Mind the gap in kidney care: translating what we know into what we do.

Chronic kidney disease Equity Kidney care Public health World Kidney Day

Journal

Clinical and experimental nephrology
ISSN: 1437-7799
Titre abrégé: Clin Exp Nephrol
Pays: Japan
ID NLM: 9709923

Informations de publication

Date de publication:
06 Jul 2024
Historique:
accepted: 13 05 2024
medline: 6 7 2024
pubmed: 6 7 2024
entrez: 6 7 2024
Statut: aheadofprint

Résumé

Historically, it takes an average of 17 years to move new treatments from clinical evidence to daily practice. Given the highly effective treatments now available to prevent or delay kidney disease onset and progression, this is far too long. The time is now to narrow the gap between what we know and what we do. Clear guidelines exist for the prevention and management of common risk factors for kidney disease, such as hypertension and diabetes, but only a fraction of people with these conditions worldwide are diagnosed, and even fewer are treated to target. Similarly, the vast majority of people living with kidney disease are unaware of their condition, because in the early stages, it is often silent. Even among patients who have been diagnosed, many do not receive appropriate treatment for kidney disease. Considering the serious consequences of kidney disease progression, kidney failure, or death, it is imperative that treatments are initiated early and appropriately. Opportunities to diagnose and treat kidney disease early must be maximized beginning at the primary care level. Many systematic barriers exist, ranging from patient to clinician to health systems to societal factors. To preserve and improve kidney health for everyone everywhere, each of these barriers must be acknowledged so that sustainable solutions are developed and implemented without further delay.

Identifiants

pubmed: 38970648
doi: 10.1007/s10157-024-02518-2
pii: 10.1007/s10157-024-02518-2
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Investigateurs

Alessandro Balducci (A)
Vassilios Liakopoulos (V)
Li-Li Hsiao (LL)
Ricardo Correa-Rotter (R)
Ifeoma Ulasi (I)
Latha Kumaraswami (L)
Siu Fai Lui (SF)
Dina Abdellatif (D)
Ágnes Haris (Á)

Informations de copyright

© 2024. The Author(s).

Références

Jager KJ, Kovesdy C, Langham R, et al. A single number for advocacy and communication-worldwide more than 850 million individuals have kidney diseases. Kidney Int. 2019;96:1048–50.
pubmed: 31582227 doi: 10.1016/j.kint.2019.07.012
Institute for Health Metrics and Evaluation (IHME). GBD compare data visualization. http://vizhub.healthdata.org/gbd-compare . Accessed Nov 18 2023
Luyckx VA, Tonelli M, Stanifer JW. The global burden of kidney disease and the sustainable development goals. Bull World Health Organ. 2018;96:414-422D.
pubmed: 29904224 pmcid: 5996218 doi: 10.2471/BLT.17.206441
International Society of Nephrology. ISN Global Kidney Health Atlas, 3rd ed. https://www.theisn.org/initiatives/global-kidney-health-atlas/ . Accessed Nov 18 2023
GBD Chronic Kidney Disease Collaboration. Global, regional, and national burden of chronic kidney disease, 1990–2017: a systematic analysis for the Global Burden of Disease Study 2017. Lancet. 2020;395:709–33.
doi: 10.1016/S0140-6736(20)30045-3
Vanholder R, Annemans L, Brown E, et al. Reducing the costs of chronic kidney disease while delivering quality health care: a call to action. Nat Rev Nephrol. 2017;13:393–409.
pubmed: 28555652 doi: 10.1038/nrneph.2017.63
Nguyen-Thi HY, Le-Phuoc TN, Tri Phat N, et al. The economic burden of chronic kidney disease in Vietnam. Health Serv Insights. 2021. https://doi.org/10.1177/11786329211036011 .
doi: 10.1177/11786329211036011 pubmed: 34376990 pmcid: 8323416
US Renal Data System. Healthcare expenditures for persons with CKD. https://usrds-adr.niddk.nih.gov/2023/chronic-kidney-disease/6-healthcare-expenditures-for-persons-with-ckd . Accessed 31 Sept 2023.
Kidney Health Australia. Transforming Australia’s kidney health: a call to action for early detection and treatment of chronic kidney disease. https://kidney.org.au/uploads/resources/Changing-the-CKD-landscape-Economic-benefits-of-early-detection-and-treatment.pdf . Accessed Jan 16 2024
Ke C, Liang J, Liu M, et al. Burden of chronic kidney disease and its risk-attributable burden in 137 low-and middle-income countries, 1990–2019: results from the global burden of disease study 2019. BMC Nephrol. 2022;23:17.
pubmed: 34986789 pmcid: 8727977 doi: 10.1186/s12882-021-02597-3
Gregg EW, Buckley J, Ali MK, et al. Improving health outcomes of people with diabetes: target setting for the WHO Global Diabetes Compact. Lancet. 2023;401:1302–12.
pubmed: 36931289 pmcid: 10420388 doi: 10.1016/S0140-6736(23)00001-6
Geldsetzer P, Manne-Goehler J, Marcus ME, et al. The state of hypertension care in 44 low-income and middle-income countries: a cross-sectional study of nationally representative individual-level data from 1.1 million adults. Lancet. 2019;394:652–62.
pubmed: 31327566 doi: 10.1016/S0140-6736(19)30955-9
Chu L, Bhogal SK, Lin P, et al. AWAREness of diagnosis and treatment of Chronic Kidney Disease in adults with Type 2 diabetes (AWARE-CKD in T2D). Can J Diabetes. 2022;46:464–72.
pubmed: 35739044 doi: 10.1016/j.jcjd.2022.01.008
Levin A, Tonelli M, Bonventre J, et al. Global kidney health 2017 and beyond: a roadmap for closing gaps in care, research, and policy. Lancet. 2017;390:1888–917.
pubmed: 28434650 doi: 10.1016/S0140-6736(17)30788-2
Stengel B, Muenz D, Tu C, et al. Adherence to the kidney disease: improving global outcomes CKD guideline in nephrology practice across countries. Kidney Int Rep. 2021;6:437–48.
pubmed: 33615069 doi: 10.1016/j.ekir.2020.11.039
Chu CD, Chen MH, McCulloch CE, et al. Patient awareness of CKD: a systematic review and meta-analysis of patient-oriented questions and study setting. Kidney Med. 2021;3:576-585.e1.
pubmed: 34401725 pmcid: 8350814 doi: 10.1016/j.xkme.2021.03.014
Ene-Iordache B, Perico N, Bikbov B, et al. Chronic kidney disease and cardiovascular risk in six regions of the world (ISN-KDDC): a cross-sectional study. Lancet Global Health. 2016;4:e307–19.
pubmed: 27102194 doi: 10.1016/S2214-109X(16)00071-1
Gummidi B, John O, Ghosh A, et al. A systematic study of the prevalence and risk factors of CKD in Uddanam. India Kidney Int Rep. 2020;5:2246–55.
pubmed: 33305118
Kidney Disease: Improving Global Outcomes (KDIGO). Diabetes Work Group. KDIGO 2022 clinical practice guideline for diabetes management in chronic kidney disease. Kidney Int. 2022;102(5S):S1–127.
Nicholas SB, Daratha KB, Alicic RZ, et al. Prescription of guideline-directed medical therapies in patients with diabetes and chronic kidney disease from the CURE-CKD Registry, 2019–2020. Diabetes Obes Metab. 2023;25:2970–9.
pubmed: 37395334 doi: 10.1111/dom.15194
Grams ME, Yang W, Rebholz CM, et al. Risks of adverse events in advanced CKD: the chronic renal insufficiency cohort (CRIC) study. Am J Kidney Dis. 2017;70:337–46.
pubmed: 28366517 pmcid: 5572665 doi: 10.1053/j.ajkd.2017.01.050
Kidney Disease: Improving Global Outcomes (KDIGO) CKD Work Group. KDIGO. Clinical practice guideline for the evaluation and management of chronic kidney disease. Kidney Int. 2024. https://doi.org/10.1016/j.kint.2023.10.018 .
doi: 10.1016/j.kint.2023.10.018
Kidney Disease: Improving Global Outcomes (KDIGO) Blood Pressure Work Group. KDIGO clinical practice guideline for the management of blood pressure in chronic kidney disease. Kidney Int. 2021;99(3S):S1–87.
Tuttle KR, Alicic RZ, Duru OK, et al. Clinical characteristics of and risk factors for chronic kidney disease among adults and children: an analysis of the CURE-CKD registry. JAMA Netw Open. 2019. https://doi.org/10.1001/jamanetworkopen.2019.18169 .
doi: 10.1001/jamanetworkopen.2019.18169 pubmed: 31860111 pmcid: 6991307
Ismail WW, Witry MJ, Urmie JM. The association between cost sharing, prior authorization, and specialty drug utilization: a systematic review. J Manag Care Spec Pharm. 2023;29:449–63.
pubmed: 37121255
Heerspink HJL, Vart P, Jongs N, et al. Estimated lifetime benefit of novel pharmacological therapies in patients with type 2 diabetes and chronic kidney disease: a joint analysis of randomized controlled clinical trials. Diabetes Obes Metab. 2023;25:3327–36.
pubmed: 37580309 doi: 10.1111/dom.15232
Nuffield Department of Population Health Renal Studies Group. SGLT2 inhibitor meta-analysis cardio-renal trialists’ consortium. Impact of diabetes on the effects of sodium glucose co-transporter-2 inhibitors on kidney outcomes: collaborative meta-analysis of large placebo-controlled trials. Lancet. 2022;400:1788–801.
doi: 10.1016/S0140-6736(22)02074-8
Fernández-Fernandez B, Sarafidis P, Soler MJ, et al. EMPA-KIDNEY: expanding the range of kidney protection by SGLT2 inhibitors. Clin Kidney J. 2023;16:1187–98.
pubmed: 37529652 pmcid: 10387399 doi: 10.1093/ckj/sfad082
McEwan P, Boyce R, Sanchez JJG, et al. Extrapolated longer-term effects of the DAPA-CKD trial: a modelling analysis. Nephrol Dial Transpl. 2023;38:1260–70.
doi: 10.1093/ndt/gfac280
Vanholder R, Annemans L, Braks M, et al. Inequities in kidney health and kidney care. Nat Rev Nephrol. 2023;19:694–708.
pubmed: 37580571 doi: 10.1038/s41581-023-00745-6
Agarwal R, Filippatos G, Pitt B, et al. Cardiovascular and kidney outcomes with finerenone in patients with type 2 diabetes and chronic kidney disease: the FIDELITY pooled analysis. Eur Heart J. 2022;43:474–84.
pubmed: 35023547 doi: 10.1093/eurheartj/ehab777
Tuttle KR, Bosch-Traberg H, Cherney DZI, et al. Post hoc analysis of SUSTAIN 6 and PIONEER 6 trials suggests that people with type 2 diabetes at high cardiovascular risk treated with semaglutide experience more stable kidney function compared with placebo. Kidney Int. 2023;103:772–81.
pubmed: 36738891 doi: 10.1016/j.kint.2022.12.028
Rubin R. It takes an average of 17 years for evidence to change practice-the burgeoning field of implementation science seeks to speed things up. JAMA. 2023;329:1333–6.
pubmed: 37018006 doi: 10.1001/jama.2023.4387
World Health Organisation. Mid-point evaluation of the implementation of the WHO global action plan for the prevention and control of noncommunicable diseases 2013–2020 (NCD-GAP). https://cdn.who.int/media/docs/default-source/documents/about-us/evaluation/ncd-gap-final-report.pdf?sfvrsn=55b22b89_5&download=true . Accessed Nov 18 2023
Kruk ME, Gage AD, Joseph NT, et al. Mortality due to low-quality health systems in the universal health coverage era: a systematic analysis of amenable deaths in 137 countries. Lancet. 2018;392:2203–12.
pubmed: 30195398 pmcid: 6238021 doi: 10.1016/S0140-6736(18)31668-4
Kingori P, Peeters Grietens K, Abimbola S, et al. Uncertainties about the quality of medical products globally: lessons from multidisciplinary research. BMJ Glob Health. 2023. https://doi.org/10.1136/bmjgh-2023-012902 .
doi: 10.1136/bmjgh-2023-012902 pubmed: 37344004 pmcid: 10367018
Pan American Health Organization Quality control of medicines. https://www.paho.org/en/topics/quality-control-medicines . Accessed Nov 18 2023
Tuttle KR, Wong L, St Peter W, et al. Moving from evidence to implementation of breakthrough therapies for diabetic kidney disease. Clin J Am Soc Nephrol. 2022;17:1092–103.
pubmed: 35649722 pmcid: 9269635 doi: 10.2215/CJN.02980322
Kalyesubula R, Conroy AL, Calice-Silva V, et al. Screening for kidney disease in low- and middle-income countries. Semin Nephrol. 2022. https://doi.org/10.1016/j.semnephrol.2023.151315 .
doi: 10.1016/j.semnephrol.2023.151315 pubmed: 37001337
Francis A, Abdul Hafidz MI, Ekrikpo UE, et al. Barriers to accessing essential medicines for kidney disease in low- and lower middle-income countries. Kidney Int. 2022;102:969–73.
pubmed: 36044940 doi: 10.1016/j.kint.2022.07.029
Rangaswami J, Tuttle K, Vaduganathan M. Cardio-renal-metabolic care models: toward achieving effective interdisciplinary care. Circ Cardiovasc Qual Outcomes. 2020. https://doi.org/10.1161/CIRCOUTCOMES.120.007264 .
doi: 10.1161/CIRCOUTCOMES.120.007264 pubmed: 33176463
Neumiller JJ, Alicic RZ, Tuttle KR. Overcoming barriers to implementing new therapies for diabetic kidney disease: lessons learned. Adv Chronic Kidney Dis. 2021;28:318–27.
pubmed: 34922688 doi: 10.1053/j.ackd.2021.02.001
Mishra SR, Neupane D, Preen D, et al. Mitigation of non-communicable diseases in developing countries with community health workers. Global Health. 2015;11:43.
pubmed: 26555199 pmcid: 4641398 doi: 10.1186/s12992-015-0129-5
Joshi R, John O, Jha V. The potential impact of public health interventions in preventing kidney disease. Semin Nephrol. 2017;37:234–44.
pubmed: 28532553 doi: 10.1016/j.semnephrol.2017.02.004
Patel A, Praveen D, Maharani A, et al. Association of multifaceted mobile technology-enabled primary care intervention with cardiovascular disease risk management in rural Indonesia. JAMA Cardiol. 2019;4:978–86.
pubmed: 31461123 pmcid: 6714032 doi: 10.1001/jamacardio.2019.2974
Ardavani A, Curtis F, Khunti K, et al. The effect of pharmacist-led interventions on the management and outcomes in chronic kidney disease (CKD): a systematic review and meta-analysis protocol. Health Sci Rep. 2023. https://doi.org/10.1002/hsr2.1064 .
doi: 10.1002/hsr2.1064 pubmed: 36660259 pmcid: 9840059
Sherrod CF, Farr SL, Sauer AJ. Overcoming treatment inertia for patients with heart failure: how do we build systems that move us from rest to motion? Eur Heart J. 2023;44:1970–2.
pubmed: 37042346 doi: 10.1093/eurheartj/ehad169
Ramakrishnan C, Tan NC, Yoon S, et al. Healthcare professionals’ perspectives on facilitators of and barriers to CKD management in primary care: a qualitative study in Singapore clinics. BMC Health Services Res. 2022;22:560.
doi: 10.1186/s12913-022-07949-9
Porter J, Boyd C, Skandari MR, et al. Revisiting the time needed to provide adult primary care. J Gen Intern Med. 2023;38:147–55.
pubmed: 35776372 doi: 10.1007/s11606-022-07707-x
Peralta CA, Livaudais-Toman J, Stebbins M, et al. Electronic decision support for management of CKD in primary care: a pragmatic randomized trial. Am J Kidney Dis. 2020;76:636–44.
pubmed: 32682696 pmcid: 7606321 doi: 10.1053/j.ajkd.2020.05.013
Rios P, Sola L, Ferreiro A, et al. Adherence to multidisciplinary care in a prospective chronic kidney disease cohort is associated with better outcomes. PLoS ONE. 2022. https://doi.org/10.1371/journal.pone.0266617 .
doi: 10.1371/journal.pone.0266617 pubmed: 36538525 pmcid: 9767335
Stevenson JK, Campbell ZC, Webster AC, et al. eHealth interventions for people with chronic kidney disease. Cochrane Database Syst Rev. 2019. https://doi.org/10.1002/14651858.CD012379.pub2 .
doi: 10.1002/14651858.CD012379.pub2 pubmed: 31425608 pmcid: 6699665
Tuot DS, Crowley ST, Katz LA, et al. Usability testing of the kidney score platform to enhance communication about kidney disease in primary care settings: qualitative think-aloud study. JMIR Form Res. 2022;6:e40001.
pubmed: 36170008 pmcid: 9557760 doi: 10.2196/40001
Verberne WR, Stiggelbout AM, Bos WJW, et al. Asking the right questions: towards a person-centered conception of shared decision-making regarding treatment of advanced chronic kidney disease in older patients. BMC Med Ethics. 2022;23:47.
pubmed: 35477488 pmcid: 9047263 doi: 10.1186/s12910-022-00784-x
Taha A, Iman Y, Hingwala J, et al. Patient navigators for CKD and kidney failure: a systematic review. Kidney Med. 2022. https://doi.org/10.1016/j.xkme.2022.100540 .
doi: 10.1016/j.xkme.2022.100540 pubmed: 36185707 pmcid: 9516458
Essue BM, Laba M, Knaul F, et al. Economic burden of chronic ill health and injuries for households in low- and middle-income countries. In: Jamison DT, Gelband H, Horton S, et al., editors. Disease control priorities: improving health and reducing poverty 3rd ed. Washington DC: The International Bank for Reconstruction and Development/The World Bank; 2017.
Khatib R, McKee M, Shannon H, et al. Availability and affordability of cardiovascular disease medicines and their effect on use in high-income, middle-income, and low-income countries: an analysis of the PURE study data. Lancet. 2016;387:61–9.
pubmed: 26498706 doi: 10.1016/S0140-6736(15)00469-9
Kamath N, Iyengar AA. Chronic kidney disease (CKD): an observational study of etiology, severity and burden of comorbidities. Indian J Pediatr. 2017;84:822–5.
pubmed: 28711960 doi: 10.1007/s12098-017-2413-2
Cirillo L, Ravaglia F, Errichiello C, et al. Expectations in children with glomerular diseases from SGLT2 inhibitors. Pediatr Nephrol. 2022;37:2997–3008.
pubmed: 35286452 doi: 10.1007/s00467-022-05504-6
Donohue JF, Elborn JS, Lansberg P, et al. Bridging the “know-do” gaps in five non-communicable diseases using a common framework driven by implementation science. J Healthc Leadersh. 2023;15:103–19.
pubmed: 37416849 pmcid: 10320809 doi: 10.2147/JHL.S394088
Population Health Research Institute. Polypills added to WHO essential medicines list. https://www.phri.ca/eml/ . Accessed Nov 18 2023
Sepanlou SG, Mann JFE, Joseph P, et al. Fixed-dose combination therapy for prevention of cardiovascular diseases in CKD: an individual participant data meta-analysis. Clin J Am Soc Nephrol. 2023;18:1408–15.
pubmed: 37550842 doi: 10.2215/CJN.0000000000000251
Dev V, Mittal A, Joshi V, et al. Cost analysis of telemedicine use in paediatric nephrology-the LMIC perspective. Pediatr Nephrol. 2024;39:193–201.
pubmed: 37488241 doi: 10.1007/s00467-023-06062-1
Musacchio N, Zilich R, Ponzani P, et al. Transparent machine learning suggests a key driver in the decision to start insulin therapy in individuals with type 2 diabetes. J Diabetes. 2023;15:224–36.
pubmed: 36889912 pmcid: 10036260 doi: 10.1111/1753-0407.13361
Zuniga C, Riquelme C, Muller H, et al. Using telenephrology to improve access to nephrologist and global kidney management of CKD primary care patients. Kidney Int Rep. 2020;5:920–3.
pubmed: 32518875 pmcid: 7270717 doi: 10.1016/j.ekir.2020.03.002
van der Horst DEM, Hofstra N, van Uden-Kraan CF, et al. Shared decision making in health care visits for CKD: patients’ decisional role preferences and experiences. Am J Kidney Dis. 2023;82:677–86.
pubmed: 37516297 doi: 10.1053/j.ajkd.2023.04.012
Hole B, Scanlon M, Tomson C. Shared decision making: a personal view from two kidney doctors and a patient. Clin Kidney J. 2023;16:i12–9.
pubmed: 37711639 pmcid: 10497374 doi: 10.1093/ckj/sfad064

Auteurs

Valerie A Luyckx (VA)

Department of Public and Global Health, Epidemiology, Biostatistics and Prevention Institute, University of Zurich, Hirschengraben 84, 8001, Zurich, Switzerland.
Renal Division, Department of Medicine, Brigham and Women's Hospital, Harvard Medical School, Boston, MA, USA.
Department of Paediatrics and Child Health, University of Cape Town, Cape Town, South Africa.

Katherine R Tuttle (KR)

Providence Medical Research Center, Providence Inland Northwest Health, 105 W 8th Avenue, Suite 250 E, Spokane, WA, 99204, USA.
Nephrology Division, Department of Medicine, University of Washington, Seattle, WA, USA.

Dina Abdellatif (D)

Department of Nephrology, Cairo University Hospital, Cairo, Egypt.

Ricardo Correa-Rotter (R)

Department of Nephrology and Mineral Metabolism, National Medical Science and Nutrition Institute Salvador Zubiran, Mexico, Mexico.

Winston W S Fung (WWS)

Department of Medicine and Therapeutics, Prince of Wales Hospital, The Chinese University of Hong Kong, Shatin, Hong Kong, China.

Agnès Haris (A)

Nephrology Department, Péterfy Hospital, Budapest, Hungary.

Li-Li Hsiao (LL)

Renal Division, Department of Medicine, Brigham and Women's Hospital, Harvard Medical School, Boston, MA, USA.

Makram Khalife (M)

ISN Patient Liaison Advisory Group, Cranford, USA.

Latha A Kumaraswami (LA)

Tamilnad Kidney Research (TANKER) Foundation, Chennai, India.

Fiona Loud (F)

ISN Patient Liaison Advisory Group, Cranford, USA.

Vasundhara Raghavan (V)

ISN Patient Liaison Advisory Group, Cranford, USA.

Stefanos Roumeliotis (S)

2nd Department of Nephrology, AHEPA University Hospital Medical School, Aristotle University of Thessaloniki, 1 St. Kyriakidi Street, 54636, Thessaloniki, Greece. st_roumeliotis@hotmail.com.

Marianella Sierra (M)

ISN Patient Liaison Advisory Group, Cranford, USA.

Ifeoma Ulasi (I)

Department of Medicine, College of Medicine, University of Nigeria, Ituku-Ozalla, Enugu, Nigeria.

Bill Wang (B)

ISN Patient Liaison Advisory Group, Cranford, USA.

Siu-Fai Lui (SF)

Division of Health System, Policy and Management, Jockey Club School of Public Health and Primary Care, The Chinese University of Hong Kong, Harbin, Hong Kong, China.

Vassilios Liakopoulos (V)

2nd Department of Nephrology, AHEPA University Hospital Medical School, Aristotle University of Thessaloniki, Thessaloniki, Greece.

Alessandro Balducci (A)

Italian Kidney Foundation, Rome, Italy.

Classifications MeSH