European survey: citizens' attitudes on personalized medicine, genetic testing and health data sharing - design and delivery.
European Union
health data privacy
health data-sharing
healthcare policy
personalized medicine
public engagement
Journal
Personalized medicine
ISSN: 1744-828X
Titre abrégé: Per Med
Pays: England
ID NLM: 101238549
Informations de publication
Date de publication:
04 Jul 2024
04 Jul 2024
Historique:
medline:
4
7
2024
pubmed:
4
7
2024
entrez:
4
7
2024
Statut:
aheadofprint
Résumé
In the transformative landscape of healthcare, personalized medicine emerges as a pivotal shift, harnessing genetic, environmental and lifestyle data to tailor medical treatments for enhanced outcomes and cost efficiency. Central to its success is public engagement and consent to share health data amidst rising data privacy concerns. To investigate European public opinion on this paradigm, we executed a comprehensive cross-sectional survey to capture the general public's views on personalized medicine and data-sharing modalities, including digital tools and electronic records. The survey was distributed in eight major European Union countries and the results aim at guiding future policymaking and trust-building measures for secure health data exchange. This article delineates our methodological approach, whereby survey findings will be expounded in subsequent publications. [Box: see text].
Autres résumés
Type: plain-language-summary
(eng)
[Box: see text].
Identifiants
pubmed: 38963136
doi: 10.1080/17410541.2024.2342770
doi:
Types de publication
Journal Article
Langues
eng
Sous-ensembles de citation
IM