Qualitative inductive analysis of the lives of women with persistent cloaca based on their narratives.
Inferiority as a woman
Internal failure difficulties
Narrative-based medicine
Persistent cloaca
Qualitative inductive analysis
Transitional care
Journal
Pediatric surgery international
ISSN: 1437-9813
Titre abrégé: Pediatr Surg Int
Pays: Germany
ID NLM: 8609169
Informations de publication
Date de publication:
20 Aug 2024
20 Aug 2024
Historique:
accepted:
07
08
2024
medline:
20
8
2024
pubmed:
20
8
2024
entrez:
19
8
2024
Statut:
epublish
Résumé
The study aimed to explore and describe the lives of patients with persistent cloaca (PC) from childhood to adulthood. Semistructured interviews were conducted with nine adult patients with PC. Their experiences and thoughts regarding this disease were analyzed qualitatively and inductively. After classifying the experiences and thoughts of patients with PC, 13 categories were extracted. The following five themes emerged from these categories. (1) Difficulties with excretion and vaginal management because of the disease. (2) The degree of understanding of those around them and society has a huge effect on their way of life. (3) The inferiority of a woman who is not a "normal woman." (4) A "never-ending disease" in which problems continue even after the transition period. (5) Differences in the central point of the narrative depending on the age group. In this study, qualitative and inductive analyses of data from semistructured interviews with patients with PC revealed their experiences and thoughts. The results will provide a guide for young patients and the medical professionals who treat them. Accordingly, monitoring their lives until adulthood is necessary.
Identifiants
pubmed: 39160317
doi: 10.1007/s00383-024-05807-9
pii: 10.1007/s00383-024-05807-9
doi:
Types de publication
Journal Article
Langues
eng
Sous-ensembles de citation
IM
Pagination
236Subventions
Organisme : JSPS KAKENHI Grant
ID : JP21K10937
Organisme : JSPS KAKENHI Grant
ID : JP21K10937
Organisme : the Ministry of Health, Labour and Welfare of Japan (Health and Labour Science Research Grant for Research on Intractable Diseases
ID : 23FC1042
Organisme : the Ministry of Health, Labour and Welfare of Japan (Health and Labour Science Research Grant for Research on Intractable Diseases
ID : 23FC1042
Organisme : the Ministry of Health, Labour and Welfare of Japan (Health and Labour Science Research Grant for Research on Intractable Diseases
ID : 23FC1042
Organisme : the Ministry of Health, Labour and Welfare of Japan (Health and Labour Science Research Grant for Research on Intractable Diseases
ID : 23FC1042
Organisme : the Ministry of Health, Labour and Welfare of Japan (Health and Labour Science Research Grant for Research on Intractable Diseases
ID : 23FC1042
Organisme : the Ministry of Health, Labour and Welfare of Japan (Health and Labour Science Research Grant for Research on Intractable Diseases
ID : 23FC1042
Organisme : the Ministry of Health, Labour and Welfare of Japan (Health and Labour Science Research Grant for Research on Intractable Diseases
ID : 23FC1042
Informations de copyright
© 2024. The Author(s), under exclusive licence to Springer-Verlag GmbH Germany, part of Springer Nature.
Références
Peña A, Levitt MA, Hong A, Midulla P (2004) Surgical management of cloacal malformations: a review of 339 patients. J Pediatr Surg 39:470–479. https://doi.org/10.1016/j.jpedsurg.2003.11.033
doi: 10.1016/j.jpedsurg.2003.11.033
pubmed: 15017572
Bai Y, Yuan Z, Wang W, Zhao Y, Wang H, Wang W (2000) Quality of life for children with fecal incontinence after surgically corrected anorectal malformation. J Pediatr Surg 35:462–464. https://doi.org/10.1016/s0022-3468(00)90215-x
doi: 10.1016/s0022-3468(00)90215-x
pubmed: 10726690
Cardamone S, Creighton S (2015) A gynaecologic perspective on cloacal malformations. Curr Opin Obstet Gynecol 27:345–352. https://doi.org/10.1097/GCO.0000000000000205
doi: 10.1097/GCO.0000000000000205
pubmed: 26308202
Michael QP (2014) Qualitative research and evaluation methods: integrating theory and practice. Sage publications, California
Elo S, Kyngäs H (2008) The qualitative content analysis process. J Adv Nurs 62:107–115. https://doi.org/10.1111/j.1365-2648.2007.04569.x
doi: 10.1111/j.1365-2648.2007.04569.x
pubmed: 18352969
Ow N, Appau A, Matout M, Mayo NE (2021) What is QOL in children and adolescents with physical disabilities? A thematic synthesis of pediatric QOL literature. Qual Life Res 30:1233–1248. https://doi.org/10.1007/s11136-021-02769-6
doi: 10.1007/s11136-021-02769-6
pubmed: 33550543
Kubota M (2017) The current profile of persistent cloaca and cloacal exstrophy in Japan: the results of a nationwide survey in 2014 and a review of the literature. Pediatr Surg Int 33:505–512. https://doi.org/10.1007/s00383-016-4053-4
doi: 10.1007/s00383-016-4053-4
pubmed: 28058485
pmcid: 5348550
Kinoshita Y (2020) The role of pediatric surgeon for the treatment of persistent cloaca. J Jpn Soc Menopause Women’s Health 27:562–567. https://ndlsearch.ndl.go.jp/books/R000000004-I030627049
Krnjacki L, Emerson E, Llewellyn G, Kavanagh AM (2016) Prevalence and risk of violence against people with and without disabilities: findings from an Australian population-based study. Aust N Z J Public Health 40:16–21. https://doi.org/10.1111/1753-6405.12498
doi: 10.1111/1753-6405.12498
pubmed: 26714039
Hayashishita S, Hamada Y, Miyata J, Fujita A, et al (2021) Experience of patients with persistent cloaca: to construct a continuous and comprehensive support system. Study Nurs Edu 28:84–111. https://ndlsearch.ndl.go.jp/books/R000000004-I031661269
Nishimura T (2016) A study of the trend away from the traditional courtship habits of young people: procrastination in finding a partner. J Populat Assoc Jpn 52:25–37. https://doi.org/10.24454/jps.52.0_25
doi: 10.24454/jps.52.0_25