Access to mental health services: The experiences of people with intellectual disabilities.


Journal

Journal of applied research in intellectual disabilities : JARID
ISSN: 1468-3148
Titre abrégé: J Appl Res Intellect Disabil
Pays: England
ID NLM: 9613616

Informations de publication

Date de publication:
Mar 2019
Historique:
received: 21 07 2017
revised: 06 06 2018
accepted: 03 09 2018
pubmed: 12 10 2018
medline: 29 5 2019
entrez: 12 10 2018
Statut: ppublish

Résumé

People with intellectual disability experience higher rates of mental health disorders than the rest of the population, and expert opinion holds that multiple barriers prevent people with intellectual disability from accessing appropriate services. A qualitative study was designed to explore the lived experience of barriers and enablers to access to mental health services among people with intellectual disability. Interviews and focus groups were conducted with people with intellectual disability, carers and service providers. Barriers and enablers were identified across four key dimensions of access: utilization of services; service availability; relevance, effectiveness and access; and equity and access. These factors operated at both systemic and personal levels. The findings from this study provide empirical evidence of anecdotal experiences of access to mental health services and provide insight into the ways users, carers and service providers navigate an often hostile system and indicate further directions for research.

Sections du résumé

BACKGROUND BACKGROUND
People with intellectual disability experience higher rates of mental health disorders than the rest of the population, and expert opinion holds that multiple barriers prevent people with intellectual disability from accessing appropriate services.
METHODS METHODS
A qualitative study was designed to explore the lived experience of barriers and enablers to access to mental health services among people with intellectual disability. Interviews and focus groups were conducted with people with intellectual disability, carers and service providers.
RESULTS RESULTS
Barriers and enablers were identified across four key dimensions of access: utilization of services; service availability; relevance, effectiveness and access; and equity and access. These factors operated at both systemic and personal levels.
CONCLUSIONS CONCLUSIONS
The findings from this study provide empirical evidence of anecdotal experiences of access to mental health services and provide insight into the ways users, carers and service providers navigate an often hostile system and indicate further directions for research.

Identifiants

pubmed: 30306674
doi: 10.1111/jar.12533
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Pagination

368-379

Subventions

Organisme : National Health and Medical Research Council
ID : APP1056128

Commentaires et corrections

Type : CommentIn

Informations de copyright

© 2018 John Wiley & Sons Ltd.

Auteurs

Erin Louise Whittle (EL)

3DN, The Department of Developmental Disability Neuropsychiatry, UNSW, Sydney, Australia.
Social Policy Research Centre, UNSW, Sydney, Australia.

Karen Raewyn Fisher (KR)

Social Policy Research Centre, UNSW, Sydney, Australia.

Simone Reppermund (S)

3DN, The Department of Developmental Disability Neuropsychiatry, UNSW, Sydney, Australia.

Julian Trollor (J)

3DN, The Department of Developmental Disability Neuropsychiatry, UNSW, Sydney, Australia.

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