Approaches to improving mental healthcare for autistic people: systematic review.

Autism spectrum condition adaptations adults mental health mental healthcare

Journal

BJPsych open
ISSN: 2056-4724
Titre abrégé: BJPsych Open
Pays: England
ID NLM: 101667931

Informations de publication

Date de publication:
01 Aug 2024
Historique:
medline: 1 8 2024
pubmed: 1 8 2024
entrez: 1 8 2024
Statut: epublish

Résumé

Autistic people have a high likelihood of developing mental health difficulties but a low chance of receiving effective mental healthcare. Therefore, there is a need to identify and examine strategies to improve mental healthcare for autistic people. To identify strategies that have been implemented to improve access, experiences of care and mental health outcomes for autistic adults, and to examine evidence on their acceptability, feasibility and effectiveness. A co-produced systematic review was conducted. MEDLINE, PsycINFO, CINHAL, medRxiv and PsyArXiv were searched. We included all study designs reporting acceptability or feasibility outcomes and empirical quantitative study designs reporting effectiveness outcomes. Data were synthesised using a narrative approach. A total of 30 articles were identified. These included 16 studies of adapted mental health interventions, eight studies of service improvements and six studies of bespoke mental health interventions developed for autistic people. There was no conclusive evidence on effectiveness. However, most bespoke and adapted approaches appeared to be feasible and acceptable. Identified adaptations appeared to be acceptable and feasible, including increasing knowledge and detection of autism, providing environmental adjustments and communication accommodations, accommodating individual differences and modifying the structure and content of interventions. Many identified strategies are feasible and acceptable, and can be readily implemented in services with the potential to make mental healthcare more suitable for autistic people, but important research gaps remain. Future research should address these and investigate a co-produced package of service improvement measures.

Sections du résumé

BACKGROUND BACKGROUND
Autistic people have a high likelihood of developing mental health difficulties but a low chance of receiving effective mental healthcare. Therefore, there is a need to identify and examine strategies to improve mental healthcare for autistic people.
AIMS OBJECTIVE
To identify strategies that have been implemented to improve access, experiences of care and mental health outcomes for autistic adults, and to examine evidence on their acceptability, feasibility and effectiveness.
METHOD METHODS
A co-produced systematic review was conducted. MEDLINE, PsycINFO, CINHAL, medRxiv and PsyArXiv were searched. We included all study designs reporting acceptability or feasibility outcomes and empirical quantitative study designs reporting effectiveness outcomes. Data were synthesised using a narrative approach.
RESULTS RESULTS
A total of 30 articles were identified. These included 16 studies of adapted mental health interventions, eight studies of service improvements and six studies of bespoke mental health interventions developed for autistic people. There was no conclusive evidence on effectiveness. However, most bespoke and adapted approaches appeared to be feasible and acceptable. Identified adaptations appeared to be acceptable and feasible, including increasing knowledge and detection of autism, providing environmental adjustments and communication accommodations, accommodating individual differences and modifying the structure and content of interventions.
CONCLUSION CONCLUSIONS
Many identified strategies are feasible and acceptable, and can be readily implemented in services with the potential to make mental healthcare more suitable for autistic people, but important research gaps remain. Future research should address these and investigate a co-produced package of service improvement measures.

Identifiants

pubmed: 39087319
doi: 10.1192/bjo.2024.707
pii: S2056472424007075
doi:

Types de publication

Journal Article Review

Langues

eng

Pagination

e128

Subventions

Organisme : National Institute for Health and Care Research
ID : PR-PRU-0916-22003

Auteurs

Sofia Loizou (S)

National Institute for Health and Care Research (NIHR) Mental Health Policy Research Unit, King's College London, UK.

Tamara Pemovska (T)

NIHR Mental Health Policy Research Unit, Division of Psychiatry, University College London, UK.

Theodora Stefanidou (T)

NIHR Mental Health Policy Research Unit, Division of Psychiatry, University College London, UK.

Una Foye (U)

National Institute for Health and Care Research (NIHR) Mental Health Policy Research Unit, King's College London, UK.

Ruth Cooper (R)

National Institute for Health and Care Research (NIHR) Mental Health Policy Research Unit, King's College London, UK.

Ariana Kular (A)

NIHR Mental Health Policy Research Unit, Division of Psychiatry, University College London, UK.

Anna Greenburgh (A)

NIHR Mental Health Policy Research Unit, Division of Psychiatry, University College London, UK.

Helen Baldwin (H)

NIHR Mental Health Policy Research Unit, Division of Psychiatry, University College London, UK.

Jessica Griffiths (J)

National Institute for Health and Care Research (NIHR) Mental Health Policy Research Unit, King's College London, UK.

Katherine R K Saunders (KRK)

National Institute for Health and Care Research (NIHR) Mental Health Policy Research Unit, King's College London, UK.

Phoebe Barnett (P)

NIHR Mental Health Policy Research Unit, Division of Psychiatry, University College London, UK; Centre for Outcomes Research and Effectiveness, Research Department of Clinical, Educational and Health Psychology, University College London, UK; and National Collaborating Centre for Mental Health, Royal College of Psychiatrists, London, UK.

Matilda Minchin (M)

Division of Psychiatry, University College London, UK.

Gráinne Brady (G)

Division of Psychiatry, University College London, UK.

Nafiso Ahmed (N)

NIHR Mental Health Policy Research Unit, Division of Psychiatry, University College London, UK.

Jennie Parker (J)

NIHR Mental Health Policy Research Unit Lived Experience Working Group, Division of Psychiatry, University College London, UK; and School of Health and Psychological Sciences, City, University of London, UK.

Beverley Chipp (B)

NIHR Mental Health Policy Research Unit Lived Experience Working Group, Division of Psychiatry, University College London, UK.

Rachel R Olive (RR)

NIHR Mental Health Policy Research Unit Lived Experience Working Group, Division of Psychiatry, University College London, UK.

Robin Jackson (R)

Lancaster and Morecambe Child and Adolescent Mental Health Services, Lancashire and South Cumbria NHS Foundation Trust, Morecambe, UK; and University of Wolverhampton, UK.

Amanda Timmerman (A)

Department of Clinical, Educational and Health Psychology, University College London, UK.

Suzi Sapiets (S)

Tizard Centre, University of Kent, UK.

Eva Driskell (E)

NHS England, London, UK.

Bethany Parsons (B)

NHS England, London, UK.

Debbie Spain (D)

NHS England, London, UK.

Vaso Totsika (V)

Division of Psychiatry, University College London, UK.

Will Mandy (W)

Department of Clinical, Educational and Health Psychology, University College London, UK.

Richard Pender (R)

Department of Clinical, Educational and Health Psychology, University College London, UK.

Philippa Clery (P)

Division of Psychiatry, University College London, UK; and Camden and Islington NHS Foundation Trust, London, UK.

Kylee Trevillion (K)

National Institute for Health and Care Research (NIHR) Mental Health Policy Research Unit, King's College London, UK.

Brynmor Lloyd-Evans (B)

NIHR Mental Health Policy Research Unit, Division of Psychiatry, University College London, UK.

Alan Simpson (A)

National Institute for Health and Care Research (NIHR) Mental Health Policy Research Unit, King's College London, UK.

Sonia Johnson (S)

NIHR Mental Health Policy Research Unit, Division of Psychiatry, University College London, UK; and Camden and Islington NHS Foundation Trust, London, UK.

Classifications MeSH