Recommendations to promote equity, diversity and inclusion in decentralized clinical trials.


Journal

Nature medicine
ISSN: 1546-170X
Titre abrégé: Nat Med
Pays: United States
ID NLM: 9502015

Informations de publication

Date de publication:
29 Oct 2024
Historique:
received: 23 05 2024
accepted: 26 09 2024
medline: 30 10 2024
pubmed: 30 10 2024
entrez: 30 10 2024
Statut: aheadofprint

Résumé

Decentralized clinical trials involving the use of digital tools to facilitate remote research are gaining momentum. Rapid advancements in digital technologies have supported the adoption of these trials. These innovations facilitate virtual interactions between clinical trial teams and participants by making it easier to collect, transfer and store electronic data. While some studies have demonstrated the potential for these approaches to reduce barriers to clinical trial participation, they are associated with several challenges that may create or worsen existing health inequalities and limit the generalizability of trial results. Here we review the potential for digitally enabled and decentralized clinical trials to enhance clinical trial participation in an equitable manner. We describe the key barriers individuals from underserved groups may face, and provide recommendations to promote equity, diversity and inclusion.

Identifiants

pubmed: 39472759
doi: 10.1038/s41591-024-03323-w
pii: 10.1038/s41591-024-03323-w
doi:

Types de publication

Journal Article Review

Langues

eng

Sous-ensembles de citation

IM

Informations de copyright

© 2024. Springer Nature America, Inc.

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Auteurs

Olalekan Lee Aiyegbusi (OL)

Centre for Patient Reported Outcomes Research, Institute of Applied Health Research, College of Medical and Dental Sciences, University of Birmingham, Birmingham, UK. o.l.aiyegbusi@bham.ac.uk.
National Institute for Health and Care Research Birmingham Biomedical Research Centre, University of Birmingham, Birmingham, UK. o.l.aiyegbusi@bham.ac.uk.
National Institute for Health and Care Research Applied Research Collaboration West Midlands, University of Birmingham, Birmingham, UK. o.l.aiyegbusi@bham.ac.uk.
National Institute for Health and Care Research Blood and Transplant Research Unit in Precision Transplant and Cellular Therapeutics, University of Birmingham, Birmingham, UK. o.l.aiyegbusi@bham.ac.uk.
Birmingham Health Partners Centre for Regulatory Science and Innovation, University of Birmingham, Birmingham, UK. o.l.aiyegbusi@bham.ac.uk.

Samantha Cruz Rivera (S)

Centre for Patient Reported Outcomes Research, Institute of Applied Health Research, College of Medical and Dental Sciences, University of Birmingham, Birmingham, UK.
Birmingham Health Partners Centre for Regulatory Science and Innovation, University of Birmingham, Birmingham, UK.

Paul Kamudoni (P)

Merck, Darmstadt, Germany.

Nicola Anderson (N)

Centre for Patient Reported Outcomes Research, Institute of Applied Health Research, College of Medical and Dental Sciences, University of Birmingham, Birmingham, UK.
National Institute for Health and Care Research Birmingham Biomedical Research Centre, University of Birmingham, Birmingham, UK.
National Institute for Health and Care Research Applied Research Collaboration West Midlands, University of Birmingham, Birmingham, UK.
University Hospitals Birmingham NHS Foundation Trust, Birmingham, UK.

Philip Collis (P)

Centre for Patient Reported Outcomes Research, Institute of Applied Health Research, College of Medical and Dental Sciences, University of Birmingham, Birmingham, UK.

Alastair K Denniston (AK)

National Institute for Health and Care Research Birmingham Biomedical Research Centre, University of Birmingham, Birmingham, UK.
Birmingham Health Partners Centre for Regulatory Science and Innovation, University of Birmingham, Birmingham, UK.
University Hospitals Birmingham NHS Foundation Trust, Birmingham, UK.

Rosie Harding (R)

Birmingham Law School, University of Birmingham, Birmingham, UK.

Sarah E Hughes (SE)

Centre for Patient Reported Outcomes Research, Institute of Applied Health Research, College of Medical and Dental Sciences, University of Birmingham, Birmingham, UK.
National Institute for Health and Care Research Birmingham Biomedical Research Centre, University of Birmingham, Birmingham, UK.
National Institute for Health and Care Research Applied Research Collaboration West Midlands, University of Birmingham, Birmingham, UK.
National Institute for Health and Care Research Blood and Transplant Research Unit in Precision Transplant and Cellular Therapeutics, University of Birmingham, Birmingham, UK.

Kamlesh Khunti (K)

Centre for Ethnic Health Research, National Institute for Health and Care Research Applied Research Collaboration East Midlands, University of Leicester, Leicester, UK.
Diabetes Research Centre, University of Leicester, Leicester, UK.

Dipak Kotecha (D)

National Institute for Health and Care Research Birmingham Biomedical Research Centre, University of Birmingham, Birmingham, UK.
Institute of Cardiovascular Sciences, University of Birmingham, Birmingham, UK.
West Midlands NHS Secure Data Environment, University Hospitals Birmingham NHS Foundation Trust, Birmingham, UK.

Harlan Krumholz (H)

Yale School of Medicine, Yale University, New Haven, CT, USA.

Xiaoxuan Liu (X)

National Institute for Health and Care Research Birmingham Biomedical Research Centre, University of Birmingham, Birmingham, UK.
Birmingham Health Partners Centre for Regulatory Science and Innovation, University of Birmingham, Birmingham, UK.
University Hospitals Birmingham NHS Foundation Trust, Birmingham, UK.

Christel McMullan (C)

Centre for Patient Reported Outcomes Research, Institute of Applied Health Research, College of Medical and Dental Sciences, University of Birmingham, Birmingham, UK.
National Institute for Health and Care Research Blood and Transplant Research Unit in Precision Transplant and Cellular Therapeutics, University of Birmingham, Birmingham, UK.

Barbara Molony-Oates (B)

Health Research Authority, London, UK.

Joao Monteiro (J)

Nature Medicine, New York, NY, USA.

Puja Myles (P)

Clinical Practice Research Datalink, Medicines and Healthcare products Regulatory Agency, London, UK.

Khadija Rerhou Rantell (KR)

Medicines and Healthcare products Regulatory Agency, London, UK.

Katherine Soltys (K)

Health Canada, Ottawa, Ontario, Canada.

Ravinder Verdi (R)

Centre for Patient Reported Outcomes Research, Institute of Applied Health Research, College of Medical and Dental Sciences, University of Birmingham, Birmingham, UK.

Roger Wilson (R)

Centre for Patient Reported Outcomes Research, Institute of Applied Health Research, College of Medical and Dental Sciences, University of Birmingham, Birmingham, UK.
Cancer Research Advocacy Forum, London, UK.

Melanie J Calvert (MJ)

Centre for Patient Reported Outcomes Research, Institute of Applied Health Research, College of Medical and Dental Sciences, University of Birmingham, Birmingham, UK.
National Institute for Health and Care Research Birmingham Biomedical Research Centre, University of Birmingham, Birmingham, UK.
National Institute for Health and Care Research Applied Research Collaboration West Midlands, University of Birmingham, Birmingham, UK.
National Institute for Health and Care Research Blood and Transplant Research Unit in Precision Transplant and Cellular Therapeutics, University of Birmingham, Birmingham, UK.
Birmingham Health Partners Centre for Regulatory Science and Innovation, University of Birmingham, Birmingham, UK.

Classifications MeSH