Children and young people's preferences and needs when using health technology to self-manage a long-term condition: a scoping review.

Adolescent Health Child Health Information Technology Paediatrics Technology

Journal

Archives of disease in childhood
ISSN: 1468-2044
Titre abrégé: Arch Dis Child
Pays: England
ID NLM: 0372434

Informations de publication

Date de publication:
14 Aug 2024
Historique:
received: 04 07 2023
accepted: 27 05 2024
medline: 15 8 2024
pubmed: 15 8 2024
entrez: 14 8 2024
Statut: aheadofprint

Résumé

The use of patient-facing health technologies to manage long-term conditions (LTCs) is increasing; however, children and young people (CYP) may have preferences about health technologies which they interact or engage with, that influence their decision to use these technologies. To identify CYP's reported preferences about health technologies to self-manage LTCs. We undertook a scoping review, searching MEDLINE, PsycINFO and CINAHL in July 2021. Searches were limited to papers published between January 2015 and July 2021. We included any health technologies used to manage physical and mental LTCs. Qualitative content analysis of study data was undertaken to categorise data into themes and quantitative data were described and visually represented. We engaged CYP with LTCs to support the review design, interpretation of findings and development of recommendations. 161 journal articles were included, describing preferences of CYP. Most included studies were undertaken in high-income countries. CYP's main preferences and needs were: design and functionality; privacy and sharing; customisation and personalisation of the technology; and interaction options within the technology. This review highlights important preferences and needs that CYP may have before using technologies to self-manage their LTC. These should be considered when developing technology for this population. Future research should involve CYP throughout the development of the technologies, from identifying their unmet needs through to final design, development, evaluation and implementation of the intervention.

Sections du résumé

BACKGROUND BACKGROUND
The use of patient-facing health technologies to manage long-term conditions (LTCs) is increasing; however, children and young people (CYP) may have preferences about health technologies which they interact or engage with, that influence their decision to use these technologies.
AIMS OBJECTIVE
To identify CYP's reported preferences about health technologies to self-manage LTCs.
METHODS METHODS
We undertook a scoping review, searching MEDLINE, PsycINFO and CINAHL in July 2021. Searches were limited to papers published between January 2015 and July 2021. We included any health technologies used to manage physical and mental LTCs. Qualitative content analysis of study data was undertaken to categorise data into themes and quantitative data were described and visually represented. We engaged CYP with LTCs to support the review design, interpretation of findings and development of recommendations.
RESULTS RESULTS
161 journal articles were included, describing preferences of CYP. Most included studies were undertaken in high-income countries. CYP's main preferences and needs were: design and functionality; privacy and sharing; customisation and personalisation of the technology; and interaction options within the technology.
CONCLUSIONS CONCLUSIONS
This review highlights important preferences and needs that CYP may have before using technologies to self-manage their LTC. These should be considered when developing technology for this population. Future research should involve CYP throughout the development of the technologies, from identifying their unmet needs through to final design, development, evaluation and implementation of the intervention.

Identifiants

pubmed: 39142825
pii: archdischild-2023-326044
doi: 10.1136/archdischild-2023-326044
pii:
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Informations de copyright

© Author(s) (or their employer(s)) 2024. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ.

Déclaration de conflit d'intérêts

Competing interests: None declared.

Auteurs

Rosemary Jane Court (RJ)

Nursing and Midwifery, Sheffield Hallam University College of Health Wellbeing and Life Sciences, Sheffield, UK r.court@shu.ac.uk.

Veronica Swallow (V)

College of Health, Wellbeing and Life Sciences, Sheffield Hallam University, Sheffield, UK.

Sarab El-Yousfi (S)

School of Clinical Dentistry, The University of Sheffield, Sheffield, UK.

Kara Gray-Burrows (K)

School of Dentistry, University of Leeds Faculty of Medicine and Health, Leeds, UK.

Fiona Sotir (F)

School of Clinical Dentistry, The University of Sheffield, Sheffield, UK.

Gemma Wheeler (G)

NIHR MedTech & In Vitro Diagnostics Co-operative Sheffield Children's Hospital, NIHR Sheffield CRF, Sheffield, UK.

Ian Kellar (I)

Department of Psychology, The University of Sheffield, Sheffield, UK.

Jia Mang Lee (JM)

Hull York Medical School, University of York, York, UK.

Robyn Mitchell (R)

Patient and Public Involvement (PPI) Group Member, University of York, York, UK.

Wiktoria Mlynarczyk (W)

Patient and Public Involvement (PPI) Group Member, University of York, York, UK.

Arnav Ramavath (A)

Patient and Public Involvement (PPI) Group Member, University of York, York, UK.

Paul Dimitri (P)

NIHR Children and Young People MedTech Cooperative, Sheffield Children's Hospital NHS Foundation Trust, Sheffield, UK.

Bob Phillips (B)

Leeds Children's Hospital, Leeds, UK.
Centre for Reviews and Dissemination, University of York, York, UK.

Lucy Prodgers (L)

School of Psychology, University of Leeds, Leeds, UK.

Madeleine Pownall (M)

School of Psychology, University of Leeds, Leeds, UK.

Marcin Kowalczyk (M)

Medical School, The University of Sheffield, Sheffield, UK.

Jacob Branchflower (J)

NIHR MedTech & In Vitro Diagnostics Co-operative Sheffield Children's Hospital, NIHR Sheffield CRF, Sheffield, UK.

Lauren Powell (L)

School of Education, The University of Sheffield, Sheffield, UK.

Sadiq Bhanbhro (S)

Health Research Institute, Sheffield Hallam University, Sheffield, UK.

Anna Weighall (A)

School of Education, The University of Sheffield, Sheffield, UK.

Jacqueline Martin-Kerry (J)

School of Healthcare, University of Leicester, Leicester, UK.

Classifications MeSH