A framework for remotely enabled co-design with young people: its development and application with neurodiverse children and their caregivers.

ADHD inclusive design neurodevelopmental conditions qualitative methods remote co-design young people

Journal

Frontiers in psychiatry
ISSN: 1664-0640
Titre abrégé: Front Psychiatry
Pays: Switzerland
ID NLM: 101545006

Informations de publication

Date de publication:
2024
Historique:
received: 14 05 2024
accepted: 25 07 2024
medline: 2 9 2024
pubmed: 2 9 2024
entrez: 2 9 2024
Statut: epublish

Résumé

This paper describes an innovative Framework for Remotely Enabled Co-Design with Young people (FREDY), which details an adaptable four-stage process for generating design concepts with children and other key stakeholders in a naturalistic and inclusive way. Recommendations from existing patient engagement and design methodologies were combined to provide research teams with procedures to capture and analyse end-user requirements rapidly. Resulting insights were applied through iterative design cycles to achieve accelerated and user-driven innovation. Applying this framework with neurodiverse children within the context of healthcare, shows how creative design methods can give rise to new opportunities for co-creating across diverse geographies, abilities, and backgrounds as well as strengthen co-designer approval of the co-design process and resulting product. We summarise key learnings and principles for fostering trust and sustaining participation with remote activities, and facilitating stakeholder design input through continuous collaboration, as well as highlight the potential benefits and challenges of utilising FREDY with neurotypical populations.

Identifiants

pubmed: 39220185
doi: 10.3389/fpsyt.2024.1432620
pmc: PMC11362057
doi:

Types de publication

Journal Article

Langues

eng

Pagination

1432620

Informations de copyright

Copyright © 2024 Morris, Douch, Popnikolova, McGinley, Matcham, Sonuga-Barke and Downs.

Déclaration de conflit d'intérêts

The authors declare that the research was conducted in the absence of any commercial or financial relationships that could be construed as a potential conflict of interest.

Auteurs

Anna Charlotte Morris (AC)

CAMHS Digital Lab, Department of Child and Adolescent Psychiatry, Institute of Psychiatry Psychology and Neuroscience, King's College London and South London and Maudsley National Health Service (NHS) Foundation Trust, London, United Kingdom.

Stephen Douch (S)

CAMHS Digital Lab, Department of Child and Adolescent Psychiatry, Institute of Psychiatry Psychology and Neuroscience, King's College London and South London and Maudsley National Health Service (NHS) Foundation Trust, London, United Kingdom.

Teodora Popnikolova (T)

CAMHS Digital Lab, Department of Child and Adolescent Psychiatry, Institute of Psychiatry Psychology and Neuroscience, King's College London and South London and Maudsley National Health Service (NHS) Foundation Trust, London, United Kingdom.

Chris McGinley (C)

Age and Diversity, Helen Hamlyn Centre for Design, Royal College of Arts, London, United Kingdom.

Faith Matcham (F)

School of Psychology, University of Sussex, Brighton and Hove, United Kingdom.

Edmund Sonuga-Barke (E)

Department of Child and Adolescent Psychiatry, Institute of Psychiatry, Psychology and Neuroscience, King's College London, London, United Kingdom.

Johnny Downs (J)

CAMHS Digital Lab, Department of Child and Adolescent Psychiatry, Institute of Psychiatry Psychology and Neuroscience, King's College London and South London and Maudsley National Health Service (NHS) Foundation Trust, London, United Kingdom.

Classifications MeSH