Communications, engagement, and dissemination strategies for the HEALthy Brain and Child Development (HBCD) Study.

Brain development Communication Dissemination Early-life development Engagement HBCD Prenatal exposures Social media

Journal

Developmental cognitive neuroscience
ISSN: 1878-9307
Titre abrégé: Dev Cogn Neurosci
Pays: Netherlands
ID NLM: 101541838

Informations de publication

Date de publication:
13 Aug 2024
Historique:
received: 07 03 2024
revised: 05 08 2024
accepted: 06 08 2024
medline: 23 8 2024
pubmed: 23 8 2024
entrez: 22 8 2024
Statut: aheadofprint

Résumé

The HEALthy Brain and Child Development (HBCD) Study, a multi-site prospective longitudinal cohort study, will examine human brain, cognitive, behavioral, social, and emotional development beginning prenatally and planned through early childhood. Study success depends on the engagement and inclusion of diverse populations of pregnant participants and their children across the United States, including those at high and low risk for prenatal substance use. The Communications, Engagement, and Dissemination (CED) Committee is responsible for the development and implementation of a strategy to promote awareness about the study, encourage participation, and engage HBCD families, community partners, and collaborators. Initial work involved developing versatile recruitment and awareness materials with a consistent and inclusive message that reduces stigma and negative bias towards marginalized populations, including people with substance use and other mental health conditions. These efforts were shaped by an integrated product development workflow and early engagement with HBCD partners to address challenges. Ongoing work includes the expansion of HBCD outreach through newsletters and social media platforms with an emphasis on protecting participant privacy. Future activities will focus on disseminating scientific information through generation of infographics and webinars that will inform participants, families, and the public of discoveries generated from HBCD Study data.

Identifiants

pubmed: 39173581
pii: S1878-9293(24)00092-6
doi: 10.1016/j.dcn.2024.101431
pii:
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Pagination

101431

Informations de copyright

Copyright © 2024. Published by Elsevier Ltd.

Déclaration de conflit d'intérêts

Declaration of Competing Interest The authors declare the following financial interests/personal relationships which may be considered as potential competing interests: Julie M. Croff reports financial support was provided by National Institutes of Health and the Bill & Melinda Gates Foundation. Julie M. Croff reports a relationship with Oklahoma State University Center for Health Sciences that includes: funding grants, speaking and lecture fees, and travel reimbursement. If there are other authors, they declare that they have no known competing financial interests or personal relationships that could have appeared to influence the work reported in this paper.

Auteurs

Katherine M Cole (KM)

National Institute on Drug Abuse, National Institutes of Health, Bethesda, MD, USA. Electronic address: katherine.cole@nih.gov.

Chloe J Jordan (CJ)

National Institute on Drug Abuse, National Institutes of Health, Bethesda, MD, USA.

Micaela Parkinson (M)

Arkansas Children's Research Institute, Arkansas Children's Hospital, Little Rock, AR, USA.

Karla R Estrada (KR)

Center for Human Development, University of California San Diego, San Diego, CA, USA.

Elizabeth A Hoffman (EA)

National Institute on Drug Abuse, National Institutes of Health, Bethesda, MD, USA.

Julie M Croff (JM)

Department of Rural Health, Oklahoma State University-Center for Health Sciences, Tulsa, OK, USA.

Michelle P Freund (MP)

National Institute on Drug Abuse, National Institutes of Health, Bethesda, MD, USA.

Katia D Howlett (KD)

National Institute on Drug Abuse, National Institutes of Health, Bethesda, MD, USA.

Classifications MeSH