Family caregivers experiences of the pre-diagnostic stage in frontotemporal dementia.
Journal
Geriatric nursing (New York, N.Y.)
ISSN: 1528-3984
Titre abrégé: Geriatr Nurs
Pays: United States
ID NLM: 8309633
Informations de publication
Date de publication:
Historique:
received:
28
08
2018
revised:
12
10
2018
accepted:
19
10
2018
pubmed:
15
11
2018
medline:
4
12
2019
entrez:
15
11
2018
Statut:
ppublish
Résumé
Frontotemporal dementia (FTD) is a neurodegenerative disease with symptoms that differs from other dementias. Commonly early symptoms in FTD are changes in personality and behavior, which can be interpreted as psychiatric disease. The delay in FTD diagnosis contributes to the burden of family caregivers. Therefore, it is important to have more knowledge about the pre-diagnostic stage. In this qualitative interview study, we explored fourteen family caregiver's experiences of the pre-diagnostic stage of frontotemporal dementia (FTD). Our findings suggest that the family caregivers experienced the pre-diagnostic stage of FTD as changes in the interpersonal relationship with their loved one. These changes were often subtle and difficult for family caregivers to explain to others. The findings from our study illuminate the importance of medical staff paying attention when a next of kin is concerned about subtle changes in a loved one. The findings also illuminate that awareness of FTD should be raised.
Identifiants
pubmed: 30424902
pii: S0197-4572(18)30436-1
doi: 10.1016/j.gerinurse.2018.10.006
pii:
doi:
Types de publication
Journal Article
Research Support, Non-U.S. Gov't
Langues
eng
Pagination
246-251Informations de copyright
Copyright © 2018 The Authors. Published by Elsevier Inc. All rights reserved.