Family Caregivers of Cancer Patients: Burdens and Support Preferences of Partner, Parent and Adult-Child Caregivers.


Journal

Psycho-oncology
ISSN: 1099-1611
Titre abrégé: Psychooncology
Pays: England
ID NLM: 9214524

Informations de publication

Date de publication:
Sep 2024
Historique:
revised: 12 08 2024
received: 08 05 2024
accepted: 31 08 2024
medline: 12 9 2024
pubmed: 12 9 2024
entrez: 11 9 2024
Statut: ppublish

Résumé

The aim of this study is to (1) identify similarities and differences in psychosocial burdens and support needs experienced by parent, partner and adult-child caregivers and (2) identify support needs of family caregivers regarding peer support programs. Semi-structured interviews (n = 30) were conducted with family caregivers of cancer patients. Interviews were transcribed and analyzed by inductive content analysis to identify themes. Ten categories of burden were identified for all three groups of caregivers. Partners emphasized the time burden through caregiving, parents and adult-child caregivers accentuated the emotional burden. All caregivers wished for peer-to-peer exchange which will provide the feeling not to be alone, to share emotions and to prepare for what will come next. Preferences for matching with peers with similar prognosis for their sick relative and similar living conditions were found. Partner, parent and adult-child caregivers describe similar burdens of caregiving. They wish for peer support programs that allow them to share their experiences with persons who understand their situation. Therefore, caregivers desire a good match with peers to enhance the positive outcome of peer exchange.

Identifiants

pubmed: 39261295
doi: 10.1002/pon.9310
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Pagination

e9310

Subventions

Organisme : Deutsche Krebshilfe
ID : 70114287

Informations de copyright

© 2024 The Author(s). Psycho‐Oncology published by John Wiley & Sons Ltd.

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Auteurs

Martina Breuning (M)

Comprehensive Cancer Center Freiburg, Medical Center University Freiburg, Freiburg im Breisgau, Germany.

Sophia Mählmann (S)

Comprehensive Cancer Center Freiburg, Medical Center University Freiburg, Freiburg im Breisgau, Germany.

Hedy Kerek-Bodden (H)

Haus der Krebs-Selbsthilfe Bundesverband, Bonn, Germany.

Susanne Oettlin (S)

Comprehensive Cancer Center Freiburg, Medical Center University Freiburg, Freiburg im Breisgau, Germany.

Joachim Weis (J)

Comprehensive Cancer Center Freiburg, Medical Center University Freiburg, Freiburg im Breisgau, Germany.

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