Responses to the needs of families with children with disabilities in Spain: The voices of families and professionals.

Child Development Family Needs Professional-family relation

Journal

Acta psychologica
ISSN: 1873-6297
Titre abrégé: Acta Psychol (Amst)
Pays: Netherlands
ID NLM: 0370366

Informations de publication

Date de publication:
12 Jul 2024
Historique:
received: 16 02 2024
revised: 27 05 2024
accepted: 27 06 2024
medline: 14 7 2024
pubmed: 14 7 2024
entrez: 13 7 2024
Statut: aheadofprint

Résumé

Children with disabilities and their families have the right to access Early Childhood Intervention (ECI). Family members should act as active agents of the intervention. In this sense, service professionals should offer support and intervention to improve family well-being and child development. We analyzed the experiences of parents of children with disabilities users of ECI services and the professional coordinators in the Balearic Islands (Spain) from a phenomenological-hermeneutic approach. Data collection was through semi-structured interviews and focus groups. A total of 5 coordinators and 30 family members participated in the study. The results indicate five categories: making ECI visible, reception phase, family well-being, intervention, and current barriers. The findings project the need to make ECI visible in policies and administrations, as well as plans to raise social awareness of child disability. Protocols must be found to facilitate access to services for children and families. Implications for the improvement of ECI are proposed.

Identifiants

pubmed: 39002432
pii: S0001-6918(24)00260-9
doi: 10.1016/j.actpsy.2024.104383
pii:
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Pagination

104383

Informations de copyright

Copyright © 2024 The Author(s). Published by Elsevier B.V. All rights reserved.

Déclaration de conflit d'intérêts

Declaration of competing interest The authors declare that they have no conflict of interest concerning the research, authorship and/or publication of this article.

Auteurs

Sara Bagur (S)

Department of Applied Pedagogy and Educational Psychology, Institute for Educational Research and Innovation (IRIE), University of the Balearic Islands, Balearic Islands, Spain. Electronic address: sara.bagur@uib.es.

Maria Rosa Rosselló-Ramon (MR)

Department of Applied Pedagogy and Educational Psychology, Institute for Educational Research and Innovation (IRIE), University of the Balearic Islands, Balearic Islands, Spain.

Berta Paz-Lourido (B)

Department of Nursing and Physiotherapy, Institute for Educational Research and Innovation (IRIE), University of the Balearic Islands, Balearic Islands, Spain.

Sebastià Verger (S)

Department of Applied Pedagogy and Educational Psychology, Institute for Educational Research and Innovation (IRIE), University of the Balearic Islands, Balearic Islands, Spain.

Classifications MeSH