Impact of the Graphic Memoir "

Comics Graphic Medicine Parkinson’s Disease patient experience quality of life visual communication

Journal

The Permanente journal
ISSN: 1552-5775
Titre abrégé: Perm J
Pays: United States
ID NLM: 9800474

Informations de publication

Date de publication:
06 Sep 2024
Historique:
medline: 6 9 2024
pubmed: 6 9 2024
entrez: 6 9 2024
Statut: aheadofprint

Résumé

Understanding the lived experience of illness is important for empowering patients and informing health care practitioners. This study investigated the impact of a book-length comic memoir, In this convergent mixed methods study, patients with PD were recruited from a multidisciplinary movement disorders clinic in 2019-2020 and were eligible if cognitively intact; English-speaking; had stage I, II, or III PD; and < 12 months had elapsed since diagnosis. Participants received Thirty participants completed the study (13 males and 17 female; mean age = 59 years). Four qualitative themes emerged: Reading Participants who liked the book-the "endorsers"-revealed that it deeply resonated with them and helped them realize they were not alone with the disease. Many commented that Dunlap-Shohl's story was in some ways their story-and that this was both practically and emotionally reassuring.

Identifiants

pubmed: 39238323
doi: 10.7812/TPP/23.184
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Pagination

1-12

Auteurs

Michael J Green (MJ)

Department of Humanities, Penn State College of Medicine, Hershey, PA, USA.
Department of Medicine, Penn State College of Medicine, Hershey, PA, USA.

Sol De Jesus (S)

Department of Neurology, Penn State College of Medicine, Hershey, PA, USA.

Daniel R George (DR)

Department of Humanities, Penn State College of Medicine, Hershey, PA, USA.

Margaret Hopkins (M)

Department of Humanities, Penn State College of Medicine, Hershey, PA, USA.

Erik Lehman (E)

Department of Public Health Sciences, Penn State College of Medicine, Hershey, PA, USA.

Lauren Van Scoy (LV)

Department of Humanities, Penn State College of Medicine, Hershey, PA, USA.
Department of Medicine, Penn State College of Medicine, Hershey, PA, USA.
Department of Public Health Sciences, Penn State College of Medicine, Hershey, PA, USA.

Bethany Snyder (B)

Center for Community Health Integration, Case Western Reserve University, Cleveland, OH, USA.

Kimberly R Myers (KR)

Department of Humanities, Penn State College of Medicine, Hershey, PA, USA.
Department of Medicine, Penn State College of Medicine, Hershey, PA, USA.

Classifications MeSH