Optimising healthcare transition of adolescents and young adults to adult care: a perspective statement of the Italian Society of Obesity.
Adolescence
Health care transition
Obesity
Youth
Journal
Eating and weight disorders : EWD
ISSN: 1590-1262
Titre abrégé: Eat Weight Disord
Pays: Germany
ID NLM: 9707113
Informations de publication
Date de publication:
04 Aug 2024
04 Aug 2024
Historique:
received:
16
05
2024
accepted:
10
07
2024
medline:
4
8
2024
pubmed:
4
8
2024
entrez:
4
8
2024
Statut:
epublish
Résumé
The transition to adult health care (HCT, Health Care Transition), is the purposeful, planned movement of patients from paediatric to adult services. For the adolescent living with obesity (ALwO), the HCT represents a crucial window for effective intervention that can help improve body weight, adiposopathy, and metabolic complications. Nevertheless, no transition guidelines, models, and tools have been developed for these patients. The present statement of the Italian Society of Obesity examines the critical transition of ALwO from paediatric to adult healthcare. It synthesises current knowledge and identifies gaps in HCT of ALwO. Drawing on successful practices and evidence-based interventions worldwide, the paper explores challenges, including disparities and barriers, while advocating for patient and family involvement. Additionally, it discusses barriers and perspectives within the Italian health care scenario. The need for specialised training for healthcare providers and the impact of transition on healthcare policies are also addressed. The conclusions underscore the significance of well-managed transitions. The SIO recognises that without proper support during this transition, ALwOs risk facing a gap in healthcare delivery, exacerbating their condition, and increasing the likelihood of complications. Addressing this gap requires concerted efforts to develop effective transition models, enhance healthcare provider awareness, and ensure equitable access to care for all individuals affected by obesity. The document concludes by outlining avenues for future research and improvement.
Identifiants
pubmed: 39097845
doi: 10.1007/s40519-024-01678-0
pii: 10.1007/s40519-024-01678-0
doi:
Types de publication
Journal Article
Langues
eng
Sous-ensembles de citation
IM
Pagination
51Subventions
Organisme : Ministero dell'Università e della Ricerca
ID : Current Research Funds
Informations de copyright
© 2024. The Author(s).
Références
World Health Organization. Regional Office for Europe (2022) WHO European Regional Obesity Report 2022. World Health Organization. Regional Office for Europe. https://iris.who.int/handle/10665/353747
Pedicelli S, Fintini D, Ravà L, Inzaghi E, Deodati A, Spreghini MR, Bizzarri C, Mariani M, Cianfarani S, Cappa M, Manco M (2022) Prevalence of prediabetes in children and adolescents by class of obesity. Pediatr Obes 17(7):e12900. https://doi.org/10.1111/ijpo.12900
doi: 10.1111/ijpo.12900
pubmed: 35144324
pmcid: 9286831
Freedman DS, Lawman HG, Galuska DA, Goodman AB, Berenson GS (2018) Tracking and variability in childhood levels of BMI: the Bogalusa Heart Study. Obesity 26(7):1197–1202. https://doi.org/10.1002/oby.22199
doi: 10.1002/oby.22199
pubmed: 29888429
Tirosh A, Shai I, Afek A, Dubnov-Raz G, Ayalon N, Gordon B, Derazne E, Tzur D, Shamis A, Vinker S, Rudich A (2011) Adolescent BMI trajectory and risk of diabetes versus coronary disease. N Engl J Med 364(14):1315–1325. https://doi.org/10.1056/nejmoa1006992
doi: 10.1056/nejmoa1006992
pubmed: 21470009
pmcid: 4939259
Juonala M, Magnussen CG, Berenson GS, Venn A, Burns TL, Sabin MA, Srinivasan SR, Daniels SR, Davis PH, Chen W, Sun C, Cheung M, Viikari JS, Dwyer T, Raitakari OT (2011) Childhood adiposity, adult adiposity, and cardiovascular risk factors. N Engl J Med 365(20):1876–1885. https://doi.org/10.1056/nejmoa1010112
doi: 10.1056/nejmoa1010112
pubmed: 22087679
Bjerregaard LG et al (2018) Change in overweight from childhood to early adulthood and risk of type 2 diabetes. N Engl J Med 378:1302–1312. https://doi.org/10.1056/nejmoa1713231
doi: 10.1056/nejmoa1713231
pubmed: 29617589
Valerio G, Maffeis C, Saggese G, Ambruzzi MA, Balsamo A, Bellone S, Bergamini M, Bernasconi S, Bona G, Calcaterra V, Canali T, Caroli M, Chiarelli F, Corciulo N, Crinò A, Di Bonito P, Di Pietrantonio V, Di Pietro M, Di Sessa A, Diamanti A, Doria M, Fintini D, Franceschi R, Franzese A, Giussani M, Grugni G, Iafusco D, Iughetti L, Lamborghini A, Licenziati MR, Limauro R, Maltoni G, Manco M, Reggiani LM, Marcovecchio L, Marsciani A, Del Giudice EM, Morandi A, Morino G, Moro B, Nobili V, Perrone L, Picca M, Pietrobelli A, Privitera F, Purromuto S, Ragusa L, Ricotti R, Santamaria F, Sartori C, Stilli S, Street ME, Tanas R, Trifiró G, Umano GR, Vania A, Verduci E, Zito E (2018) Diagnosis, treatment and prevention of pediatric obesity: consensus position statement of the Italian Society for Pediatric Endocrinology and Diabetology and the Italian Society of Pediatrics. Ital J Pediatr 44(1):88. https://doi.org/10.1186/s13052-018-0525-6
doi: 10.1186/s13052-018-0525-6
pubmed: 30064525
pmcid: 6069785
Fornari E, Maffeis C (2019) Treatment of metabolic syndrome in children. Front Endocrinol 10:702. https://doi.org/10.3389/fendo.2019.00702
doi: 10.3389/fendo.2019.00702
World Obesity Atlas (2024) https://data.worldobesity.org/publications/WOF-Obesity-Atlas-v7.pdf . Accessed 25 Mar 2024
Sweeting H, Smith E, Neary J, Wright C (2016) ‘Now I care’: a qualitative study of how overweight adolescents managed their weight in the transition to adulthood. BMJ Open. https://doi.org/10.1136/bmjopen-2015-010774
doi: 10.1136/bmjopen-2015-010774
pubmed: 27852721
pmcid: 5128897
Halford JCG, Bereket A, Bin-Abbas B, Chen W, Fernández-Aranda F, Garibay Nieto N, López Siguero JP, Maffeis C, Mooney V, Osorto CK, Reynoso R, Rhie YJ, Toro-Ramos M, Baur LA (2022) Misalignment among adolescents living with obesity, caregivers, and healthcare professionals: ACTION Teens global survey study. Pediatr Obes. https://doi.org/10.1111/ijpo.12957
doi: 10.1111/ijpo.12957
pubmed: 35838551
Blum RW, Garell D, Hodgman CH, Jorissen TW, Okinow NA, Orr DP, Slap GB (1993) Transition from child-centered to adult health-care systems for adolescents with chronic conditions: a position paper of the Society for Adolescent Medicine. J Adolesc Health. https://doi.org/10.1016/1054-139x(93)90143-d
doi: 10.1016/1054-139x(93)90143-d
pubmed: 8312295
American Academy of Pediatrics, American Academy of Family Physicians, American College of Physicians, Transitions Clinical Report Authoring (2011) Supporting the health care transition from adolescence to adulthood in the medical home. Pediatrics 128(1):182–200. https://doi.org/10.1542/peds.2011-0969
doi: 10.1542/peds.2011-0969
Casado E, Gómez-Alonso C, Pintos-Morell G, Bou-Torrent R, Barreda-Bonis AC, Torregrosa JV, Broseta-Monzó JJ, Arango-Sancho P, Chocrón-de-Benzaquen S, Olmedilla-Ishishi Y, Soler-López B (2023) Transition of patients with metabolic bone disease from paediatric to adult healthcare services: current situation and proposals for improvement. Orphanet J Rare Dis 18(1):245
doi: 10.1186/s13023-023-02856-6
pubmed: 37644568
pmcid: 10463506
Hobart CB, Phan H (2019) Pediatric-to-adult healthcare transitions: current challenges and recommended practices. Am J Health Syst Pharm. https://doi.org/10.1093/ajhp/zxz165
doi: 10.1093/ajhp/zxz165
pubmed: 31532501
Ragnhildstveit A, Tuteja N, Seli P, Smart L, Uzun N, Bass LC, Miranda AC, Ford TJ, Neufeld SAS (2024) Transitions from child and adolescent to adult mental health services for eating disorders: an in-depth systematic review and development of a transition framework. J Eat Disord 12(1):36
doi: 10.1186/s40337-024-00984-3
pubmed: 38454528
pmcid: 10921655
Cabrera Fernandez DL, Lopez KN, Bravo-Jaimes K, Mackie AS (2024) The impact of social determinants of health on transition from pediatric to adult cardiology care. Can J Cardiol 40(6):1043–1055. https://doi.org/10.1016/j.cjca.2024.03.023
doi: 10.1016/j.cjca.2024.03.023
pubmed: 38583706
Simon SL, Phimphasone-Brady P, McKenney KM, Gulley LD, Bonny AE, Moore JM, Torres-Zegarra C, Cree MG (2024) Comprehensive transition of care for polycystic ovary syndrome from adolescence to adulthood. Lancet Child Adolesc Health 8(6):443–455. https://doi.org/10.1016/S2352-4642(24)00019-1
doi: 10.1016/S2352-4642(24)00019-1
pubmed: 38552655
White PH, Cooley WC, for the Transitions Clinical Report Authoring Group, American Academy of Pediatrics, American Academy of Family Physicians, American College of Physicians (2018) Supporting the health care transition from adolescence to adulthood in the medical home. Pediatrics. https://doi.org/10.1542/peds.2018-3610
doi: 10.1542/peds.2018-3610
pubmed: 30348754
pmcid: 5850907
Lebrun-Harris LA, McManus MA, Ilango SM et al (2018) Transition planning among US youth with and without special health care needs. Pediatrics. https://doi.org/10.1542/peds.2018-0194
doi: 10.1542/peds.2018-0194
pubmed: 30224366
Foster BJ (2015) Heightened graft failure risk during emerging adulthood and transition to adult care. Pediatr Nephrol. https://doi.org/10.1007/s00467-014-2859-7
doi: 10.1007/s00467-014-2859-7
pubmed: 24890339
Majumdar S (2013) The adolescent with sickle cell disease. Adolesc Med State Art Rev 24(1):295–306, xv
pubmed: 23705531
Wafa S, Nakhla M (2015) Improving the transition from pediatric to adult diabetes healthcare: a literature review. Can J Diabetes 39(6):520–528. https://doi.org/10.1016/j.jcjd.2015.08.003
doi: 10.1016/j.jcjd.2015.08.003
pubmed: 26498219
Chaudhry SR, Keaton M, Nasr SZ (2013) Evaluation of a cystic fibrosis transition program from pediatric to adult care. Pediatr Pulmonol 48(7):658–665. https://doi.org/10.1002/ppul.22647
doi: 10.1002/ppul.22647
pubmed: 22888094
Bohun CM, Woods P, Winter C et al (2016) Challenges of intra-institutional transfer of care from paediatric to adult congenital cardiology: the need for retention as well as transition. Cardiol Young 26(2):327–333. https://doi.org/10.1017/s1047951115000220
doi: 10.1017/s1047951115000220
pubmed: 25865899
Luque Ramos A, Hoffmann F, Albrecht K et al (2017) Transition to adult rheumatology care is necessary to maintain DMARD therapy in young people with juvenile idiopathic arthritis. Semin Arthritis Rheum 47(2):269–275. https://doi.org/10.1016/j.semarthrit.2017.05.003
doi: 10.1016/j.semarthrit.2017.05.003
pubmed: 28583690
Montano CB, Young J (2012) Discontinuity in the transition from pediatric to adult health care for patients with attention-deficit/hyperactivity disorder. Postgrad Med 124(5):23–32. https://doi.org/10.3810/pgm.2012.09.2591
doi: 10.3810/pgm.2012.09.2591
pubmed: 23095423
Szymanski KM, Whittam B, Misseri R et al (2017) A case of base rate bias, or are adolescents at a higher risk of developing complications after catheterizable urinary channel surgery. J Pediatr Urol 13(2):184. https://doi.org/10.1016/j.jpurol.2016.12.002
doi: 10.1016/j.jpurol.2016.12.002
Wojciechowski EA, Hurtig A, Dorn L (2002) A natural history study of adolescents and young adults with sickle cell disease as they transfer to adult care: a need for case management services. J Pediatr Nurs 17(1):18–27. https://doi.org/10.1053/jpdn.2002.30930
doi: 10.1053/jpdn.2002.30930
pubmed: 11891491
Barr NG, Longo CJ, Embrett MG et al (2017) The transition from youth to adult mental health services and the economic impact on youth and their families. Healthc Manage Forum 30(6):283–288. https://doi.org/10.1177/0840470417709579
doi: 10.1177/0840470417709579
pubmed: 29061073
Cohen E, Gandhi S, Toulany A et al (2016) Health care use during transfer to adult care among youth with chronic conditions. Pediatrics. https://doi.org/10.1542/peds.2015-2734
doi: 10.1542/peds.2015-2734
pubmed: 27940730
pmcid: 4983061
Mosquera RA, Avritscher EB, Samuels CL et al (2014) Effect of an enhanced medical home on serious illness and cost of care among high-risk children with chronic illness: a randomized clinical trial. JAMA 312(24):2640–2648. https://doi.org/10.1001/jama.2014.16419
doi: 10.1001/jama.2014.16419
pubmed: 25536255
Gabriel P, McManus M, Rogers K, White P (2017) Outcome evidence for structured pediatric to adult health care transition interventions: a systematic review. J Pediatr 188:263–269. https://doi.org/10.1016/j.jpeds.2017.05.066
doi: 10.1016/j.jpeds.2017.05.066
pubmed: 28668449
American Academy of Pediatrics, American Academy of Family Physicians, American College of Physicians-American Society of Internal Medicine (2002) A consensus statement on health care transitions for young adults with special health care needs. Pediatrics 110(6, pt 2):1304–1306
doi: 10.1542/peds.110.S3.1304
Le Roux E, Menesguen F, Tejedor I et al (2021) Transition of young adults with endocrine and metabolic diseases: the ‘TRANSEND’ cohort. Endocr Connect 10:21–28. https://doi.org/10.1530/EC-20-0520
doi: 10.1530/EC-20-0520
pubmed: 33263561
Campbell F, Biggs K, Aldiss SK et al (2016) Transition of care for adolescents from pediatric services to adult health services. Cochrane Database Syst Rev 4:CD009794. https://doi.org/10.1002/14651858.cd009794.pub2
doi: 10.1002/14651858.cd009794.pub2
pubmed: 27128768
Rosen DS, Blum RW, Britto M, Sawyer SM, Siegel DM, Siegel DM Society for Adolescent Medicine (2003) Transition to adult health care for adolescents and young adults with chronic conditions: position paper of the Society for Adolescent Medicine. J Adolesc Health 33(4):309–311. https://doi.org/10.1016/s1054-139x(03)00208-8
doi: 10.1016/s1054-139x(03)00208-8
pubmed: 14519573
Shrewsbury VA, Baur LA, Nguyen B, Steinbeck KS (2014) Transition to adult care in adolescent obesity: a systematic review and why it is a neglected topic. Int J Obes 38(4):475–479. https://doi.org/10.1038/ijo.2013.215
doi: 10.1038/ijo.2013.215
Poitou C, Holland A, Höybye C, de Graaff LCG, Bottius S, Otterlei B, Tauber M (2022) The transition from pediatric to adult care in individuals with Prader–Willi syndrome. Endocr Connect. https://doi.org/10.1530/erc-22-0373
doi: 10.1530/erc-22-0373
pubmed: 36347048
pmcid: 9782397
American College of Pediatrics. Condition-specific tools. https://doi.org/10.1542/peds.2022-057267L . https://www.acponline.org/clinical-information/high-value-care/resources-for-clinicians/pediatric-to-adult-care-transitionsinitiative/condition-specific-tools . Accessed 29 Jan 2024
Wood DL, Sawicki GS, Miller MD, Smotherman C, Lukens-Bull K, Livingood WC, Ferris M, Kraemer DF (2014) The transition readiness assessment questionnaire (TRAQ): its factor structure, reliability, and validity. Acad Pediatr. https://doi.org/10.1016/j.acap.2014.03.008
doi: 10.1016/j.acap.2014.03.008
pubmed: 24976354
Vakharia JD, Stanley TL (2023) Facilitating the transition from paediatric to adult care in endocrinology: a focus on growth disorders. Curr Opin Endocrinol Diabetes Obes 30(1):32–43. https://doi.org/10.1097/med.0000000000000785
doi: 10.1097/med.0000000000000785
pubmed: 36384873
Cairo SB, Majumdar I, Pryor A, Posner A, Harmon CM, Rothstein DH, Delivery of Surgical Care Committee of the American Academy of Pediatrics Section on Surgery (2018) Challenges in transition of care for pediatric patients after weight-reduction surgery: a systematic review and recommendations for comprehensive care. Obes Surg 28(4):1149–1174. https://doi.org/10.1007/s11695-018-3138-7
doi: 10.1007/s11695-018-3138-7
pubmed: 29427120
Hampl SE, Hassink SG, Skinner AC, Armstrong SC, Barlow SE, Bolling CF, Avila Edwards KC, Eneli I, Hamre R, Joseph MM, Lunsford D, Mendonca E, Michalsky MP, Mirza N, Ochoa ER, Sharifi M, Staiano AE, Weedn AE, Flinn SK, Lindros J, Okechukwu K (2023) Clinical practice guideline for the evaluation and treatment of children and adolescents with obesity. Pediatrics 151(2):e2022060640. https://doi.org/10.1542/peds.2022-060640
doi: 10.1542/peds.2022-060640
pubmed: 36622115
Transitions of Care. www.endocrinetransitions.com . Accessed 15 July 2024
Consensus Statement & Guidelines. https://www.eurospe.org/clinical-practice/clinical-practice-activities/consensus-statement-guidelines/ . Accessed 20 Feb 2024
Singh P, Seth A (2023) Transition of care of pediatric patients with special needs to adult care settings: children with diabetes mellitus and other endocrine disorders. Indian J Pediatr 90(11):1134–1141. https://doi.org/10.1007/s12098-023-04780-w
doi: 10.1007/s12098-023-04780-w
pubmed: 37542570
Farpour-Lambert NJ, Baker JL, Hassapidou M, Holm JC, Nowicka P, O’Malley G, Weiss R (2015) Childhood obesity is a chronic disease demanding specific health care—a position statement from the Childhood Obesity Task Force (COTF) of the European Association for the Study of Obesity (EASO). Obes Facts 8:342–349. https://doi.org/10.1159/000441483
doi: 10.1159/000441483
pubmed: 26469067
pmcid: 5644867
Busetto L, Sbraccia P, Vettor R (2022) Obesity management: at the forefront against disease stigma and therapeutic inertia. Eat Weight Disord 27(2):761–768. https://doi.org/10.1007/s40519-021-01217-1
doi: 10.1007/s40519-021-01217-1
pubmed: 34052990
Donini LM, Dalle Grave R, Caretto A, Lucchin L, Melchionda N, Nisoli E, Sbraccia P, Lenzi A, Cuzzolaro M (2014) From simplicity towards complexity: the Italian multidimensional approach to obesity. Eat Weight Disord 19(3):387–394. https://doi.org/10.1007/s40519-013-0097-9
doi: 10.1007/s40519-013-0097-9
pubmed: 24448995
https://sio-obesita.org/centri-accreditati-sio/ . Accessed 16 May 16 2024
Agenzia Nazionale per i Servizi Sanitari Regionali (2024) Linee di indirizzo per l’attuazione del modello organizzativo delle Case della Comunità Hub. https://www.agenas.gov.it/images/agenas/PNRR/Linee_di_indirizzo_CdC.pdf
SICOB. Società Italiana di Chirurgia dell’OBesità e delle malattie metaboliche. Accessed 16 May 2024
Inge TH, Zeller MH, Jenkins TM et al (2014) Perioperative outcomes of adolescents undergoing bariatric surgery: the Teen-Longitudinal Assessment of Bariatric Surgery (Teen-LABS) study NIH external link. J Am Medl Assoc Pediatr 168(1):47–53
Inge TH, Courcoulas AP, Xanthakos SA (2016) Weight loss and health status after bariatric surgery in adolescents. N Engl J Med 374(20):1989–1990. https://doi.org/10.1056/NEJMc1602007
doi: 10.1056/NEJMc1602007
pubmed: 27192678
Inge TH, Courcoulas AP, Jenkins TM, Michalsky MP, Brandt ML, Xanthakos SA, Dixon JB, Harmon CM, Chen MK, Xie C, Evans ME, Helmrath MA, Teen–LABS Consortium (2019) Five-year outcomes of gastric bypass in adolescents as compared with adults. N Engl J Med 380(22):2136–2145. https://doi.org/10.1056/NEJMoa1813909
doi: 10.1056/NEJMoa1813909
pubmed: 31116917
pmcid: 7345847
Tamborlane WV, Bishai R, Geller D, Shehadeh N, Al-Abdulrazzaq D, Vazquez EM, Karoly E, Troja T, Doehring O, Carter D, Monyak J, Sjöström CD (2022) Once-weekly exenatide in youth with type 2 diabetes. Diabetes Care 45(8):1833–1840. https://doi.org/10.2337/dc21-2275
doi: 10.2337/dc21-2275
pubmed: 35679098
pmcid: 9346995
Kelly AS, Auerbach P, Barrientos-Perez M, Gies I, Hale PM, Marcus C, Mastrandrea LD, Prabhu N, Arslanian S, NN8022-4180 Trial Investigators (2020) A randomized, controlled trial of liraglutide for adolescents with obesity. N Engl J Med 382(22):2117–2128. https://doi.org/10.1056/NEJMoa1916038
doi: 10.1056/NEJMoa1916038
pubmed: 32233338
Weghuber D, Barrett T, Barrientos-Pérez M, Gies I, Hesse D, Jeppesen OK, Kelly AS, Mastrandrea LD, Sørrig R, Arslanian S, STEP TEENS Investigators (2022) Once-weekly semaglutide in adolescents with obesity. N Engl J Med 387(24):2245–2257. https://doi.org/10.1056/NEJMoa2208601
doi: 10.1056/NEJMoa2208601
pubmed: 36322838
pmcid: 9997064
Alman KL, Lister NB, Garnett SP, Gow ML, Aldwell K, Jebeile H (2021) Dietetic management of obesity and severe obesity in children and adolescents: a scoping review of guidelines. Obes Rev 22(1):e13132. https://doi.org/10.1111/obr.13132
doi: 10.1111/obr.13132
pubmed: 32896058
Corsello A, Trovato CM, Di Profio E, Cardile S, Campoy C, Zuccotti G, Verduci E, Diamanti A (2023) Ketogenic diet in children and adolescents: The effects on growth and nutritional status. Pharmacol Res 191:106780. https://doi.org/10.1016/j.phrs.2023.106780
doi: 10.1016/j.phrs.2023.106780
pubmed: 37088260
Gray WN, Schaefer MR, Resmini-Rawlinson A, Wagoner ST (2018) Barriers to transition from pediatric to adult care: a systematic review. J Pediatr Psychol 43(5):488–502. https://doi.org/10.1093/jpepsy/jsx142
doi: 10.1093/jpepsy/jsx142
pubmed: 29190360
Ishizaki Y, Maru M, Higashino H, Katsumoto S, Egawa K, Yanagimoto Y, Nagahama T (2021) The transition of adult patients with childhood-onset chronic diseases from pediatric to adult healthcare systems: a survey of the perceptions of Japanese pediatricians and child health nurses. Biopsychosoc Med 20(6):8. https://doi.org/10.1186/1751-0759-6-8
doi: 10.1186/1751-0759-6-8
Szalda DE, Jimenez ME, Long JE, Ni A, Shea JA, Jan S (2015) Healthcare system supports for young adult patients with pediatric onset chronic conditions: a qualitative study. J Pediatr Nurs 30(1):126–132. https://doi.org/10.1016/j.pedn.2014.09.015
doi: 10.1016/j.pedn.2014.09.015
pubmed: 25450439
Sakurai I, Maru M, Miyamae T, Honda M (2022) Prevalence and barriers to health care transition for adolescent patients with childhood-onset chronic diseases across Japan: a nation-wide cross-sectional survey. Front Pediatr 1(10):956227. https://doi.org/10.1377/hlthaff.27.3.w232
doi: 10.1377/hlthaff.27.3.w232
Colwill JM, Cultice JM, Kruse RL (2008) Will generalist physician supply meet demands of an increasing and aging population? Health Aff 27(3):w232–w241. https://doi.org/10.1377/hlthaff.27.3.w232
doi: 10.1377/hlthaff.27.3.w232
Bowen ME, Henske JA, Potter A (2010) Health care transition in adolescents and young adults with diabetes. Clin Diabetes 28(3):99–106. https://doi.org/10.2337/diaclin.28.3.99
doi: 10.2337/diaclin.28.3.99
Tsamasiros J, Bartsocas CS (2002) Transition of the adolescent from the children’s to the adults’ diabetes clinic. J Pediatr Endocrinol Metab 15(4):363–367. https://doi.org/10.1515/jpem.2002.15.4.363
doi: 10.1515/jpem.2002.15.4.363
pubmed: 12008681
Rapley P, Davidson PM (2010) Enough of the problem: a review of time for health care transition solutions for young adults with a chronic illness. J Clin Nurs 19(3–4):313–323. https://doi.org/10.3233/prm-140269
doi: 10.3233/prm-140269
pubmed: 20500270
Fernandes SM, O’Sullivan-Oliveira J, Landzberg MJ, Khairy P, Melvin P, Sawicki GS, Ziniel S, Kenney LB, Garvey KC, Sobota A, O’Brien R, Nigrovic PA, Sharma N, Fishman LN (2014) Transition and transfer of adolescents and young adults with pediatric onset chronic disease: the patient and parent perspective. J Pediatr Rehabil Med 7(1):43–51. https://doi.org/10.3233/prm-140269
doi: 10.3233/prm-140269
pubmed: 24919937
pmcid: 5727574
Nelson MC, Story M, Larson NI, Neumark-Sztainer D, Lytle LA (2008) Emerging adulthood and college-aged youth: an overlooked age for weight-related behavior change. Obesity 16(10):2205–2211. https://doi.org/10.1038/oby.2008.365
doi: 10.1038/oby.2008.365
pubmed: 18719665
Lawrence JM, Yi-Frazier JP, Black MH, Anderson A, Hood K, Imperatore G, Klingensmith GJ, Naughton M, Mayer-Davis EJ, Seid M, SEARCH for Diabetes in Youth Study Group (2012) Demographic and clinical correlates of diabetes-related quality of life among youth with type 1 diabetes. J Pediatr 161(2):201–272. https://doi.org/10.1016/j.jpeds.2012.01.016
doi: 10.1016/j.jpeds.2012.01.016
pubmed: 22361221
pmcid: 4503360
Sawyer SM, Azzopardi PS, Wickremarathne D, Patton GC (2018) The age of adolescence. Lancet Child Adolesc Health 2(3):223–228. https://doi.org/10.1016/s2352-4642(18)30022-1
doi: 10.1016/s2352-4642(18)30022-1
pubmed: 30169257
Bertelloni S (2011) Adolescentologia Percorsi medici e socio-educativi. Tecniche Nuove Ed., Milano
Lugasi T, Achille M, Stevenson M (2011) Patients’ perspective on factors that facilitate transition from child-centered to adult-centered health care: a theory integrated metasummary of quantitative and qualitative studies. J Adolesc Health 48(5):429–440. https://doi.org/10.1016/j.jadohealth.2010.10.016
doi: 10.1016/j.jadohealth.2010.10.016
pubmed: 21501800
Pape L, Ernst G (2022) Health care transition from pediatric to adult care: an evidence-based guideline. Eur J Pediatr 181(5):1951–1958. https://doi.org/10.1007/s00431-022-04385-z
doi: 10.1007/s00431-022-04385-z
pubmed: 35084548
pmcid: 9056438
Guidi C, Traversa C (2021) Empathy in patient care: from ‘clinical empathy’ to ‘empathic concern.’ Med Health Care Philos 24(4):573–585. https://doi.org/10.1007/s11019-021-10033-4
doi: 10.1007/s11019-021-10033-4
pubmed: 34196934
pmcid: 8557158
Badour B, Bull A, Gupta AA et al (2023) Parental involvement in the transition from paediatric to adult care for youth with chronic illness: a scoping review of the North American Literature. Int J Pediatr. https://doi.org/10.1155/2023/9392040
doi: 10.1155/2023/9392040
pubmed: 38045800
pmcid: 10691897
Colver A, Rapley T, Parr JR et al (2020) Facilitating transition of young people with long-term health conditions from children’s to adults’ healthcare services—implications of a 5-year research programme. Clin Med 20(1):74–80. https://doi.org/10.7861/clinmed.2019-0077
doi: 10.7861/clinmed.2019-0077
Cassidy M, Doucet S, Luke A, Goudreau A, MacNeill L (2022) Improving the transition from paediatric to adult healthcare: a scoping review on the recommendations of young adults with lived experience. BMJ Open. https://doi.org/10.1136/bmjopen-2021-051314
doi: 10.1136/bmjopen-2021-051314
pubmed: 36691138
pmcid: 9806082
Ferris M, Wood D, Ferris M et al (2011) Toward evidence-based health care transition: the health care transition research consortium. Int J Child Adolesc Health 3(4):479–486. https://doi.org/10.3233/prm-140277
doi: 10.3233/prm-140277
Society for Adolescent Health and Medicine (2020) Transition to adulthood for youth with chronic conditions and special health care needs. J Adolesc Health 66(5):631–634. https://doi.org/10.1016/j.jadohealth.2020.02.006
doi: 10.1016/j.jadohealth.2020.02.006
Bert F, Camussi E, Gili R et al (2020) Transitional care: a new model of care from young age to adulthood. Health Policy 124(10):1121–1128. https://doi.org/10.1016/j.healthpol.2020.08.002
doi: 10.1016/j.healthpol.2020.08.002
pubmed: 32843225
Doucet S, Splane J, Luke A et al (2022) Programmes to support paediatric to adult healthcare transitions for youth with complex care needs and their families: a scoping review. Child Care Health Dev 48(5):659–692. https://doi.org/10.1111/cch.12984
doi: 10.1111/cch.12984
pubmed: 35170064
pmcid: 9543843
Lykkeberg B, Noergaard MW, Bjerrum M (2024) Experiences and expectations of parents when young people with congenital heart disease transfer from pediatric to adult care: a qualitative systematic review. J Child Health Care 8:13674935241231024. https://doi.org/10.1177/13674935241231024
doi: 10.1177/13674935241231024
Schwartz LA, Brumley LD, Tuchman LK, Barakat LP, Hobbie WL, Ginsberg JP, Daniel LC, Kazak AE, Bevans K, Deatrick JA (2013) Stakeholder validation of a model of readiness for transition to adult care. JAMA Pediatr 167(10):939–946. https://doi.org/10.1001/jamapediatrics.2013.2223
doi: 10.1001/jamapediatrics.2013.2223
pubmed: 23959392
pmcid: 4289606
Thomsen EL, Esbensen BA, Hanghøj S, Hansson H, Boisen KA (2022) Development of a complex intervention to support parents of adolescents with chronic illness transferring from pediatrics to adult care (ParTNerSTEPs). BMC Health Serv Res 22(1):485. https://doi.org/10.1186/s12913-022-07888-5
doi: 10.1186/s12913-022-07888-5
pubmed: 35413976
pmcid: 9002046
McManus MA, Pollack LR, Cooley WC, McAllister JW, Lotstein D, Strickland B, Mann MY (2013) Current status of transition preparation among youth with special needs in the United States. Pediatrics 131(6):1090–1097. https://doi.org/10.1542/peds.2012-3050
doi: 10.1542/peds.2012-3050
pubmed: 23669518
Sharma N, O’Hare K, Antonelli RC, Sawicki GS (2014) Transition care: future directions in education, health policy, and outcomes research. Acad Pediatr 14(2):120–127. https://doi.org/10.1016/j.acap.2013.11.007
doi: 10.1016/j.acap.2013.11.007
pubmed: 24602574
pmcid: 4098714
Volertas SD, Rossi-Foulkes R (2017) Using quality improvement in resident education to improve transition care. Pediatr Ann 46(5):e203–e206. https://doi.org/10.3928/19382359-20170426-01
doi: 10.3928/19382359-20170426-01
pubmed: 28489227
Kuo AA, Ciccarelli MR, Sharma N, Lotstein DS (2018) A health care transition curriculum for primary care residents: identifying goals and objectives. Pediatrics 141(Suppl 4):S346–S354. https://doi.org/10.1542/peds.2016-4300l
doi: 10.1542/peds.2016-4300l
pubmed: 29610416
Health Care Transition for Adolescents and Young Adults (2022) An Online Video CME/CEU Series Available at https://www.hscsnlearning.org/transition/ . Accessed 10 Feb 2024
Education & Training for Health Care Professionals. https://www.floridahats.org/education-training-for-health-care-professionals/ . Accessed 10 Feb 2024
Esposito S, Rosafio C, Antodaro F, Argentiero A, Bassi M, Becherucci P, Bonsanto F, Cagliero A, Cannata G, Capello F, Cardinale F, Chiriaco T, Consolaro A, Dessì A, Di Mauro G, Fainardi V, Fanos V, Guarino A, Li Calzi G, Lodi E, Maghnie M, Manfredini L, Malorgio E, Minuto N, Modena MG, Montori R, Moscatelli A, Patrone E, Pescio E, Poeta M, Ravelli A, Spelta M, Suppiej A, Vai S, Villa L, Zanini R, Botti R, Gaddi AV (2023) Use of telemedicine healthcare systems in children and adolescents with chronic disease or in transition stages of life: consensus document of the Italian Society of Telemedicine (SIT), of the Italian Society of Preventive and Social Pediatrics (SIPPS), of the Italian Society of Pediatric Primary Care (SICuPP), of the Italian Federation of Pediatric Doctors (FIMP) and of the Syndicate of Family Pediatrician Doctors (SIMPeF). J Pers Med 13(2):235. https://doi.org/10.3390/jpm13020198
doi: 10.3390/jpm13020198
pubmed: 36836469
pmcid: 9965862
Apply the (MyTransition) App In Transition (ApplyIT). https://clinicaltrials.gov/study/NCT03188224 . Accessed 15 Feb 15 2024
South K, George M, Smaldone A (2022) Gaps in transition readiness measurement: a comparison of instruments to a conceptual model. J Transit Med 4(1):20220002. https://doi.org/10.1515/jtm-2022-0002
doi: 10.1515/jtm-2022-0002
pubmed: 35979374
pmcid: 9335701
McManus M, White P, Borden C. Incorporating Pediatric-To-Adult Transition into NCQA Patient-Centered Medical Home Recognition: 2019 Update
Wagner EH, Bennett SM, Austin BT, Greene SM, Schaefer JK, Vonkorff M (2005) Finding common ground: patient-centeredness and evidence-based chronic illness care. J Altern Complement Med 11:S7–S15. https://doi.org/10.1016/j.acap.2014.03.008
doi: 10.1016/j.acap.2014.03.008
pubmed: 16332190
Grudniewicz A, Gray CS, Boeckxstaens P, De Maeseneer J, Mold J (2023) Operationalizing the chronic care model with goal-oriented care. Patient 16(6):569–578. https://doi.org/10.1007/s40271-023-00645-8
doi: 10.1007/s40271-023-00645-8
pubmed: 37642918
pmcid: 10570240
Rojas Smith L, Ashok M, Morss Dy S, Wines RC, Teixeira-Poit S (2014) Contextual frameworks for research on the implementation of complex system interventions. Report No.: 14-EHC014-EF. Agency for Healthcare Research and Quality (US), Rockville
Úcar Martínez X, Jiménez-Morales M, Soler Masó P, Trilla Bernet J (2017) Exploring the conceptualization and research of empowerment in the field of youth. Int J Adolesc Youth 22(4):405–418. https://doi.org/10.1080/02673843.2016.1209120
doi: 10.1080/02673843.2016.1209120
Ciemins EL, Brant J, Kersten D, Mullette E, Dickerson D (2016) Why the interdisciplinary team approach works: insights from complexity science. J Palliat Med 19(7):767–770. https://doi.org/10.1089/jpm.2015.0398
doi: 10.1089/jpm.2015.0398
pubmed: 27104490
Romkey-Sinasac C, Saunders S, Galica J (2021) Canadian resources, programs, and models of care to support cancer survivors’ transition beyond treatment: a scoping review. Curr Oncol 28(3):2134–2145. https://doi.org/10.3390/curroncol28030198
doi: 10.3390/curroncol28030198
pubmed: 34207635
pmcid: 8293069