Treatment Targets and Strategies for Eating Disorders Recovery: A Delphi Consensus With Lived Experience, Carers, Researchers, and Clinicians.
eating disorders
lived experience
recovery
strategies
treatment
Journal
The International journal of eating disorders
ISSN: 1098-108X
Titre abrégé: Int J Eat Disord
Pays: United States
ID NLM: 8111226
Informations de publication
Date de publication:
14 Oct 2024
14 Oct 2024
Historique:
revised:
28
09
2024
received:
12
06
2024
accepted:
01
10
2024
medline:
14
10
2024
pubmed:
14
10
2024
entrez:
14
10
2024
Statut:
aheadofprint
Résumé
Long-term recovery rates following eating disorders (EDs) treatment remain low. This might be partly due to a lack of agreement between key stakeholder groups, including people with lived experience, carers, clinicians, and researchers, regarding optimal therapeutic targets and strategies. We aimed to reach a consensus across these diverse groups on the most valued treatment targets and strategies for fostering ED recovery. We used the Delphi method with two phases: (i) Survey development and (ii) Expert rating. The survey development phase included the design of an initial set of items through scoping review and feedback from a committee of 14 experts. During the survey rating, we engaged a larger panel of 185 experts who comprised the stakeholder groups: Individuals with lived ED experience (n = 49), carers (n = 44), researchers (n = 46), and clinicians (n = 46). Thirty-one targets and 29 strategies reached consensus (> 70% agreement over three rounds). Psychological-emotional-social targets including quality of life, sense of purpose, and emotion regulation, along with ED behaviors, reached the highest agreement (> 90%). Strategies reflecting an individualized approach to treatment (i.e., considering diversity, assessing comorbidities, and enhancing rapport) achieved the highest agreement (> 90%). Responses across groups were similar, except researchers leaning more towards consideration of weight- and eating-related targets. Holistic targets and individualized therapeutic strategies have consistent support from the different stakeholder groups involved in ED treatment. The agreed set of targets/strategies may be used, in triangulation with other sources of evidence, to design and evaluate coproduced and personalized interventions.
Types de publication
Journal Article
Langues
eng
Sous-ensembles de citation
IM
Subventions
Organisme : Australian Commonwealth Department of Health and Aged Care
ID : P051002-4GOTT7NX
Organisme : Australian National Health & Medical Research Council (NHMRC):
ID : 2009464
Organisme : Commonwealth Department of Health: The Australian Eating Disorders Research and Translation Centre
Informations de copyright
© 2024 Wiley Periodicals LLC.
Références
Akins, R. B., H. Tolson, and B. R. Cole. 2005. “Stability of Response Characteristics of a Delphi Panel: Application of Bootstrap Data Expansion.” BMC Medical Research Methodology 5: 37. https://doi.org/10.1186/1471‐2288‐5‐37.
Anderson, A., L. Hanegraaf, and A. Verdejo‐Garcia. 2023. “Promising Treatment Targets and Techniques for Eating Disorder Recovery Goals: An International Delphi Consensus Study With Lived Experience Groups, Carers, Researchers and Clinicians.” https://osf.io/gqwdm/.
Aoki, Y., Y. Yaju, T. Utsumi, et al. 2022. “Shared Decision‐Making Interventions for People With Mental Health Conditions.” Cochrane Database of Systematic Reviews 11, no. 11: CD007297. https://doi.org/10.1002/14651858.CD007297.pub3.
Austin, A., U. De Silva, C. Ilesanmi, et al. 2023. “International Consensus on Patient‐Centred Outcomes in Eating Disorders.” Lancet Psychiatry 10, no. 12: 966–973. https://doi.org/10.1016/S2215‐0366(23)00265‐1.
Bachner‐Melman, R., L. Lev‐Ari, A. H. Zohar, and S. L. Lev. 2018. “Can Recovery From an Eating Disorder be Measured? Toward a Standardized Questionnaire.” Frontiers in Psychology 9: 2456. https://doi.org/10.3389/fpsyg.2018.02456.
Bryant, E., C. Broomfield, J. Burrows, et al. 2023. “Gaining Consensus on Clinical Quality Outcomes for Eating Disorders: Framework for the Development of an Australian National Minimum Dataset.” BMJ Open 13, no. 4: e071150. https://doi.org/10.1136/bmjopen‐2022‐071150.
Bryant, E., K. Spielman, A. Le, et al. 2022. “Screening, Assessment and Diagnosis in the Eating Disorders: Findings From a Rapid Review.” Journal of Eating Disorders 10, no. 1: 78. https://doi.org/10.1186/s40337‐022‐00597‐8.
Carter, J. C., K. B. Mercer‐Lynn, S. J. Norwood, et al. 2012. “A Prospective Study of Predictors of Relapse in Anorexia Nervosa: Implications for Relapse Prevention.” Psychiatry Research 200, no. 2–3: 518–523. https://doi.org/10.1016/j.psychres.2012.04.037.
Chesney, E., G. M. Goodwin, and S. Fazel. 2014. “Risks of All‐Cause and Suicide Mortality in Mental Disorders: A Meta‐Review.” World Psychiatry 13, no. 2: 153–160. https://doi.org/10.1002/wps.20128.
Chipchase, L., S. Schabrun, L. Cohen, et al. 2012. “A Checklist for Assessing the Methodological Quality of Studies Using Transcranial Magnetic Stimulation to Study the Motor System: An International Consensus Study.” Clinical Neurophysiology 123, no. 9: 1698–1704. https://doi.org/10.1016/j.clinph.2012.05.003.
Cooper, Z., and R. Dalle Grave. 2017. “Eating Disorders: Transdiagnostic Theory and Treatment.” In The Science of Cognitive Behavioral Therapy. London, UK: Elsevier Academic Press. https://doi.org/10.1016/B978‐0‐12‐803457‐6.00014‐3.
Cooper, Z., and S. Bailey‐Straebler. 2015. “Disseminating Evidence‐Based Psychological Treatments for Eating Disorders.” Current Psychiatry Reports 17, no. 3: 551. https://doi.org/10.1007/s11920‐015‐0551‐7.
Crone, C., L. J. Fochtmann, E. Attia, et al. 2023. “The American Psychiatric Association Practice Guideline for the Treatment of Patients With Eating Disorders.” American Journal of Psychiatry 180, no. 2: 167–171. https://doi.org/10.1176/appi.ajp.23180001.
Curzio, O., S. Maestro, G. Rossi, et al. 2018. “Transdiagnostic vs. Disorder‐Focused Perspective in Children and Adolescents With Eating Disorders: Findings From a Large Multisite Exploratory Study.” European Psychiatry 49: 81–93. https://doi.org/10.1016/j.eurpsy.2017.12.024.
de Vos, J. A., A. LaMarre, M. Radstaak, C. A. Bijkerk, E. T. Bohlmeijer, and G. J. Westerhof. 2017. “Identifying Fundamental Criteria for Eating Disorder Recovery: A Systematic Review and Qualitative Meta‐Analysis.” Journal of Eating Disorders 5: 34. https://doi.org/10.1186/s40337‐017‐0164‐0.
Ekhtiari, H., M. Zare‐Bidoky, A. Sangchooli, et al. 2022. “A Methodological Checklist for fMRI Drug Cue Reactivity Studies: Development and Expert Consensus.” Nature Protocols 17, no. 3: 567–595. https://doi.org/10.1038/s41596‐021‐00649‐4.
Emanuelli, F., G. Waller, M. Jones‐Chester, and R. Ostuzzi. 2012. “Recovery From Disordered Eating: Sufferers' and Clinicians' Perspectives.” European Eating Disorders Review 20, no. 5: 363–372. https://doi.org/10.1002/erv.2159.
Fairburn, C. G., Z. Cooper, and R. Shafran. 2003. “Cognitive Behaviour Therapy for Eating Disorders: A "Transdiagnostic" Theory and Treatment.” Behaviour Research and Therapy 41, no. 5: 509–528. https://doi.org/10.1016/s0005‐7967(02)00088‐8.
Field, S. L., J. R. E. Fox, J. CRG, and M. O. Williams. 2023. ““Work With Us”: A Delphi Study About Improving Eating Disorder Treatment for Autistic Women With Anorexia Nervosa.” Journal of Eating Disorders 11, no. 1: 17.
Foran, A. M., A. T. O'Donnell, and O. T. Muldoon. 2020. “Stigma of Eating Disorders and Recovery‐Related Outcomes: A Systematic Review.” European Eating Disorders Review 28, no. 4: 385–397. https://doi.org/10.1002/erv.2735.
Forbush, K. T., K. E. Hagan, B. A. Kite, D. A. N. Chapa, B. K. Bohrer, and S. R. Gould. 2017. “Understanding Eating Disorders Within Internalizing Psychopathology: A Novel Transdiagnostic, Hierarchical‐Dimensional Model.” Comprehensive Psychiatry 79: 40–52. https://doi.org/10.1016/j.comppsych.2017.06.009.
Forsman, A. K., K. Wahlbeck, L. E. Aaro, et al. 2015. “Research Priorities for Public Mental Health in Europe: Recommendations of the ROAMER Project.” European Journal of Public Health 25, no. 2: 249–254. https://doi.org/10.1093/eurpub/cku232.
Freizinger, M., M. Recto, G. Jhe, and J. Lin. 2022. “Atypical Anorexia in Youth: Cautiously Bridging the Treatment Gap.” Children (Basel) 9, no. 6: 837. https://doi.org/10.3390/children9060837.
Gagliardi, A. R., W. Berta, A. Kothari, J. Boyko, and R. Urquhart. 2016. “Integrated Knowledge Translation (IKT) in Health Care: A Scoping Review.” Implementation Science 11: 38. https://doi.org/10.1186/s13012‐016‐0399‐1.
Gonzalez‐Robles, A., A. Diaz‐Garcia, C. Miguel, A. Garcia‐Palacios, and C. Botella. 2018. “Comorbidity and Diagnosis Distribution in Transdiagnostic Treatments for Emotional Disorders: A Systematic Review of Randomized Controlled Trials.” PLoS One 13, no. 11: e0207396. https://doi.org/10.1371/journal.pone.0207396.
Grove, W. M., and P. E. Meehl. 1996. “Comparative Efficiency of Informal (Subjective, Impressionistic) and Formal (Mechanical, Algorithmic) Prediction Procedures: The Clinical–Statistical Controversy.” Psychology, Public Policy, and Law 2, no. 2: 293–323. https://doi.org/10.1037/1076‐8971.2.2.293.
Halbeisen, G., G. Brandt, and G. Paslakis. 2022. “A Plea for Diversity in Eating Disorders Research.” Frontiers in Psychiatry 13: 820043. https://doi.org/10.3389/fpsyt.2022.820043.
Hart, L. M., and T. Wade. 2020. “Identifying Research Priorities in Eating Disorders: A Delphi Study Building Consensus Across Clinicians, Researchers, Consumers, and Carers in Australia.” International Journal of Eating Disorders 53, no. 1: 31–40. https://doi.org/10.1002/eat.23172.
Hay, P., D. Chinn, D. Forbes, et al. 2014. “Royal Australian and New Zealand College of Psychiatrists Clinical Practice Guidelines for the Treatment of Eating Disorders.” Australian and New Zealand Journal of Psychiatry 48, no. 11: 977–1008. https://doi.org/10.1177/0004867414555814.
Himmerich, H., J. Bentley, N. Lichtblau, C. Brennan, and K. Au. 2019. “Facets of Shared Decision‐Making on Drug Treatment for Adults With an Eating Disorder.” International Review of Psychiatry 31, no. 4: 332–346. https://doi.org/10.1080/09540261.2019.1571995.
Hower, H., A. LaMarre, R. Bachner‐Melman, E. N. Harrop, B. McGilley, and T. E. Kenny. 2022. “Conceptualizing Eating Disorder Recovery Research: Current Perspectives and Future Research Directions.” Journal of Eating Disorders 10, no. 1: 165. https://doi.org/10.1186/s40337‐022‐00678‐8.
Iwajomo, T., S. J. Bondy, C. de Oliveira, P. Colton, K. Trottier, and P. Kurdyak. 2021. “Excess Mortality Associated With Eating Disorders: Population‐Based Cohort Study.” British Journal of Psychiatry 219, no. 3: 487–493. https://doi.org/10.1192/bjp.2020.197.
Jansingh, A., U. N. Danner, H. W. Hoek, and A. A. van Elburg. 2020. “Developments in the Psychological Treatment of Anorexia Nervosa and Their Implications for Daily Practice.” Current Opinion in Psychiatry 33, no. 6: 534–541. https://doi.org/10.1097/YCO.0000000000000642.
Jennings, K. M., and K. E. Phillips. 2017. “Eating Disorder Examination‐Questionnaire (EDE‐Q): Norms for Clinical Sample of Female Adolescents With Anorexia Nervosa.” Archives of Psychiatric Nursing 31, no. 6: 578–581. https://doi.org/10.1016/j.apnu.2017.08.002.
Jorm, A. F. 2015. “Using the Delphi Expert Consensus Method in Mental Health Research.” Australian and New Zealand Journal of Psychiatry 49, no. 10: 887–897. https://doi.org/10.1177/0004867415600891.
Kazdin, A. E., E. E. Fitzsimmons‐Craft, and D. E. Wilfley. 2017. “Addressing Critical Gaps in the Treatment of Eating Disorders.” International Journal of Eating Disorders 50, no. 3: 170–189. https://doi.org/10.1002/eat.22670.
Keel, P. K., D. J. Dorer, D. L. Franko, S. C. Jackson, and D. B. Herzog. 2005. “Postremission Predictors of Relapse in Women With Eating Disorders.” American Journal of Psychiatry 162, no. 12: 2263–2268. https://doi.org/10.1176/appi.ajp.162.12.2263.
Keel, P. K., and J. E. Mitchell. 1997. “Outcome in bulimia nervosa.” American Journal of Psychiatry 154, no. 3: 313–321. https://doi.org/10.1176/ajp.154.3.313.
Kenny, T. E., and S. P. Lewis. 2021. “Reconceptualizing Recovery: Integrating Lived Experience Perspectives Into Traditional Eating Disorder Recovery Frameworks.” Psychiatric Services 72, no. 8: 966–968. https://doi.org/10.1176/appi.ps.202000447.
Keski‐Rahkonen, A., and L. Mustelin. 2016. “Epidemiology of Eating Disorders in Europe: Prevalence, Incidence, Comorbidity, Course, Consequences, and Risk Factors.” Current Opinion in Psychiatry 29, no. 6: 340–345. https://doi.org/10.1097/YCO.0000000000000278.
Killackey, E. 2023. “Lived, Loved, Laboured, and Learned: Experience in Youth Mental Health Research.” Lancet Psychiatry 10, no. 12: 916–918. https://doi.org/10.1016/S2215‐0366(23)00270‐5.
Lilienfeld, S. O., L. A. Ritschel, S. J. Lynn, A. P. Brown, R. L. Cautin, and R. D. Latzman. 2013. “The Research‐Practice Gap: Bridging the Schism Between Eating Disorder Researchers and Practitioners.” International Journal of Eating Disorders 46, no. 5: 386–394. https://doi.org/10.1002/eat.22090.
McMaster, C. M., T. Wade, J. Franklin, and S. Hart. 2020. “Development of Consensus‐Based Guidelines for Outpatient Dietetic Treatment of Eating Disorders: A Delphi Study.” International Journal of Eating Disorders 53, no. 9: 1480–1495. https://doi.org/10.1002/eat.23330.
Melles, H., and A. Jansen. 2023. “Transdiagnostic Fears and Avoidance Behaviors in Self‐Reported Eating Disorders.” Journal of Eating Disorders 11, no. 1: 19. https://doi.org/10.1186/s40337‐023‐00745‐8.
Miskovic‐Wheatley, J., E. Bryant, S. H. Ong, et al. 2023. “Eating Disorder Outcomes: Findings From a Rapid Review of Over a Decade of Research.” Journal of Eating Disorders 11, no. 1: 85. https://doi.org/10.1186/s40337‐023‐00801‐3.
Monteleone, A. M., F. Pellegrino, G. Croatto, et al. 2022. “Treatment of Eating Disorders: A Systematic Meta‐Review of Meta‐Analyses and Network Meta‐Analyses.” Neuroscience and Biobehavioral Reviews 142: 104857. https://doi.org/10.1016/j.neubiorev.2022.104857.
Mountford, V. A., K. L. Allen, K. Tchanturia, C. Eilender, and U. Schmidt. 2021. “Implementing Evidence‐Based Individual Psychotherapies for Adults With Eating Disorders in a Real World Clinical Setting.” International Journal of Eating Disorders 54, no. 7: 1238–1249. https://doi.org/10.1002/eat.23504.
Murray, S. B., D. S. Quintana, K. L. Loeb, S. Griffiths, and D. Le Grange. 2019. “Treatment Outcomes for Anorexia Nervosa: A Systematic Review and Meta‐Analysis of Randomized‐Controlled Trials–CORRIGENDUM.” Psychological Medicine 49, no. 4: 701–704. https://doi.org/10.1017/S0033291718003185.
Music, S., R. Elwyn, G. Fountas, et al. 2022. “Valuing the Voice of Lived Experience of Eating Disorders in the Research Process: Benefits and Considerations.” Australian and New Zealand Journal of Psychiatry 56, no. 3: 216–218. https://doi.org/10.1177/0004867421998794.
National Institute for Health and Care Excellence (NICE). 2020. “Eating Disorders: Recognition and treatment.” https://www.nice.org.uk/guidance/ng69/resources/eating‐disorders‐recognition‐and‐treatment‐pdf‐1837582159813.
Noordenbos, G. 2011. “Which Criteria for Recovery Are Relevant According to Eating Disorder Patients and Therapists?” Eating Disorders 19, no. 5: 441–451. https://doi.org/10.1080/10640266.2011.618738.
Russell, H., P. Aouad, A. Le, et al. 2023. “Psychotherapies for Eating Disorders: Findings From a Rapid Review.” Journal of Eating Disorders 11, no. 1: 175. https://doi.org/10.1186/s40337‐023‐00886‐w.
Shay, L. A., and J. E. Lafata. 2015. “Where Is the Evidence? A Systematic Review of Shared Decision Making and Patient Outcomes.” Medical Decision Making 35, no. 1: 114–131. https://doi.org/10.1177/0272989X14551638.
Slade, M. 2017. “Implementing Shared Decision Making in Routine Mental Health Care.” World Psychiatry 16, no. 2: 146–153. https://doi.org/10.1002/wps.20412.
Slattery, M., H. Attard, V. Stewart, H. Roennfeldt, and A. J. Wheeler. 2020. “Participation in Creative Workshops Supports Mental Health Consumers to Share Their Stories of Recovery: A One‐Year Qualitative Follow‐Up Study.” PLoS One 15, no. 12: e0243284. https://doi.org/10.1371/journal.pone.0243284.
Slattery, P., A. K. Saeri, and P. Bragge. 2020. “Research Co‐Design in Health: A Rapid Overview of Reviews.” Health Research Policy and Systems 18, no. 1: 17. https://doi.org/10.1186/s12961‐020‐0528‐9.
Solmi, M., E. Collantoni, P. Meneguzzo, D. Degortes, E. Tenconi, and A. Favaro. 2018. “Network Analysis of Specific Psychopathology and Psychiatric Symptoms in Patients With Eating Disorders.” International Journal of Eating Disorders 51, no. 7: 680–692. https://doi.org/10.1002/eat.22884.
Streatfeild, J., J. Hickson, S. B. Austin, et al. 2021. “Social and Economic Cost of Eating Disorders in the United States: Evidence to Inform Policy Action.” International Journal of Eating Disorders 54, no. 5: 851–868. https://doi.org/10.1002/eat.23486.
Treasure, J., T. A. Duarte, and U. Schmidt. 2020. “Eating disorders.” Lancet 395, no. 10227: 899–911. https://doi.org/10.1016/S0140‐6736(20)30059‐3.
Tringale, M., G. Stephen, A. M. Boylan, and C. Heneghan. 2022. “Integrating Patient Values and Preferences in Healthcare: A Systematic Review of Qualitative Evidence.” BMJ Open 12, no. 11: e067268. https://doi.org/10.1136/bmjopen‐2022‐067268.
Vanderlinden, J., H. Buis, G. Pieters, and M. Probst. 2007. “Which Elements in the Treatment of Eating Disorders Are Necessary ‘Ingredients’ in the Recovery Process?–A Comparison Between the Patient's and Therapist's View.” European Eating Disorders Review 15, no. 5: 357–365. https://doi.org/10.1002/erv.768.
Verdejo‐Garcia, A., T. Rezapour, E. Giddens, et al. 2023. “Cognitive Training and Remediation Interventions for Substance Use Disorders: A Delphi Consensus Study.” Addiction 118, no. 5: 935–951. https://doi.org/10.1111/add.16109.
Wade, T. D., L. M. Hart, D. Mitchison, and P. Hay. 2021. “Driving Better Intervention Outcomes in Eating Disorders: A Systematic Synthesis of Research Priority Setting and the Involvement of Consumer Input.” European Eating Disorders Review 29, no. 3: 346–354. https://doi.org/10.1002/erv.2759.
Walfish, S., B. McAlister, P. O'Donnell, and M. J. Lambert. 2012. “An Investigation of Self‐Assessment Bias in Mental Health Providers.” Psychological Reports 110, no. 2: 639–644. https://doi.org/10.2466/02.07.17.PR0.110.2.639‐644.
Waller, G. 2016. “Treatment Protocols for Eating Disorders: Clinicians' Attitudes, Concerns, Adherence and Difficulties Delivering Evidence‐Based Psychological Interventions.” Current Psychiatry Reports 18, no. 4: 36. https://doi.org/10.1007/s11920‐016‐0679‐0.
Wetzler, S., C. Hackmann, G. Peryer, et al. 2020. “A Framework to Conceptualize Personal Recovery From Eating Disorders: A Systematic Review and Qualitative Meta‐Synthesis of Perspectives From Individuals With Lived Experience.” International Journal of Eating Disorders 53, no. 8: 1188–1203. https://doi.org/10.1002/eat.23260.