A stakeholder-involved adaptation of pathways and resources for engagement and participation (PREP) material with young adults with complex disability in Australia: an implementation feasibility study.

Pathways and resources for engagement and participation consumer involvement disability family of participation-related constructs feasibility study implementation participation young adults

Journal

Disability and rehabilitation
ISSN: 1464-5165
Titre abrégé: Disabil Rehabil
Pays: England
ID NLM: 9207179

Informations de publication

Date de publication:
05 Sep 2024
Historique:
medline: 5 9 2024
pubmed: 5 9 2024
entrez: 5 9 2024
Statut: aheadofprint

Résumé

Pathways and Resources for Engagement and Participation (PREP) is an intervention to optimise individuals' participation by building problem-solving capacity and addressing environmental barriers. We investigated the feasibility of implementing PREP with young adults (18-30 years) with complex disability in Australia. Explanatory sequential mixed methods study in three stages. (i) PREP materials were collaboratively adapted by the research team and consumer research partners. (ii) Steps 1 and 2 of PREP (YA Supplement) were completed with three young adults with disability, and preliminary feasibility explored using qualitative methods. (iii) The feasibility of implementing adapted materials was examined using quantitative and qualitative methods involving four young adults with disability, six support people and two service providers. Stage 1: PREP Young Adults Supplement (PREP (YA Supplement)) for use alongside PREP was developed. Stages 2 and 3: findings indicated PREP (YA Supplement) was acceptable, appropriate and feasible. Three themes were identified: setting and achieving goals were associated with challenges and benefits; finding the right time to implement the program was necessary; and PREP (YA Supplement) drives a shift to a participation-focused approach. PREP delivered alongside PREP (YA Supplement) appears feasible with Australian young adults with complex disability. A novel supplement for the evidence-based Pathways and Resources for Engagement and Participation (PREP) intervention has been developed to enhance participation in life situations for young adults with disability in an Australian context (PREP Young Adult Supplement).Setting participation goals may be a substantial shift for young adults with disability and rehabilitation professionals, and involves considering attendance at, and involvement in, life situations.Implementation of PREP/PREP Young Adult Supplement is inherently flexible and can be adapted to suit the needs, preferences and circumstances of the participant.

Autres résumés

Type: plain-language-summary (eng)
A novel supplement for the evidence-based Pathways and Resources for Engagement and Participation (PREP) intervention has been developed to enhance participation in life situations for young adults with disability in an Australian context (PREP Young Adult Supplement).Setting participation goals may be a substantial shift for young adults with disability and rehabilitation professionals, and involves considering attendance at, and involvement in, life situations.Implementation of PREP/PREP Young Adult Supplement is inherently flexible and can be adapted to suit the needs, preferences and circumstances of the participant.

Identifiants

pubmed: 39235070
doi: 10.1080/09638288.2024.2397083
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Pagination

1-13

Auteurs

Annabelle Cassidy (A)

School of Allied Health, Australian Catholic University, Melbourne, Australia.

Natasha Bannon (N)

School of Allied Health, Australian Catholic University, Melbourne, Australia.

Margaret Wallen (M)

School of Allied Health, Australian Catholic University, North Sydney, Australia.

Alessandra Dimarco (A)

School of Allied Health, Australian Catholic University, North Sydney, Australia.

Natasha Garrity (N)

Consumer Investigator, Sydney, Australia.

Oliver Hunter (O)

Consumer Investigator, Melbourne, Australia.

Dana Anaby (D)

School of Physical and Occupational Therapy, McGill University, Montreal, Canada.

Emma Fredrickson (E)

Young Adult Complex Disability Service, St Vincent's Hospital, Melbourne, Australia.

Harry Cowan (H)

School of Allied Health, Australian Catholic University, Melbourne, Australia.

Dewa Knudsen (D)

School of Allied Health, Australian Catholic University, North Sydney, Australia.

Scott Thornton (S)

School of Allied Health, Australian Catholic University, Melbourne, Australia.

Christine Imms (C)

Healthy Trajectories Child and Youth Disability Research Hub, Department of Paediatrics, The University of Melbourne and Murdoch Children's Research Institute, Melbourne, Australia.

Classifications MeSH