The Caring Life Course Theory: Opening new frontiers in care-A cardiac rehabilitation example.

cardiac rehabilitation caring life course theory fundamental care mixed‐methods rural health

Journal

Journal of advanced nursing
ISSN: 1365-2648
Titre abrégé: J Adv Nurs
Pays: England
ID NLM: 7609811

Informations de publication

Date de publication:
16 Jul 2024
Historique:
revised: 27 05 2024
received: 14 03 2024
accepted: 23 06 2024
medline: 16 7 2024
pubmed: 16 7 2024
entrez: 16 7 2024
Statut: aheadofprint

Résumé

To operationalize the Caring Life Course Theory (CLCT) as a framework for improving cardiac rehabilitation (CR) engagement and informing ways to address disparities in rural, low socio-economic areas. A secondary analysis of data collected from 15 CR programmes to identify CR patterns through the CLCT lens using a mixed-methods approach. All analytical processes were conducted in NVivo, coding qualitative data through thematic analysis based on CLCT constructs. Relationships among these constructs were quantitatively assessed using Jaccard coefficients and hierarchical clustering via dendrogram analysis to identify related clusters. A strong interconnectedness among constructs: 'care from others', 'capability', 'care network' and 'care provision' (coefficient = 1) highlights their entangled crucial role in CR. However, significant conceptual disparities between 'care biography' and 'fundamental care' (coefficient = 0.4) and between 'self-care' and 'care biography' (coefficient = 0.384615) indicate a need for more aligned and personalized care approaches within CR. The CLCT provides a comprehensive theoretical and practical framework to address disparities in CR, facilitating a personalized approach to enhance engagement in rural and underserved regions. Integrating CLCT into CR programme designs could effectively address participation challenges, demonstrating the theory's utility in developing targeted, accessible care interventions/solutions. Explored the challenge of low CR engagement in rural, low socio-economic settings. Uncovered care provision, transitions and individual care biographies' relevance for CR engagement. Demonstrated the potential of CLCT to inform/transform CR services for underserved populations, impacting practices and outcomes. EQUATOR-MMR-RHS. A consumer co-researcher contributed to all study phases.

Identifiants

pubmed: 39011837
doi: 10.1111/jan.16312
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Subventions

Organisme : National Health and Medical Research Council
ID : GNT1169893
Organisme : Flinders Foundation
ID : CRA4ALL

Informations de copyright

© 2024 The Author(s). Journal of Advanced Nursing published by John Wiley & Sons Ltd.

Références

(ABS) ABoS. (2016). 2033.0.55.001 census of population and housing: Socio‐economic indexes for areas (SEIFA) Australia. ABoS.
Allen, J. K., Scott, L. B., Stewart, K. J., & Young, D. R. (2004). Disparities in women's referral to and enrollment in outpatient cardiac rehabilitation. Journal of General Internal Medicine, 19(7), 747–753.
Andersson, E. K., Skär, L., & Hjelm, M. (2020). Care experiences of younger people and next of kin following myocardial infarction. British Journal of Cardiac Nursing, 15(12), 1–11.
Angus, J., King‐Shier, K., Spaling, M., Duncan, A., Jaglal, S., Stone, J. A., & Clark, A. M. (2015). A secondary meta‐synthesis of qualitative studies of gender and access to cardiac rehabilitation. Journal of Advanced Nursing, 71(8), 1758–1773.
Anh, T. T., Anh, M. T. L., & Cường, L. V. (2021). The compliance with rehabilitation for people with schizophrenia among primary caregivers in Nam Dinh Province, Vietnam. The Bangkok Medical Journal, 17(2), 104–109.
Archibald, M., Ambagtsheer, R., Lawless, M. T., Thompson, M. O., Shultz, T., Chehade, M. J., Whiteway, L., Sheppard, A., Plaza, M. P. D., & Kitson, A. L. (2021). Co‐designing evidence‐based videos in health care: A case exemplar of developing creative knowledge translation “evidence‐experience” resources. International Journal of Qualitative Methods, 20, 16094069211019623.
Arena, R., Williams, M. A., Forman, D. E., Cahalin, L. P., Coke, L., Myers, J., Hamm, L., Kris‐Etherton, P., Humphrey, R., Bittner, V., Lavie, C. J., & American Heart Association Exercise, Cardiac Rehabilitation and Prevention Committee of the Council on Clinical Cardiology, Council on Epidemiology and Prevention, and Council on Nutrition, Physical Activity and Metabolism. (2012). Increasing referral and participation rates to outpatient cardiac rehabilitation: The valuable role of healthcare professionals in the inpatient and home health settings. Circulation, 125(10), 1321–1329.
Athlin, Å. M., Browall, M., Wengström, Y., Conroy, T., & Kitson, A. (2018). Descriptions of fundamental care needs in cancer care—An exploratory study. Journal of Clinical Nursing, 27, 2322–2332.
Barbabella, F., Melchiorre, M. G., Quattrini, S., Papa, R., Lamura, G., Richardson, E., & van Ginneken, E. (2017). How can eHealth improve care for people with multimorbidity in Europe? World Health Organization, Regional Office for Europe Copenhagen.
Barnard, J., Grant, S. W., Hickey, G. L., & Bridgewater, B. (2015). Is social deprivation an independent predictor of outcomes following cardiac surgery? An analysis of 240,221 patients from a National Registry. BMJ Open, 5(6), e008287.
Barnason, S., Zimmerman, L., Schulz, P., Pullen, C. H., & Schuelke, S. (2019). Weight management telehealth intervention for overweight and obese rural cardiac rehabilitation participants: A randomised trial. Journal of Clinical Nursing, 28(9–10), 1808–1818.
Beleigoli, A., Dafny, H. A., Pinero de Plaza, M. A., Hutchinson, C., Marin, T., Ramos, J. S., Suebkinorn, O., Gebremichael, L. G., Bulamu, N. B., Keech, W., Ludlow, M., Hendriks, J., Versace, V., & Clark, R. A. (2024). Clinical effectiveness of cardiac rehabilitation and barriers to completion in patients of low socioeconomic status in rural areas: A mixed‐methods study. Clinical Rehabilitation, 38, 837–854.
Beleigoli, A., Foote, J., Gebremichael, L., Bulamu, N., Astley, C., Keech, W., Tavella, R., Gulyani, A., Nesbitt, K., Pinero de Plaza, M. A., Ramos, J., Ludlow, M., Tideman, P., Nicholls, S., Chew, D., Beltrame, J., & Clark, R. (2023). Improving cardiac rehabilitation utilisation is essential to reducing mortality and cardiovascular readmission: A data linkage analysis of cardiac rehabilitation utilisation and clinical outcomes of 84,064 eligible separations in South Australia. Heart, Lung & Circulation, 32, S389.
Beleigoli, A., Foote, J., Gebremichael, L. G., Bulamu, N. B., Astley, C., Keech, W., Tavella, R., Gulyani, A., Nesbitt, K., Pinero de Plaza, M. A., Ramos, J. S., Ludlow, M., Nicholls, S. J., Chew, D. P., Beltrame, J., & Clark, R. A. (2024). Clinical effectiveness and utilisation of cardiac rehabilitation after hospital discharge: Data linkage analysis of 84,064 eligible discharged patients (2016–2021). Heart, Lung and Circulation. Epub ahead of print. PMID: 38443278. https://doi.org/10.1016/j.hlc.2024.01.018
Beleigoli, A., Hutchinson, C., Pinero de Plaza, M. A., Clark, R. A., Tirimacco, R., Hendriks, J., Versace, V. L., Tideman, P., Lynch, I., & Keech, W. (2023). Cardiac Rehabilitation for All (CR4ALL): A telehealth cardiac rehabilitation care pathway tailored to the needs and preferences of disadvantaged populations living with cardiovascular disease in rural and remote Australia. https://www.chapproject.com.au/sub‐projects/cr4all/
Birke, H., Foxvig, I., Burns, K., Toft, U., Hansen, A. B. G., Hauge, P. I., Foghmar, S., Mindegaard, R. B., & Jakobsen, L. M. (2022). Heart rehabilitation for all (HeRTA): Protocol for a feasibility study and pilot randomized trial. PLoS One, 17(6), e0270159.
Birtwistle, S. B., Jones, I., Murphy, R., Gee, I., & Watson, P. M. (2021). Family support for physical activity post‐myocardial infarction: A qualitative study exploring the perceptions of cardiac rehabilitation practitioners. Nursing and Health Sciences, 23(1), 227–236.
Boyd, H., McKernon, S., & Old, A. (2010). Health service co‐design: Working with patients to improve healthcare services: Guide and toolkit. Waitemata District Health Board.
Brown, B. B., Patel, C., McInnes, E., Mays, N., Young, J., & Haines, M. (2016). The effectiveness of clinical networks in improving quality of care and patient outcomes: A systematic review of quantitative and qualitative studies. BMC Health Services Research, 16(1), 1–16.
Bulamu, N. B., Hines, S., Gebremichael, L. G., Mpundu‐Kaambwa, C., Pinero de Plaza, M. A., Dafny, H. A., Beleigoli, A., Kaambwa, B., Hendriks, J. M., & Clark, R. A. (2023). Measurement properties of utility‐based health‐related quality‐of‐life measures in cardiac rehabilitation: A systematic review protocol. JBI Evidence Synthesis, 21(10), 2082–2091.
Bulto, L. N., Roseleur, J., Noonan, S., Pinero de Plaza, M. A., Champion, S., Dafny, H. A., Pearson, V., Nesbitt, K., Gebremichael, L. G., Beleigoli, A., Gulyani, A., Schultz, T., Hines, S., Clark, R. A., & Hendriks, J. M. (2023). Effectiveness of nurse‐led interventions versus usual care to manage hypertension and lifestyle behaviour: A systematic review and meta‐analysis. European Journal of Cardiovascular Nursing, 25, zvad040.
Carson, A. (2016). Midwifery around the world: A study in the role of midwives in local communities and healthcare systems. Annals of Global Health, 82(3), 381.
Chandrasekhar, J., Gill, A., & Mehran, R. (2018). Acute myocardial infarction in Young women: Current perspectives. International Journal of Women's Health, 10, 267–284.
Choi, S. B., Jung, W. J., Kim, S. G., & Kim, Y. H. (2020). Low 6‐minute walk distance and muscle mass predict drop out in cardiac rehabilitation. Healthcare, 8(4), 430.
Conroy, T., Pinero de Plaza, M. A., Mudd, A., Mitchell, M., & Kitson, A. (2023). Measuring fundamental care using complexity science: A descriptive case study of a methodological innovation. Journal of Clinical Nursing, 32(11–12), 2903–2912.
Courtney‐Pratt, H., Johnson, C., Cameron‐Tucker, H., & Sanderson, S. (2012). Investigating the feasibility of promoting and sustaining delivery of cardiac rehabilitation in a rural community. Rural and Remote Health, 12, 1838.
Dafny, H. A., Champion, S., Gebremichael, L. G., Pearson, V., Hendriks, J. M., Clark, R. A., Pinero de Plaza, M. A., Gulyani, A., Hines, S., & Beleigoli, A. (2023). Cardiac rehabilitation, physical activity, and the effectiveness of activity monitoring devices on cardiovascular patients: An umbrella review of systematic reviews. European Heart Journal ‐ Quality of Care and Clinical Outcomes, 9(4), 323–330.
Dai, Z.‐J., Zhang, J., Xu, S.‐T., Zhang, J., Zhuang, C.‐F., & Gu, P.‐H. (2022). Application of continuous nursing care based on hierarchical diagnosis and treatment mode in stage II cardiac rehabilitation of patients after percutaneous coronary intervention. Frontiers in Cardiovascular Medicine, 9, 9.
Dankner, R., Drory, Y., Geulayov, G., Ziv, A., Novikov, I., Zlotnick, A. Y., Moshkovitz, Y., Elami, A., Schwammenthal, E., & Goldbourt, U. (2014). A controlled intervention to increase participation in cardiac rehabilitation. European Journal of Preventive Cardiology, 22(9), 1121–1128.
Elam, A. R., Nwanyanwu, K., & Scott, A. W. (2022). Elevating social determinants of health and community engagement in eye care—The time is now. Jama Ophthalmology, 140, 453–454.
Elias, R. R., Jutte, D. P., & Moore, A. (2019). Exploring consensus across sectors for measuring the social determinants of health. SSM‐Population Health, 7, 100395.
Epstein, E. J., Maisel, S., Maysent, K., & Taub, P. R. (2021). Cardiac rehabilitation for coronary artery disease: Latest updates. Current Opinion in Cardiology, 36(5), 556–564.
Feo, R., Conroy, T., Jangland, E., Muntlin Athlin, Å., Brovall, M., Parr, J., Blomberg, K., & Kitson, A. (2018). Towards a standardised definition for fundamental care: A modified Delphi study. Journal of Clinical Nursing, 27(11–12), 2285–2299.
Field, P., Franklin, R. C., Barker, R., Ring, I., Leggat, P. A., & Canuto, K. (2021). Improving access to cardiac rehabilitation in rural and remote areas: A protocol for a community‐based qualitative case study. International Journal of Therapy and Rehabilitation, 28(12), 1–13.
Frederix, I., Hansen, D., Coninx, K., Vandervoort, P., Vandijck, D., Hens, N., van Craenenbroeck, E., van Driessche, N., & Dendale, P. (2015). Effect of comprehensive cardiac telerehabilitation on one‐year cardiovascular rehospitalization rate, medical costs and quality of life: A cost‐effectiveness analysis. European Journal of Preventive Cardiology, 23(7), 674–682.
Gaalema, D. E., Elliott, R. J., Savage, P. D., Rengo, J. L., Cutler, A. Y., Pericot‐Valverde, I., Priest, J. S., Shepard, D. S., Higgins, S. T., & Ades, P. A. (2019). Financial incentives to increase cardiac rehabilitation participation among low‐socioeconomic status patients. JACC: Heart Failure, 7(7), 537–546.
Gebremichael, L. G., Beleigoli, A., Champion, S., Nesbitt, K., Bulto, L. N., Pinero de Plaza, M. A., Pearson, V., Noonan, S., Hendriks, J. M., Hines, S., & Clark, R. A. (2022). Effectiveness of cardiac rehabilitation programs versus standard care on medication adherence in patients with cardiovascular disease: A systematic review protocol. JBI Evidence Synthesis, 20, 2986–2994.
Gebremichael, L. G., Champion, S., Nesbitt, K., Pearson, V., Bulamu, N. B., Dafny, H. A., Sajeev, S., Pinero de Plaza, M. A., Ramos, J. S., Suebkinorn, O., Gulyani, A., Bulto, L. N., Beleigoli, A., Hendriks, J. M., Hines, S., & Clark, R. A. (2023). Effectiveness of cardiac rehabilitation programs on medication adherence in patients with cardiovascular disease: A systematic review and meta‐analysis. International Journal of Cardiology Cardiovascular Risk and Prevention, 20, 200229.
Goldman, J. D., & Harte, F. M. (2020). Transition of care to prevent recurrence after acute coronary syndrome: The critical role of the primary care provider and pharmacist. Postgraduate Medicine, 132(5), 426–432.
Gorawara‐Bhat, R., Graupner, J., Molony, J., & Thompson, K. (2019). Informal caregiving in a medically underserved community: Challenges, construction of meaning, and the caregiver–recipient dyad. Sage Open Nursing, 5, 237796081984467.
Grippo, A. J., Lamb, D. G., Carter, C. S., & Porges, S. W. (2007). Social isolation disrupts autonomic regulation of the heart and influences negative affective behaviors. Biological Psychiatry, 62(10), 1162–1170.
Grønkjær, M., Voldbjerg, S. L., Jørgensen, L., Kusk, K. H., & Laugesen, B. (2023). Establishing and leading a cross‐institutional partnership to integrate fundamentals of care into clinical practice, nursing education and research. Journal of Advanced Nursing, 79(3), 951–960.
Gusdal, A. K., Josefsson, K., Adolfsson, E. T., & Martin, L. (2016). Informal caregivers' experiences and needs when caring for a relative with heart failure. The Journal of Cardiovascular Nursing, 31(4), E1–E8.
Hassan, A. Y. I. (2020). Challenges and recommendations for the deployment of information and communication technology solutions for informal caregivers: Scoping review. Jmir Aging, 3(2), e20310.
Hoff, T., & Collinson, G. E. (2017). How do we talk about the physician–patient relationship? What the nonempirical literature tells us. Medical Care Research and Review, 74(3), 251–285.
Holman, D., & Walker, A. (2021). Understanding unequal ageing: Towards a synthesis of intersectionality and life course analyses. European Journal of Ageing, 18(2), 239–255.
Jackson, D., Aveyard, H., Brooke, J., Commodore‐Mensah, Y., Noyes, J., Sharps, P., Smith, G. D., Timmins, F., & Yu, D. (2024). International nurses day 2024: The economic power of care. Journal of Advanced Nursing, 80(6), 2153–2155.
Jbilou, J., Grenier, J., Chomienne, M.‐H., Tulloch, H., D'Antono, B., & Greenman, P. S. (2019). Understanding men's psychological reactions and experience following a cardiac event: A qualitative study from the MindTheHeart project. BMJ Open, 9(9), e029560.
Jegier, A., Szalewska, D., Mawlichanów, A., Bednarczyk, T., Eysymontt, Z., Gałaszek, M., Mamcarz, A., Mierzyńska, A., Piotrowicz, E., Piotrowicz, R., Smarż, K., Smolis‐Bąk, E., Straburzyńska‐Migaj, E., & Wolszakiewicz, J. (2021). Comprehensive cardiac rehabilitation as the keystone in the secondary prevention of cardiovascular disease. Kardiologia Polska, 79(7–8), 901–916.
Kitson, A., Carr, D., Conroy, T., Feo, R., Grønkjær, M., Huisman‐de Waal, G., Jackson, D., Jeffs, L., Merkley, J., Muntlin Athlin, Å., Parr, J., Richards, D. A., Sørensen, E. E., & Wengström, Y. (2019). Speaking up for fundamental care: The ILC Aalborg statement. BMJ Open, 9, e033077.
Kitson, A., Carr, D., Feo, R., Conroy, T., & Jeffs, L. (2024). The ILC Maine statement: Time for the fundamental care [r]evolution. Journal of Advanced Nursing, 1–14. Epub ahead of print. PMID: 38379317. https://doi.org/10.1111/jan.16108
Kitson, A., Feo, R., Lawless, M., Arciuli, J., Clark, R., Golley, R., Lange, B., Ratcliffe, J., & Robinson, S. (2022). Towards a unifying caring life‐course theory for better self‐care and caring solutions: A discussion paper. Journal of Advanced Nursing, 78(1), e6–e20.
Kitson, A. L. (2018). The fundamentals of care framework as a point‐of‐care nursing theory. Nursing Research, 67(2), 99–107.
Kontrimienė, A., Sauserienė, J., Liseckienė, I., Valius, L., & Jaruševičienė, L. (2019). Insights into the system of care of the elderly with mental disorders from the perspective of informal caregivers in Lithuania. International Journal of Mental Health Systems, 13(1), 55.
Kotseva, K., Wood, D., & Bacquer, D. D. (2018). Determinants of participation and risk factor control according to attendance in cardiac rehabilitation programmes in coronary patients in Europe: EUROASPIRE IV survey. European Journal of Preventive Cardiology, 25(12), 1242–1251.
Laparidou, D., Middlemass, J., Karran, T., & Siriwardena, A. N. (2018). Caregivers' interactions with health care services—Mediator of stress or added strain? Experiences and perceptions of informal caregivers of people with dementia—A qualitative study. Dementia, 18(7–8), 2526–2542.
Lawless, M. (2023). Caring life course theory constructs. Flinders University.
Lawless, M. T., Tieu, M., Golley, R., & Kitson, A. (2023). How and where does “care” fit within seminal life‐course approaches? A narrative review and critical analysis. Journal of Advanced Nursing, 80, 871–883.
Lee, M. B. K. (2016). Psycho‐social support for patients with cardiovascular disease (CVD): Barriers to a cardiac rehabilitation program (CRP). https://api.semanticscholar.org/CorpusID:78815274
Lotto, R., Newson, L., Patel, T., McGinn, E., & Jones, I. (2022). Exploring the experiences of the cardiac rehabilitation journey among south Asian patients. British Journal of Cardiac Nursing, 17(1), 1–12.
Luszczynska, A., & Sutton, S. (2006). Physical activity after cardiac rehabilitation: Evidence that different types of self‐efficacy are important in maintainers and relapsers. Rehabilitation Psychology, 51(4), 314–321.
McGee, H. (1994). Cardiac rehabilitation: The role of psychological intervention. Irish Journal of Psychological Medicine, 11(4), 151–152.
McHaro, T. L., Iseselo, M. K., Kahema, S. E., & Tarimo, E. A. M. (2023). Experiences of family caregivers in caring for patients with heart failure at Jakaya Kikwete Cardiac Institute, Dar Es Salaam, Tanzania: A qualitative study. PLoS One, 18, e0280698.
Mosleh, S. M., Bond, C. M., Lee, A. J., Kiger, A., & Campbell, N. C. (2014). Effectiveness of theory‐based invitations to improve attendance at cardiac rehabilitation: A randomized controlled trial. European Journal of Cardiovascular Nursing, 13(3), 201–210.
Mudd, A., Feo, R., Conroy, T., & Kitson, A. (2020). Where and how does fundamental care fit within seminal nursing theories: A narrative review and synthesis of key nursing concepts. Journal of Clinical Nursing, 29(19–20), 3652–3666.
Mudd, A., Feo, R., Pinero de Plaza, M. A., Tieu, M., Paia, S. Y., Cleland, J., Windle, A., George, S., Thompson, M. Q., Ambagtsheer, R. C., Muller, A., Hall, A., & Lange, B. (2023). The use of digital Technologies in the Inpatient Setting to promote communication during the early stage of an infectious disease outbreak: A scoping review. Telemedicine and e‐Health, 29(2), 172–197.
Muntlin, Å., Jangland, E., Laugesen, B., Voldbjerg, S. L., Gunningberg, L., Greenway, K., Merriman, C., Grønkjær, M., Heinen, M., & Huisman‐de Waal, G. (2023). European bedside nurses' perspective on the fundamentals of care framework and its application in clinical practice. A multi‐site focus group interview study. International Journal of Nursing Studies, 145, 104526.
National Academies of Sciences, Engineering, and Medicine. (2016). A framework for educating health professionals to address the social determinants of health. National Academies Press.
Nesbitt, K., Champion, S., Pearson, V., Gebremichael, L. G., Dafny, H., Ramos, J. S., Suebkinorn, O., Pinero de Plaza, M. A., Gulyani, A., du, H., Clark, R. A., Beleigoli, A., & the NHMRC Country Heart Attack Prevention (CHAP) Partnership Project Team. (2023). The effectiveness of interactive cardiac rehabilitation web applications versus usual care on programme completion in patients with cardiovascular disease: A systematic review and meta‐analysis of randomised controlled trials. Journal of Telemedicine and Telecare, 1357633X231201874. https://doi.org/10.1177/1357633X231201874
New ways to solve complex problems and PROLIFERATE [Internet]. Flinders University. 2022. https://open.flinders.edu.au/articles/data_management_plan/New_Ways_to_Solve_Complex_Problems_and_PROLIFERATE/21365796
Ng, S. K., Tawiah, R., Sawyer, M., & Scuffham, P. (2018). Patterns of multimorbid health conditions: A systematic review of analytical methods and comparison analysis. International Journal of Epidemiology, 47(5), 1687–1704.
Ngo‐Hamilton, A., Agakishiev, D., & Maharaj, V. (2024). Cardiac rehabilitation for heart failure: Progress and gaps in evidence and policy. Current Opinion in Cardiology, 39(3), 196–201.
Nso, N., Nassar, M., Mbome, Y., Emmanuel, K., Lyonga Ngonge, A., Badejoko, S., Akbar, S., Landry, I., Alfishawy, M., Munira, M., & Rizzo, V. (2022). Comparative assessment of the long‐term efficacy of home‐based versus center‐based cardiac rehabilitation. Cureus, 14, e23485.
Ohm, J., Kuja‐Halkola, R., Warnqvist, A., Häbel, H., Skoglund, P. H., Sundström, J., Hambraeus, K., Jernberg, T., & Svensson, P. (2023). Socioeconomic disparities and mediators for recurrent atherosclerotic cardiovascular disease events after a first myocardial infarction. Circulation, 148(3), 256–267.
Ormel, I., Law, S., Abbott, C., Yaffe, M. J., Saint‐Cyr, M., Kuluski, K., Josephson, D., & Macaulay, A. C. (2017). When one is sick and two need help: Caregivers' perspectives on the negative consequences of caring. Patient Experience Journal, 4(1), 66–78.
Palese, A., Longhini, J., & Danielis, M. (2020). To what extent unfinished nursing care tools coincide with the discrete elements of the fundamentals of care framework? A comparative analysis based on a systematic review. Journal of Clinical Nursing, 30, 239–265.
Pavlič, D. R., Maksuti, A., Panić, A., & Pavleković, K. (2021). Informal care in the context of long‐term health care for the elderly in Slovenia: A qualitative study. Slovenian Journal of Public Health, 60(3), 167–175.
Pedersen, M., Overgaard, D., Andersen, I., Baastrup, M., & Egerod, I. (2017). Experience of exclusion: A framework analysis of socioeconomic factors affecting cardiac rehabilitation participation among patients with acute coronary syndrome. European Journal of Cardiovascular Nursing, 16(8), 715–723.
Pinero de Plaza, B. A., Beleigoli, A., Brown, S., Bulto, L. N., Gebremichael, L. G., Nesbitt, K., Tieu, M., Pearson, V., Noonan, S., McMillan, P., Clark, R. A., Hines, S., Kitson, A., Champion, S., Dafny, H., & Hendriks, J. M. (2022). Effectiveness of telehealth versus standard care on health care utilization, health‐related quality of life, and well‐being in homebound populations: A systematic review protocol. JBI Evidence Synthesis, 20(11), 2734–2742.
Pinero de Plaza, M. A. (2021). Making the invisible visible: Exploring the experiences of frail homebound and bedridden people. Online report. NHMRC Centre of Research Excellence in Frailty and Healthy Ageing: Caring Futures Institute ‐ Flinders University. Contract No. 1.
Pinero de Plaza, M. A. (2023). Decision‐making matrix to Co‐design evidence‐based care solutions with First Nations P eoples [Internet]. Flinders University. https://doi.org/10.25451/flinders.24104940.v1
Pinero de Plaza, M. A. (2023a). The integrated and adaptable dynamics of the caring life course theory and its constructs. Flinders University: ROADS.
Pinero de Plaza, M. A. (2023b). The network of interactions between the elements of the fundamentals of care framework across the life course. figshare.
Pinero de Plaza, M. A. (2024). Implementing caring life course theory for transformative healthcare: A focus on vulnerable populations and digital health. JBI Evidence Implementation's eBulletin, 2024(1), 13–14. https://journals.lww.com/ijebh/Pages/JBI_EI‐Bulletin.aspx
Pinero de Plaza, M. A., Archibald, M., Lawless, M., Ambagtsheer, R., McMillan, P., Mudd, A., Freeling, M., & Kitson, A. (2024). A human‐centered approach to measuring the impact of evidence‐based online resources. Studies in Health Technology and Informatics, 310, 389–393.
Pinero de Plaza, M. A., Beleigoli, A., Kitson, A., McMillan, P., & Barrera Causil, C. J. (2024). Piloting a big data epidemiology approach to support frail, homebound, and bedridden people. Studies in Health Technology and Informatics, 310, 1292–1296.
Pinero de Plaza, M. A., Beleigoli, A., Mudd, A., Tieu, M., McMillan, P., Lawless, M., Feo, R., Archibald, M., & Kitson, A. (2021). Not well enough to attend appointments: Telehealth versus health marginalisation. IOS Press.
Pinero de Plaza, M. A., Bester, C., Nesbitt, K., Hutchinson, C., Robyn, C., Suebkinorn, O., & Beleigoli, A. (2023). CAREPULSE—Community and rural experts partnered for understanding and leveraging strategic endeavours in cardiac rehabilitation and secondary prevention. Flinders University.
Pinero de Plaza, M. A., Conroy, T., Mudd, A., & Kitson, A. (2021). Using a complex network methodology to track, evaluate, and transform fundamental care. Studies in Health Technology and Informatics, 284, 31–35. https://ebooks.iospress.nl/doi/10.3233/SHTI210656
Pinero de Plaza, M. A., David, J., & Chipchase, L. (Eds.). (2022). Un‐siloing allied health practice and interprofessional learning: A co‐design and evaluation case study. The National Health and Medical Research Council (NHMRC) Research Translation Long Weekend 2022. NHMRC.
Pinero de Plaza, M. A., Gebremichael, L., Brown, S., Wu, C.‐J., Clark, R. A., McBride, K., Hines, S., Pearson, O., & Morey, K. (2023). Health system enablers and barriers to continuity of care for first nations peoples living with chronic disease. International Journal of Integrated Care, 23, 17.
Pinero de Plaza, M. A., & Kitson, A. (2023). Spanish adaptation of the Fundamentals of Care Framework: White paper in Spanish and English—Adaptación al español del Marco de los Fundamentos del Cuidado: Reporte en español e inglés. Flinders University.
Pinero de Plaza, M. A., Kristina, L., Carlos, B.‐C., Fernando, M.‐R., Derek, C., Alline, B., Michael, L., Mandy, A., Alexandra, M., Penelope, M. M., Erin, M., Ambagtsheer Rachel, C., Ehsan, K., Clark Robyn, A., Renuka, V., Lalit, Y., & Alison, K. (Eds.). (2022). Predicting the implementation impact of RAPIDx AI in south Australian emergency departments. South Australian Cardiovascular Showcase.
Pinero de Plaza, M. A., Lambrakis, K., Marmolejo Ramos, F., Beleigoli, A., Clark, R., McMillan, P., Morton, E., Khan, E., Visvanathan, R., Chew, D., Kitson, A., Hendriks, J., & Barrera Causil, C. (2023). PROLIFERATE_AI: A prediction modelling method to evaluate artificial intelligence in meeting end‐user‐centric goals around better cardiac care. Heart, Lung & Circulation, 32, S364–S365.
Pinero de Plaza, M. A., Taghian, M., Marmolejo‐Ramos, F., Barrera‐Causil, C. J., & Hall, J. (2021). Investigating salience strategies to counteract obesity. Health Promotion International, 36(6), 1539–1553.
Pinero de Plaza, M. A., Yadav, L., & Kitson, A. (2023). Co‐designing, measuring, and optimizing innovations and solutions within complex adaptive health systems. Frontiers in Health Services, 3, 1154614.
Rai, S. S., Peters, R. M., Syurina, E. V., Irwanto, I., Naniche, D., & Zweekhorst, M. (2020). Intersectionality and health‐related stigma: Insights from experiences of people living with stigmatized health conditions in Indonesia. International Journal for Equity in Health, 19(1), 1–15.
Ratcliff, C. G., Vinson, C., Milbury, K., & Badr, H. (2018). Moving family interventions into the real world: What matters to oncology stakeholders? Journal of Psychosocial Oncology, 37(2), 264–284.
Resurrección, D. M., Moreno‐Peral, P., Gómez‐Herranz, M., Rubio‐Valera, M., Pastor, L., Caldas de Almeida, J. M., & Motrico, E. (2019). Factors associated with non‐participation in and dropout from cardiac rehabilitation programmes: A systematic review of prospective cohort studies. European Journal of Cardiovascular Nursing, 18(1), 38–47.
Sangsaikaew, A., Junsevg, K., Thong‐On, R., & Pilayon, B. (2022). Perceived factors contributing to the care provided by informal (family) and formal caregivers of older adults with noncommunicable diseases in rural communities: A qualitative focus group study. Journal of Education Health Promotion, 11(1), 228.
Sawa, R., Saitoh, M., Morisawa, T., Takahashi, T., Morimoto, Y., Kagiyama, N., Kasai, T., Dinesen, B., & Daida, H. (2022). The potential application of commercially available active video games to cardiac rehabilitation: Scoping review. JMIR Serious Games, 10(1), e31974.
Sawyer, K. N., Brown, F., Christensen, R., Damino, C., Newman, M. M., & Kurz, M. C. (2016). Surviving sudden cardiac arrest: A pilot qualitative survey study of survivors. Therapeutic Hypothermia and Temperature Management, 6(2), 76–84.
Sloots, M., Scheppers, E., van de Weg, F. B., Dekker, J., Bartels, E. A., Geertzen, J., & Dekker, J. (2009). Higher dropout rate in non‐native patients than in native patients in rehabilitation in The Netherlands. International Journal of Rehabilitation Research, 32(3), 232–237.
Smith, K. M., Harkness, K., & Arthur, H. M. (2006). Predicting cardiac rehabilitation enrollment: The role of automatic physician referral. European Journal of Cardiovascular Prevention & Rehabilitation, 13(1), 60–66.
Sniehotta, F. F., Scholz, U., & Schwarzer, R. (2006). Action plans and coping plans for physical exercise: A longitudinal intervention study in cardiac rehabilitation. British Journal of Health Psychology, 11(1), 23–37.
Son, Y.‐J., Lee, S.‐K., Nam, S., & Shim, J. L. (2018). Exploring research topics and trends in nursing‐related communication in intensive care units using social network analysis. CIN: Computers, Informatics, Nursing, 36(8), 383–392.
Stoicea, N., You, T., Eiterman, A., Hartwell, C., Davila, V., Marjoribanks, S., Florescu, C., Bergese, S. D., & Rogers, B. (2017). Perspectives of post‐acute transition of care for cardiac surgery patients. Frontiers in Cardiovascular Medicine, 4, 4.
Suebkinorn, O., Ramos, J. S., Grace, S. L., Gebremichael, L. G., Bulamu, N., Pinero de Plaza, M. A., Dafny, H. A., Pearson, V., Hines, S., Dalleck, L. C., Coombes, J. S., Hendriks, J. M., Clark, R. A., & Beleigoli, A. (2023). Effectiveness of alternative versus traditional exercises on cardiac rehabilitation program utilization in women with or at high risk of cardiovascular disease: A systematic review protocol. JBI Evidence Synthesis, 22, 281–291.
Takroni, M., Thow, M., Ellis, B., & Seenan, C. (2022). Home‐based versus outpatient‐based cardiac rehabilitation post–coronary artery bypass graft surgery. The Journal of Cardiovascular Nursing, 37(3), 274–280.
Tapi Nzali, M. D., Bringay, S., Lavergne, C., Mollevi, C., & Opitz, T. (2017). What patients can tell us: Topic analysis for social media on breast cancer. JMIR Medical Informatics, 5(3), e23.
Thompson, D. R., & Clark, A. M. (2009). Cardiac rehabilitation: Into the future. Heart, 95(23), 1897–1900.
Tieu, M., Lawless, M., Hunter, S. C., Pinero de Plaza, M. A., Darko, F., Mudd, A., Yadav, L., & Kitson, A. (2023). Wicked problems in a post‐truth political economy: A dilemma for knowledge translation. Humanities and Social Sciences Communications, 10(1), 280.
Tieu, M., Mudd, A., Conroy, T., Pinero de Plaza, M. A., & Kitson, A. (2022). The trouble with personhood and person‐centred care. Nursing Philosophy, 23, e12381.
Tijsen, L. M. J., Derksen, E., Achterberg, W. P., & Buijck, B. (2023). A qualitative study exploring rehabilitant and informal caregiver perspectives of a challenging rehabilitation environment for geriatric rehabilitation. Journal of Patient Experience, 10, 237437352311515.
Valencia, H., Savage, P. D., & Ades, P. A. (2011). Cardiac rehabilitation participation in underserved populations. Journal of Cardiopulmonary Rehabilitation and Prevention, 31(4), 203–210.
Verbakel, E. (2017). How to understand informal caregiving patterns in Europe? The role of formal long‐term care provisions and family care norms. Scandinavian Journal of Public Health, 46(4), 436–447.
Voldbjerg, S. L., Laugesen, B., Bahnsen, I. B., Jørgensen, L., Sørensen, I. M., Grønkjær, M., & Sørensen, E. E. (2018). Integrating the fundamentals of care framework in baccalaureate nursing education: An example from a nursing school in Denmark. Journal of Clinical Nursing, 27, 2506–2515.
Wagner, M., & Brandt, M. (2017). Long‐term care provision and the well‐being of spousal caregivers: An analysis of 138 European regions. The Journals of Gerontology. Series B, Psychological Sciences and Social Sciences, 73(4), e24–e34.
Wang, R., Duan, G.‐x., Xu, H., Su, Y., Li, J., Liao, L., & Liao, D. (2022). Analysis on the effect of the rehabilitation intervention‐centered targeted nursing model on the cardiac function recovery and negative emotions in patients with acute myocardial infarction. Journal of Healthcare Engineering, 2022, 1–6.
WHO. (2018). Continuity and coordination of care: a practice brief to support implementation of the WHO Framework on integrated people‐centred health services. WHO.
Wiles, L. K., Kay, D., Luker, J. A., Worley, A., Austin, J., Ball, A., Bevan, A., Cousins, M., Dalton, S., Hodges, E., Horvat, L., Kerrins, E., Marker, J., McKinnon, M., McMillan, P., Pinero de Plaza, M. A., Smith, J., Yeung, D., & Hillier, S. L. (2022). Consumer engagement in health care policy, research and services: A systematic review and meta‐analysis of methods and effects. PLoS One, 17(1), e0261808.
Willems, S., Van Roy, K., & De Maeseneer, J. (2016). Educating health professionals to address the social determinants of health. In A framework for educating health professionals to address the social determinants of health. National Academies Press (US).
Wolf, A., Vella, R., & Fors, A. (2019). The impact of person‐Centred care on patients' care experiences in relation to educational level after acute coronary syndrome: Secondary outcome analysis of a randomised controlled trial. European Journal of Cardiovascular Nursing, 18(4), 299–308.
Yancy, C. W., Wang, T. Y., Ventura, H. O., Piña, I. L., Vijayaraghavan, K., Ferdinand, K. C., Hall, L. L., & credo Advisory Group. (2011). The coalition to reduce racial and ethnic disparities in cardiovascular disease outcomes (credo). Journal of the American College of Cardiology, 57(3), 245–252.

Auteurs

Maria Alejandra Pinero de Plaza (MA)

Caring Futures Institute, College Nursing and Health Sciences, Flinders University, Adelaide, South Australia, Australia.
The Mparntwe Centre for Evidence in Health, Flinders University: A JBI Centre of Excellence, Alice Springs, Northwest Territories, Australia.

Claire Hutchinson (C)

Caring Futures Institute, College Nursing and Health Sciences, Flinders University, Adelaide, South Australia, Australia.

Alline Beleigoli (A)

Caring Futures Institute, College Nursing and Health Sciences, Flinders University, Adelaide, South Australia, Australia.

Matthew Tieu (M)

Caring Futures Institute, College Nursing and Health Sciences, Flinders University, Adelaide, South Australia, Australia.
Adelaide Health Simulation, The University of Adelaide, Adelaide, South Australia, Australia.

Michael Lawless (M)

Caring Futures Institute, College Nursing and Health Sciences, Flinders University, Adelaide, South Australia, Australia.

Tiffany Conroy (T)

Caring Futures Institute, College Nursing and Health Sciences, Flinders University, Adelaide, South Australia, Australia.
The Mparntwe Centre for Evidence in Health, Flinders University: A JBI Centre of Excellence, Alice Springs, Northwest Territories, Australia.

Rebecca Feo (R)

Caring Futures Institute, College Nursing and Health Sciences, Flinders University, Adelaide, South Australia, Australia.

Robyn A Clark (RA)

Caring Futures Institute, College Nursing and Health Sciences, Flinders University, Adelaide, South Australia, Australia.
The Mparntwe Centre for Evidence in Health, Flinders University: A JBI Centre of Excellence, Alice Springs, Northwest Territories, Australia.

Hila Dafny (H)

Caring Futures Institute, College Nursing and Health Sciences, Flinders University, Adelaide, South Australia, Australia.

Penelope McMillan (P)

Health Consumer Advocate with Lived Experience in Multimorbidity Disease Management, Adelaide, South Australia, Australia.

Regina Allande-Cussó (R)

Nursing Department, Nursing, Physiotherapy and Podiatry School, University of Seville, Seville, Spain.

Alison A Kitson (AA)

Caring Futures Institute, College Nursing and Health Sciences, Flinders University, Adelaide, South Australia, Australia.

Classifications MeSH