DYNC2H1 splicing variants causing severe prenatal short-rib polydactyly syndrome and postnatal orofaciodigital syndrome.

DYNC2H1 RNA splice sites ciliopathies genetic testing orofaciodigital syndromes short‐rib polydactyly syndrome

Journal

Annals of human genetics
ISSN: 1469-1809
Titre abrégé: Ann Hum Genet
Pays: England
ID NLM: 0416661

Informations de publication

Date de publication:
03 Oct 2024
Historique:
revised: 16 09 2024
received: 11 05 2024
accepted: 17 09 2024
medline: 3 10 2024
pubmed: 3 10 2024
entrez: 3 10 2024
Statut: aheadofprint

Résumé

The DYNC2H1 gene has been associated with short-rib polydactyly syndrome (SRPS), among other skeletal ciliopathies. Two cases are presented of distinctive phenotypes resulting from splicing variants in DYNC2H1. The first is a 14-week-old fetus with enlarged nuchal translucency, oral hamartoma, malformed uvula, bifid epiglottis, short ribs, micromelia, long bone agenesis, polysyndactyly, heart defect, pancreatic cysts, multicystic dysplastic kidney, megabladder and trident acetabulum. A ciliopathies NGS panel revealed two compound heterozygous variants in DYNC2H1: c.7840-18T>G r.7841_7964del p.Gly2614Aspfs*5 and c.11070G>A r.11044_11116del p.Ile3682Aspfs*2. Both variants were initially classified as variants of uncertain significance but were reclassified as likely pathogenic after PCR-based RNA testing. The second is an 11-year-old overweight male with multiple accessory oral frenula, median cleft lip and alveolar ridge, polysyndactyly, brachydactyly, normal rib length, and hypogonadism. Exome sequencing revealed two compound heterozygous variants in DYNC2H1: c.6315del p.(Thr2106Glnfs*7), classified as likely pathogenic, and c.3303-16A>G p.(?), classified as a variant of uncertain significance. PCR-based RNA testing suggested that c.3303-16A>G induces an in-frame deletion: r.3303_3458del p.Asp1102_Arg1153del, although the normal transcript is still produced. These results are consistent with both SRPS type I/III in the first case and orofaciodigital syndrome in the second, an unprecedented description. This work thus improves the clinical and molecular knowledge of the phenotypes associated with splicing variants in the DYNC2H1 gene.

Identifiants

pubmed: 39361243
doi: 10.1111/ahg.12581
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Informations de copyright

© 2024 University College London (UCL) and John Wiley & Sons Ltd.

Références

Braun, D. A., & Hildebrandt, F. (2017). Ciliopathies. Cold Spring Harbor Perspectives in Biology, 9(3), Article a028191.
Cocciadiferro, D., Agolini, E., Digilio, M. C., Sinibaldi, L., Castori, M., Silvestri, E., Dotta, A., Dallapiccola, B., & Novelli, A. (2020). The splice c.1815G>A variant in KIAA0586 results in a phenotype bridging short‐rib‐polydactyly and oral‐facial‐digital syndrome: A case report and literature review. Medicine, 99(8), Article e19169.
Fujita, A., Higashijima, T., Shirozu, H., Masuda, H., Sonoda, M., Tohyama, J., Kato, M., Nakashima, M., Tsurusaki, Y., Mitsuhashi, S., Mizuguchi, T., Takata, A., Miyatake, S., Miyake, N., Fukuda, M., Kameyama, S., Saitsu, H., & Matsumoto, N. (2019). Pathogenic variants of DYNC2H1, KIAA0556, and PTPN11 associated with hypothalamic hamartoma. Neurology, 93(3), e237–e251.
Hammarsjö, A., Pettersson, M., Chitayat, D., Handa, A., Anderlid, B.‐M., Bartocci, M., Basel, D., Batkovskyte, D., Beleza‐Meireles, A., Conner, P., Eisfeldt, J., Girisha, K. M., Chung, B. H.‐Y., Horemuzova, E., Hyodo, H., Korņejeva, L., Lagerstedt‐Robinson, K., Lin, A. E., Magnusson, M., … Grigelioniene, G. (2021). High diagnostic yield in skeletal ciliopathies using massively parallel genome sequencing, structural variant screening and RNA analyses. Journal of Human Genetics, 66(10), 995–1008.
Handa, A., Voss, U., Hammarsjö, A., Grigelioniene, G., & Nishimura, G. (2020). Skeletal ciliopathies: A pattern recognition approach. Japanese Journal of Radiology, 38, 193–206.
Lee, J., Lee, H., Lee, Y.‐M., Kuht, H. J., Thomas, M. G., Kim, S. J., Lee, S.‐T., & Han, J. (2021). DYNC2H1 variants cause Leber congenital amaurosis without syndromic features. Clinical Genetics, 100(1), 111–113.
Martin, F. J., Amode, M. R., Aneja, A., Austine‐Orimoloye, O., Azov, A. G., Barnes, I., Becker, A., Bennett, R., Berry, A., Bhai, J., Bhurji, S. K., Bignell, A., Boddu, S., Branco Lins, P. R., Brooks, L., Ramaraju, S. B., Charkhchi, M., Cockburn, A., Da Rin Fiorretto, L., … Flicek, P. (2022). Ensembl 2023. Nucleic Acids Research, 51(D1), D933–D941.
NCBI. (2004). DYNC2H1 [Internet]. Bethesda (MD): National Library of Medicine (US), National Center for Biotechnology Information (NCBI). https://www.ncbi.nlm.nih.gov/gene/
Piceci‐Sparascio, F., Micale, L., Torres, B., Guida, V., Consoli, F., Torrente, I., Onori, A., Frustaci, E., D'asdia, M. C., Petrizzelli, F., Bernardini, L., Mancini, C., Soli, F., Cocciadiferro, D., Guadagnolo, D., Mastromoro, G., Putotto, C., Fontana, F., Brunetti‐Pierri, N., … De Luca, A. (2023). Clinical variability in DYNC2H1‐related skeletal ciliopathies includes Ellis‐van Creveld syndrome. European Journal of Human Genetics, 31(4), 479–484.
Reiter, J. F., & Leroux, M. R. (2017). Genes and molecular pathways underpinning ciliopathies. Nature Reviews Molecular Cell Biology, 18(9), 533–547.
Senum, S. R., Li, Y. S. M., Benson, K. A., Joli, G., Olinger, E., Lavu, S., Madsen, C. D., Gregory, A. V., Neatu, R., Kline, T. L., Audrézet, M.‐P., Outeda, P., Nau, C. B., Meijer, E., Ali, H., Steinman, T. I., Mrug, M., Phelan, P. J., Watnick, T. J., … Harris, P. C. (2022). Monoallelic IFT140 pathogenic variants are an important cause of the autosomal dominant polycystic kidney‐spectrum phenotype. American Journal of Human Genetics, 109(1), 136–156.
Thomas, S., Legendre, M., Saunier, S., Bessières, B., Alby, C., Bonnière, M., Toutain, A., Loeuillet, L., Szymanska, K., Jossic, F., Gaillard, D., Yacoubi, M. T., Mougou‐Zerelli, S., David, A., Barthez, M.‐A., Ville, Y., Bole‐Feysot, C., Nitschke, P., Lyonnet, S., … Attié‐Bitach, T. (2012). TCTN3 mutations cause Mohr‐Majewski syndrome. American Journal of Human Genetics, 91(2), 372–378.
Vig, A., Poulter, J. A., Ottaviani, D., Tavares, E., Toropova, K., Tracewska, A. M., Mollica, A., Kang, J., Kehelwathugoda, O., Paton, T., Maynes, J. T., Wheway, G., Arno, G., Ambrose, J. C., Arumugam, P., Baple, E. L., Bleda, M., Boardman‐Pretty, F., Boissiere, J. M., … Heon, E. (2020). DYNC2H1 hypomorphic or retina‐predominant variants cause nonsyndromic retinal degeneration. Genetics in Medicine, 22(12), 2041–2051.
Zhao, W., Ye, G., Li, Q., Zhou, Y., Yu, X., Li, Y., Yu, M., & Wang, H. (2022). Pathogenic variant of DYNC2H1 associated with lingual hamartoma in a Chinese pedigree. Journal of Oral Pathology & Medicine, 51(8), 755–761.

Auteurs

Alice Porto Vasconcelos (A)

Genetics Service, São João Universitary Hospital Center, Porto, Portugal.

Sofia Quental (S)

Institute of Molecular Pathology and Immunology of the University of Porto (IPATIMUP), Porto, Portugal.
i3S - Instituto de Investigação e Inovação em Saúde, Universidade do Porto, Porto, Portugal.

João Parente Freixo (JP)

i3S - Instituto de Investigação e Inovação em Saúde, Universidade do Porto, Porto, Portugal.
CGPP-IBMC, Universidade do Porto, Porto, Portugal.

João Machado Pacheco (JM)

Pathology Department, São João Universitary Hospital Center, Porto, Portugal.

Sofia Rodrigues (S)

Obstetrics and Gynaecology Department, São João Universitary Hospital Center, Porto, Portugal.

Magda Magalhães (M)

Obstetrics and Gynaecology Department, São João Universitary Hospital Center, Porto, Portugal.

Renata Oliveira (R)

Genetics Service, São João Universitary Hospital Center, Porto, Portugal.

Ana Costa Braga (AC)

Pathology Department, São João Universitary Hospital Center, Porto, Portugal.
Faculty of Medicine, University of Porto, Porto, Portugal.

Rita Quental (R)

Genetics Service, São João Universitary Hospital Center, Porto, Portugal.

Classifications MeSH