The POMONA-ESP project methodology: Collecting data on health indicators for people with intellectual developmental disorders.
developmental disabilities
health profiles
intellectual developmental disorders
intellectual disability
methods
Journal
Journal of applied research in intellectual disabilities : JARID
ISSN: 1468-3148
Titre abrégé: J Appl Res Intellect Disabil
Pays: England
ID NLM: 9613616
Informations de publication
Date de publication:
Jan 2019
Jan 2019
Historique:
received:
03
08
2017
revised:
24
05
2018
accepted:
25
05
2018
pubmed:
17
7
2018
medline:
23
2
2019
entrez:
17
7
2018
Statut:
ppublish
Résumé
People with intellectual developmental disorders have significant health disparities and a lack of proper attention to their health needs. They have been underrepresented in scientific research, and very few studies have been carried out using a representative randomized sample. The aim of this study was to describe the methods used in the POMONA-ESP project to recruit a representative and randomized sample of participants with intellectual developmental disorders. The POMONA-ESP project is an observational cross-sectional study. It aims to explore the health status of people with intellectual developmental disorders across Spain and the use they make of health services. The results of the POMONA-ESP project may have a major impact on people with intellectual developmental disorders and society in general. It is the first study to obtain geographically representative epidemiological data from a large sample, information that is fundamental to improving care and healthcare planning for people with intellectual developmental disorders.
Sections du résumé
BACKGROUND
BACKGROUND
People with intellectual developmental disorders have significant health disparities and a lack of proper attention to their health needs. They have been underrepresented in scientific research, and very few studies have been carried out using a representative randomized sample. The aim of this study was to describe the methods used in the POMONA-ESP project to recruit a representative and randomized sample of participants with intellectual developmental disorders.
METHODS
METHODS
The POMONA-ESP project is an observational cross-sectional study. It aims to explore the health status of people with intellectual developmental disorders across Spain and the use they make of health services.
RESULTS AND CONCLUSIONS
CONCLUSIONS
The results of the POMONA-ESP project may have a major impact on people with intellectual developmental disorders and society in general. It is the first study to obtain geographically representative epidemiological data from a large sample, information that is fundamental to improving care and healthcare planning for people with intellectual developmental disorders.
Types de publication
Journal Article
Multicenter Study
Observational Study
Langues
eng
Sous-ensembles de citation
IM
Pagination
15-22Subventions
Organisme : Instituto de Salud Carlos III (ISCIII)
Organisme : Fundació Port Aventura
Organisme : Fondo de Investigación Sanitaria (FIS)
ID : PI12/01237
Informations de copyright
© 2018 John Wiley & Sons Ltd.