Perceptions of Cancer Status Disclosure in Lebanon.
Adolescent
Adult
Aged
Case-Control Studies
Communication
Decision Making
Family
/ psychology
Female
Health Knowledge, Attitudes, Practice
Health Status
Humans
Lebanon
/ epidemiology
Male
Middle Aged
Neoplasms
/ epidemiology
Oncologists
/ psychology
Patients
/ psychology
Physician-Patient Relations
Qualitative Research
Truth Disclosure
Young Adult
Autonomy
Cancer
Disclosure
Lebanon
Perception
Stigmatization
Journal
Journal of cancer education : the official journal of the American Association for Cancer Education
ISSN: 1543-0154
Titre abrégé: J Cancer Educ
Pays: England
ID NLM: 8610343
Informations de publication
Date de publication:
Oct 2019
Oct 2019
Historique:
pubmed:
29
6
2018
medline:
10
6
2020
entrez:
29
6
2018
Statut:
ppublish
Résumé
In Lebanon, cancer used to be regarded as a taboo and referred to as "the disease" and was rarely disclosed to patients. However, patients are now increasingly interested in knowing their cancer status but with varying degrees of information requested. The aim of this qualitative descriptive study was to explore the perceptions of cancer patients, their families, oncologists, and healthy individuals concerning the disclosure of cancer prognosis. In-depth interviews were conducted with 21 family members, 20 middle-aged cancer patients, 11 elderly cancer patients, 22 healthy individuals, and 6 oncologists at the American University of Beirut Medical Center. The interviews focused on the following: general perception of cancer in Lebanese society, type, and extent of information that should be disclosed, factors affecting patient autonomy, and elements contributing to the decisions taken by oncologists and patients. The oncologist's compassion and communication with patients affected their emotional status greatly, and some gaps in communication skills of oncologists were in need of standardized training courses to improve the process of cancer status disclosure. Also, patients had an increased preference towards the disclosure of cancer prognosis, and a desire to know the truth and this need increased as the patient progressed to a terminal state. Future work should be directed at addressing the needs of cancer patients through every disease stage. More research and further deliberation are needed to confirm the findings of this study since the Lebanese Code of Medical Practice does not protect the right of full disclosure.
Identifiants
pubmed: 29951903
doi: 10.1007/s13187-018-1389-6
pii: 10.1007/s13187-018-1389-6
doi:
Types de publication
Journal Article
Langues
eng
Sous-ensembles de citation
IM
Pagination
874-881Références
Curr Oncol. 2015 Aug;22(4):e264-72
pubmed: 26300677
BMC Geriatr. 2013 Apr 16;13:35
pubmed: 23590357
Int J Qual Stud Health Well-being. 2016 Apr 27;11:30763
pubmed: 27125477
J Family Community Med. 2014 May;21(2):85-92
pubmed: 24987276
Support Care Cancer. 2017 Mar;25(3):811-816
pubmed: 27832368
Palliat Support Care. 2013 Feb;11(1):13-9
pubmed: 22804832
Ann Oncol. 2010 Feb;21(2):204-7
pubmed: 20026475
J Clin Oncol. 2004 Jan 15;22(2):307-14
pubmed: 14722040
Patient Educ Couns. 2013 Jan;90(1):96-102
pubmed: 23058682
Indian J Palliat Care. 2010 May;16(2):61-5
pubmed: 21811349
Soc Sci Med. 2002 Jan;54(2):281-93
pubmed: 11824932
Indian J Palliat Care. 2015 Jan-Apr;21(1):35-8
pubmed: 25709183
Palliat Support Care. 2011 Jun;9(2):173-80
pubmed: 24468485
Patient Prefer Adherence. 2016 Apr 27;10:631-40
pubmed: 27175063
J Clin Oncol. 2002 Apr 15;20(8):2189-96
pubmed: 11956281
Oncologist. 2000;5(4):302-11
pubmed: 10964998
J Med Ethics. 1999 Oct;25(5):399-403
pubmed: 10536765
Palliat Support Care. 2013 Feb;11(1):69-78
pubmed: 23171758
Eur J Oncol Nurs. 2016 Dec;25:55-61
pubmed: 27865253
Soc Sci Med. 1998 Nov;47(9):1289-94
pubmed: 9783871
Nurs Ethics. 2011 May;18(3):356-63
pubmed: 21558111