Competing interests: digital health and indigenous data sovereignty.
Journal
NPJ digital medicine
ISSN: 2398-6352
Titre abrégé: NPJ Digit Med
Pays: England
ID NLM: 101731738
Informations de publication
Date de publication:
04 Jul 2024
04 Jul 2024
Historique:
received:
17
04
2024
accepted:
14
06
2024
medline:
5
7
2024
pubmed:
5
7
2024
entrez:
4
7
2024
Statut:
epublish
Résumé
Digital health is increasingly promoting open health data. Although this open approach promises a number of benefits, it also leads to tensions with Indigenous data sovereignty movements led by Indigenous peoples around the world who are asserting control over the use of health data as a part of self-determination. Digital health has a role in improving access to services and delivering improved health outcomes for Indigenous communities. However, we argue that in order to be effective and ethical, it is essential that the field engages more with Indigenous peoples´ rights and interests. We discuss challenges and possible improvements for data acquisition, management, analysis, and integration as they pertain to the health of Indigenous communities around the world.
Identifiants
pubmed: 38965365
doi: 10.1038/s41746-024-01171-z
pii: 10.1038/s41746-024-01171-z
doi:
Types de publication
Journal Article
Review
Langues
eng
Pagination
178Subventions
Organisme : U.S. Department of Health & Human Services | NIH | National Institute of Biomedical Imaging and Bioengineering (NIBIB)
ID : DS-I Africa U54 TW012043-01
Informations de copyright
© 2024. The Author(s).
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