Rapid Deployment of a Pseudonymization Service in a Distributed Research Data Infrastructure - Lessons Learned.
Biomedical Research
Data Protection
Pseudonymization
Journal
Studies in health technology and informatics
ISSN: 1879-8365
Titre abrégé: Stud Health Technol Inform
Pays: Netherlands
ID NLM: 9214582
Informations de publication
Date de publication:
22 Aug 2024
22 Aug 2024
Historique:
medline:
23
8
2024
pubmed:
23
8
2024
entrez:
23
8
2024
Statut:
ppublish
Résumé
The SARS-CoV-2 pandemic highlighted the importance of fast, collaborative research in biomedicine. Within the ORCHESTRA consortium, we rapidly deployed a pseudonymization service with minimal training and maintenance efforts under time-critical conditions to support a complex, multi-site research project. Over two years, the service was deployed in 13 sites across 11 countries to register more than 10,000 study participants and 15,000 biosamples. In this work, we present lessons learned as part of this process. Most importantly, we learned that common challenges can be overcome by creatively utilizing widely available tools and that having a dedicated partner to manage software rollout and pre-configure software packages for each site fosters the effective implementation.
Identifiants
pubmed: 39176607
pii: SHTI240637
doi: 10.3233/SHTI240637
doi:
Types de publication
Journal Article
Langues
eng
Sous-ensembles de citation
IM