Empowering the biomedical research community: Innovative SAS deployment on the All of Us Researcher Workbench.

data analysis data ecosystem diversity precision medicine software

Journal

Journal of the American Medical Informatics Association : JAMIA
ISSN: 1527-974X
Titre abrégé: J Am Med Inform Assoc
Pays: England
ID NLM: 9430800

Informations de publication

Date de publication:
12 Aug 2024
Historique:
received: 24 04 2024
revised: 18 07 2024
accepted: 01 08 2024
medline: 13 8 2024
pubmed: 13 8 2024
entrez: 13 8 2024
Statut: aheadofprint

Résumé

The All of Us Research Program is a precision medicine initiative aimed at establishing a vast, diverse biomedical database accessible through a cloud-based data analysis platform, the Researcher Workbench (RW). Our goal was to empower the research community by co-designing the implementation of SAS in the RW alongside researchers to enable broader use of All of Us data. Researchers from various fields and with different SAS experience levels participated in co-designing the SAS implementation through user experience interviews. Feedback and lessons learned from user testing informed the final design of the SAS application. The co-design approach is critical for reducing technical barriers, broadening All of Us data use, and enhancing the user experience for data analysis on the RW. Our co-design approach successfully tailored the implementation of the SAS application to researchers' needs. This approach may inform future software implementations on the RW.

Identifiants

pubmed: 39135439
pii: 7732121
doi: 10.1093/jamia/ocae216
pii:
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Subventions

Organisme : NIH HHS
Pays : United States

Informations de copyright

© The Author(s) 2024. Published by Oxford University Press on behalf of the American Medical Informatics Association.

Auteurs

Izabelle Humes (I)

Vanderbilt Institute of Clinical and Translational Research, Vanderbilt University Medical Center, Nashville, TN 37203, United States.

Cathy Shyr (C)

Department of Biomedical Informatics, Vanderbilt University Medical Center, Nashville, TN 37203, United States.

Moira Dillon (M)

Verily Life Sciences, San Francisco, CA 94080, United States.

Zhongjie Liu (Z)

Data Sciences Platform, Broad Institute of MIT and Harvard, Cambridge, MA 02142, United States.

Jennifer Peterson (J)

SAS Institute, Cary, NC 27513, United States.

Chris St Jeor (CS)

Zencos, Cary, NC 27518, United States.

Jacqueline Malkes (J)

SAS Institute, Cary, NC 27513, United States.

Hiral Master (H)

Vanderbilt Institute of Clinical and Translational Research, Vanderbilt University Medical Center, Nashville, TN 37203, United States.

Brandy Mapes (B)

Vanderbilt Institute of Clinical and Translational Research, Vanderbilt University Medical Center, Nashville, TN 37203, United States.

Romuladus Azuine (R)

All of Us Research Program Office, National Institutes of Health, Bethesda, MD 20892, United States.

Nakia Mack (N)

All of Us Research Program Office, National Institutes of Health, Bethesda, MD 20892, United States.

Bassent Abdelbary (B)

College of Health Professions, The University of Texas Rio Grande Valley, Edinburg, TX 78539, United States.

Joyonna Gamble-George (J)

School of Public Health, Yale University, New Haven, CT 06510, United States.

Emily Goldmann (E)

School of Global Public Health, New York University, New York, NY 10003, United States.

Stephanie Cook (S)

School of Global Public Health, New York University, New York, NY 10003, United States.

Fatemeh Choupani (F)

College of Nursing, Seattle University, Seattle, WA 98122, United States.

Rubin Baskir (R)

All of Us Research Program Office, National Institutes of Health, Bethesda, MD 20892, United States.

Sydney McMaster (S)

All of Us Research Program Office, National Institutes of Health, Bethesda, MD 20892, United States.

Chris Lunt (C)

All of Us Research Program Office, National Institutes of Health, Bethesda, MD 20892, United States.

Karriem Watson (K)

All of Us Research Program Office, National Institutes of Health, Bethesda, MD 20892, United States.

Minnkyong Lee (M)

All of Us Research Program Office, National Institutes of Health, Bethesda, MD 20892, United States.

Sophie Schwartz (S)

Data Sciences Platform, Broad Institute of MIT and Harvard, Cambridge, MA 02142, United States.

Ruchi Munshi (R)

Data Sciences Platform, Broad Institute of MIT and Harvard, Cambridge, MA 02142, United States.

David Glazer (D)

Verily Life Sciences, San Francisco, CA 94080, United States.

Eric Banks (E)

Data Sciences Platform, Broad Institute of MIT and Harvard, Cambridge, MA 02142, United States.

Anthony Philippakis (A)

Data Sciences Platform, Broad Institute of MIT and Harvard, Cambridge, MA 02142, United States.

Melissa Basford (M)

Vanderbilt Institute of Clinical and Translational Research, Vanderbilt University Medical Center, Nashville, TN 37203, United States.

Dan Roden (D)

Department of Biomedical Informatics, Vanderbilt University Medical Center, Nashville, TN 37203, United States.

Paul A Harris (PA)

Department of Biomedical Informatics, Vanderbilt University Medical Center, Nashville, TN 37203, United States.

Classifications MeSH