The Palliative Story Exchange: An innovative storytelling intervention to build community, foster shared meaning, and improve sustainability.

Palliative care faces a workforce crisis burnout humanities narrative medicine sustainability

Journal

Palliative & supportive care
ISSN: 1478-9523
Titre abrégé: Palliat Support Care
Pays: England
ID NLM: 101232529

Informations de publication

Date de publication:
30 Sep 2024
Historique:
medline: 30 9 2024
pubmed: 30 9 2024
entrez: 30 9 2024
Statut: aheadofprint

Résumé

Palliative care (PC) faces a workforce crisis. Seriously ill patients surpass the supply of PC cliniciansin their work clinicians face repeated loss and extreme suffering which can have deleterious consequences, such as burnout and attrition. We urgently need interventions that foster thriving communities in this emotionally complex environment. Storytelling represents a promising path forward. In response to widespread loneliness and moral distress among PC clinicians before, during, and after the early months of the COVID-19 pandemic, we created the Palliative Story Exchange (PSE), a storytelling intervention to build community, decrease isolation, and help clinicians rediscover the shared meaning in their work. This paper discusses this novel intervention and initial program evaluation data demonstrating the PSE's impact thus far. Participants voluntarily complete a post-then-pre wellness survey reflecting on their experience. Thus far, over 1,000 participants have attended a PSE. In the fall of 2022, we began distributing a post-then-pre-evaluation survey. To date, 130 interprofessional participants from practice locations across 10 different countries completed the survey. Responses demonstrate an increase in the connection that participants felt toward their work and the larger palliative care community after attending a PSE. Further, more than half of all free-text responses include terms such as, "meaningful," "healing," "powerful," and "universal," to describe their participation. Training programs and healthcare organizations use the humanities to support clinician wellness and improve patient care. The PSE builds upon this work through a novel combination of storytelling, community co-creation using reflection, and shared meaning making. Initial survey data demonstrates that after attending a PSE, participants feel increased meaning in their work, in the significance of their own stories, and connection with the PC community. Moving forward, we seek to expand our community of practice, host a facilitator leadership course, and rigorously study the PSE's impact on clinician wellness outcomes.

Identifiants

pubmed: 39344265
doi: 10.1017/S1478951524001226
pii: S1478951524001226
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Pagination

1-8

Auteurs

Alexis Drutchas (A)

Division of Palliative Care and Geriatric Medicine, Massachusetts General Hospital, Boston, MA, USA.

Rachel Rusch (R)

Division of Comfort and Palliative Care, Children's Hospital Los Angeles, Boston, MA, USA.

Richard Leiter (R)

Department of Psychosocial Oncology and Palliative Care, Dana-Farber Cancer Institute, Harvard Medical School, Boston, MA, USA.

Classifications MeSH