Quality, Readability, and Understandability of German Booklets Addressing Melanoma Patients.


Journal

Journal of cancer education : the official journal of the American Association for Cancer Education
ISSN: 1543-0154
Titre abrégé: J Cancer Educ
Pays: England
ID NLM: 8610343

Informations de publication

Date de publication:
Aug 2019
Historique:
pubmed: 8 5 2018
medline: 10 7 2020
entrez: 9 5 2018
Statut: ppublish

Résumé

Booklets are the preferably used form among patient education materials and are often handed out during medical consultations in dermatological oncology settings. However, little is known about how beneficial they are and whether they correspond to essential quality characteristics. To assess the quality, readability, and understandability of currently freely available booklets written in German addressing melanoma patients (MP). Melanoma booklets in accordance with predefined criteria were searched and analyzed. Three reviewers independently assessed their quality and understandability by applying the DISCERN tool and PEMAT-P. The Flesch Reading Ease Score (FRES) was calculated to determine readability. Nine booklets addressing MP were analyzed. The overall median DISCERN score was 3.6 (interquartile range (IQR) 2.9-4.1), median PEMAT-P score was 91% (IQR 83-94.5), and median FRES was 43 (IQR 33.5-47.5), indicating a medium quality, a high application of understandability elements, but low readability in at least half of the booklets. Incomplete reporting on treatments and insufficient meta-information caused the main quality deficits. There is a need of content and didactic revision of German booklets for MP to raise their quality and to make them beneficial and understandable for more patients. An adaption in accordance with evidence-based criteria and an even stronger involvement of MP in assessment and development of patient education material are considered to be the best approaches.

Identifiants

pubmed: 29736794
doi: 10.1007/s13187-018-1369-x
pii: 10.1007/s13187-018-1369-x
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Pagination

760-767

Subventions

Organisme : German Skin Cancer Foundation
ID : HF4-P03-Z11

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Auteurs

Julia Brütting (J)

Department of Dermatology, Dresden University Hospital Carl Gustav Carus, Fetscherstr. 74, 01307, Dresden, Germany. julia.bruetting@uniklinikum-dresden.de.

Lydia Reinhardt (L)

Department of Dermatology, Dresden University Hospital Carl Gustav Carus, Fetscherstr. 74, 01307, Dresden, Germany.

Maike Bergmann (M)

Department of Dermatology, Dresden University Hospital Carl Gustav Carus, Fetscherstr. 74, 01307, Dresden, Germany.

Dirk Schadendorf (D)

Department of Dermatology, University Hospital Essen, Essen, Germany.

Christiane Weber (C)

Dermatological Cooperative Oncology Group (DeCOG), Saarbrücken, Germany.

Wolfgang Tilgen (W)

Steering Group, Skin Cancer Counsil Germany, Neckargemünd, Germany.

Carola Berking (C)

Department of Dermatology and Allergy, University Hospital Munich, Munich, Germany.

Friedegund Meier (F)

Department of Dermatology, Dresden University Hospital Carl Gustav Carus, Fetscherstr. 74, 01307, Dresden, Germany.

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