud, Universidad de Costa Rica, San José, Costa Rica.

Carles Montserrat-Gonzalez (C)

Escuela de Tecnologías en Salud, Universidad de Costa Rica, San José, Costa Rica.

Darcy Fehlings (D)

Bloorview Research Institute, Holland Bloorview Kids Rehabilitation Hospital, Toronto, Canada.
Rehabilitation Sciences Institute, University of Toronto, Toronto, Canada.
Department of Pediatrics, University of Toronto, Toronto, Canada.

Sarah Munce (S)

Rehabilitation Sciences Institute, University of Toronto, Toronto, Canada.
KITE-Toronto Rehabilitation Institute, University Health Network, Toronto, Canada.

F Virginia Wright (F)

Bloorview Research Institute, Holland Bloorview Kids Rehabilitation Hospital, Toronto, Canada.
Rehabilitation Sciences Institute, University of Toronto, Toronto, Canada.

Elaine Biddiss (E)

Bloorview Research Institute, Holland Bloorview Kids Rehabilitation Hospital, Toronto, Canada.
Institute of Biomedical Engineering, University of Toronto, Toronto, Canada.

Classifications MeSH