Attitudes towards health research participation: a qualitative study of US Arabs and Chaldeans.
Culture and disease/cross-cultural issues
health promotion
immigrant health
primary care
public health
Journal
Family practice
ISSN: 1460-2229
Titre abrégé: Fam Pract
Pays: England
ID NLM: 8500875
Informations de publication
Date de publication:
23 05 2019
23 05 2019
Historique:
pubmed:
22
9
2018
medline:
8
1
2020
entrez:
22
9
2018
Statut:
ppublish
Résumé
The Arab Muslim and Chaldean Christian American community is unified by language but culturally diverse. Researchers are challenged to engage the Arab/Chaldean community to meet immigrant health needs. Arabs/Chaldeans are identified as white in clinical data sets making it difficult to identify health behaviours and patterns unique to the community. To explore the views of members of the Arab/Chaldean community, including researchers and the lay public, regarding health research participation and the role of clinicians, researchers and community leaders in the research process. A qualitative study of Arab and Chaldean adults and researchers conducted in a US community with a large Arab/Chaldean population. Five semi-structured focus group discussions were triangulated with five in-depth semi-structured interviews with Arab or Chaldean primary care researchers. Responses were audio-recorded and transcribed verbatim. Transcripts were coded and thematically analysed, and findings confirmed with community representatives. Three themes were identified: (i) research expectations: risks and benefits; (ii) health care environment: clinicians as recruiters and (iii) research participations: risks and benefits. Themes captured concerns with social relationships, reputation or trust and the cost and benefit of research participation. In the Arab/Chaldean community, institutional and political fears and distrust are amplified. Respect for physicians, teachers and faith leaders connected with or recruiting for studies enhances likelihood of research participation. Clinical researchers should address the cultural and immigration histories of Arab/Chaldean research participants. Studies that maximize trust will minimize participation bias and lay the groundwork for improved health. Institutional, sociocultural and personal factors require a pre-study phase to engage and educate participants.
Sections du résumé
BACKGROUND
The Arab Muslim and Chaldean Christian American community is unified by language but culturally diverse. Researchers are challenged to engage the Arab/Chaldean community to meet immigrant health needs. Arabs/Chaldeans are identified as white in clinical data sets making it difficult to identify health behaviours and patterns unique to the community.
OBJECTIVES
To explore the views of members of the Arab/Chaldean community, including researchers and the lay public, regarding health research participation and the role of clinicians, researchers and community leaders in the research process.
METHODS
A qualitative study of Arab and Chaldean adults and researchers conducted in a US community with a large Arab/Chaldean population. Five semi-structured focus group discussions were triangulated with five in-depth semi-structured interviews with Arab or Chaldean primary care researchers. Responses were audio-recorded and transcribed verbatim. Transcripts were coded and thematically analysed, and findings confirmed with community representatives.
RESULTS
Three themes were identified: (i) research expectations: risks and benefits; (ii) health care environment: clinicians as recruiters and (iii) research participations: risks and benefits. Themes captured concerns with social relationships, reputation or trust and the cost and benefit of research participation. In the Arab/Chaldean community, institutional and political fears and distrust are amplified. Respect for physicians, teachers and faith leaders connected with or recruiting for studies enhances likelihood of research participation.
CONCLUSION
Clinical researchers should address the cultural and immigration histories of Arab/Chaldean research participants. Studies that maximize trust will minimize participation bias and lay the groundwork for improved health. Institutional, sociocultural and personal factors require a pre-study phase to engage and educate participants.
Identifiants
pubmed: 30239688
pii: 5099129
doi: 10.1093/fampra/cmy071
pmc: PMC6769398
doi:
Types de publication
Journal Article
Research Support, N.I.H., Extramural
Langues
eng
Sous-ensembles de citation
IM
Pagination
325-331Subventions
Organisme : NIMHD NIH HHS
ID : RC1 MD004692
Pays : United States
Informations de copyright
© The Author(s) 2018. Published by Oxford University Press. All rights reserved. For permissions, please e-mail: journals.permissions@oup.com.
Références
Ann Fam Med. 2013 Nov-Dec;11(6):550-8
pubmed: 24218379
Addict Behav. 2010 Jan;35(1):46-8
pubmed: 19767152
Appl Nurs Res. 2017 Feb;33:1-4
pubmed: 28095999
Gerontologist. 2003 Feb;43(1):18-26
pubmed: 12604742
J Immigr Minor Health. 2012 Apr;14(2):236-41
pubmed: 21318619
Prog Community Health Partnersh. 2010 Summer;4(2):155-62
pubmed: 20543491
J Cult Divers. 2010 Spring;17(1):20-3
pubmed: 20397570
Ethn Dis. 2013 Winter;23(1):18-21
pubmed: 23495617
Health Promot Int. 2017 Aug 1;32(4):636-649
pubmed: 26802073
West J Nurs Res. 2005 Apr;27(3):292-306
pubmed: 15781904
Prim Care Diabetes. 2017 Feb;11(1):13-19
pubmed: 27460886
Cancer Causes Control. 2013 Nov;24(11):1955-61
pubmed: 24013772
J Am Board Fam Med. 2014 Nov-Dec;27(6):763-71
pubmed: 25381073
J Nurs Scholarsh. 2006;38(3):255-61
pubmed: 17044343
Oncol Nurs Forum. 2017 Jan 1;44(1):E20-E33
pubmed: 27991600
J Transcult Nurs. 2000 Jan;11(1):31-9
pubmed: 11982072
J Immigr Minor Health. 2014 Dec;16(6):1303-6
pubmed: 24322655
J Immigr Minor Health. 2014 Oct;16(5):831-8
pubmed: 23430463
Ethn Dis. 2005 Winter;15(1 Suppl 1):S1-35-8
pubmed: 15787042
BMC Int Health Hum Rights. 2016 Aug 31;16(1):22
pubmed: 27582174
Womens Health Issues. 2015 Jan-Feb;25(1):56-62
pubmed: 25498764
J Immigr Minor Health. 2016 Dec;18(6):1449-1454
pubmed: 26472547
Contemp Clin Trials. 2008 Nov;29(6):847-61
pubmed: 18721901
Contemp Clin Trials. 2015 Nov;45(Pt A):34-40
pubmed: 26188163
Ethn Dis. 2007 Summer;17(2 Suppl 3):S3-26-S3-27
pubmed: 17985445
BMC Public Health. 2009 Jul 30;9:272
pubmed: 19643005
Soc Sci Med. 2001 Sep;53(6):777-93
pubmed: 11511053
Diabetes Care. 2003 Feb;26(2):308-13
pubmed: 12547854
Scand J Psychol. 2016 Dec;57(6):564-570
pubmed: 27535348
J Immigr Minor Health. 2009 Oct;11(5):380-90
pubmed: 18214678
Am J Public Health. 2014 Jun;104(6):e83-91
pubmed: 24825237
Contemp Clin Trials Commun. 2017 Nov 01;8:241-247
pubmed: 29696215