Dealing With Temporality in Patients With Life-Limiting Disease: An International Qualitative Study.

coping end of life qualitative temporality time

Journal

Qualitative health research
ISSN: 1049-7323
Titre abrégé: Qual Health Res
Pays: United States
ID NLM: 9202144

Informations de publication

Date de publication:
26 Aug 2024
Historique:
medline: 27 8 2024
pubmed: 27 8 2024
entrez: 26 8 2024
Statut: aheadofprint

Résumé

The prospect of death influences people's thoughts about and how they deal with their remaining time. We aimed to understand whether patients with progressive, life-limiting diseases are oriented in the past, present, or future and how they deal with temporality. We conducted 57 in-depth interviews with end-of-life patients in 10 countries using thematic analysis at three levels (i.e., locally in three countries, with codes shared in the three-country subgroup, and in all 10 countries with a codebook that we developed). We found that the patients' thoughts were oriented toward all three time levels (i.e., past, present, and future). Complementing these levels, we identified another, namely, the future after death. Each time level included patients actively and passively dealing with their thoughts. Past themes were

Identifiants

pubmed: 39186945
doi: 10.1177/10497323241263751
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Pagination

10497323241263751

Déclaration de conflit d'intérêts

Declaration of Conflicting InterestsThe authors declare no potential conflicts of interest with respect to the research, authorship, and/or publication of this article.

Auteurs

Melanie Joshi (M)

Department of Palliative Medicine, Faculty of Medicine and University Hospital, University of Cologne, Cologne, Germany.

Guðlaug Helga Ásgeirsdóttir (GH)

Palliative Care Unit, Landspitali - The National University Hospital of Iceland, Reykjavik, Iceland.

Miša Bakan (M)

University Clinic of Pulmonary and Allergic Diseases Golnik, Golnik, Slovenia.

Hana Kodba Čeh (H)

University Clinic of Pulmonary and Allergic Diseases Golnik, Golnik, Slovenia.

Dagny Renata Faksvåg Haugen (DRF)

Regional Centre of Excellence for Palliative Care, Western Norway, Haukeland University Hospital, Bergen, Norway.
Department of Clinical Medicine K1, University of Bergen, Bergen, Norway.

Urška Lunder (U)

University Clinic of Pulmonary and Allergic Diseases Golnik, Golnik, Slovenia.

Eva Víbora Martín (E)

CUDECA Institute for Training and Research in Palliative Care, CUDECA Hospice Foundation, Málaga, Spain.

Beth Morris (B)

Palliative Care Unit, University of Liverpool, Liverpool, UK.

Birgit H Rasmussen (BH)

Institute for Palliative Care, Region Skane and Lund University, Lund, Sweden.
Department of Health Sciences, Lund University, Lund, Sweden.

Elisabeth Romarheim (E)

Regional Centre of Excellence for Palliative Care, Western Norway, Haukeland University Hospital, Bergen, Norway.

Vilma Tripodoro (V)

Instituto Pallium Latinoamérica, Buenos Aires, Argentina.
Atlantes, Global Observatory of Palliative Care, University of Navarra, Pamplona, Spain.

Agnes van der Heide (A)

Department of Public Health, Erasmus University Medical Center, Rotterdam, Netherlands.

Verónica Veloso (V)

Institute of Medical Research A. Lanari, University of Buenos Aires, Buenos Aires, Argentina.

Berivan Yildiz (B)

Department of Public Health, Erasmus University Medical Center, Rotterdam, Netherlands.

Sofía Zambrano (S)

Department of Oncology, University Center for Palliative Care, Inselspital, Bern University Hospital, Bern, Switzerland.
Institute of Social and Preventive Medicine, University of Bern, Bern, Switzerland.

Julia Strupp (J)

Department of Palliative Medicine, Faculty of Medicine and University Hospital, University of Cologne, Cologne, Germany.

Raymond Voltz (R)

Department of Palliative Medicine, Faculty of Medicine and University Hospital, University of Cologne, Cologne, Germany.
Faculty of Medicine and University Hospital, Center for Integrated Oncology Aachen Bonn Cologne Duesseldorf (CIO ABCD), University of Cologne, Cologne, Germany.
Faculty of Medicine and University Hospital, Center for Health Services Research, University of Cologne, Cologne, Germany.

Classifications MeSH