Caregiver Communication About Cancer: Development of a mhealth resource to support family caregiver communication burden.
cancer
caregiver
mHealth
oncology
Journal
Psycho-oncology
ISSN: 1099-1611
Titre abrégé: Psychooncology
Pays: England
ID NLM: 9214524
Informations de publication
Date de publication:
02 2019
02 2019
Historique:
received:
04
09
2018
revised:
07
11
2018
accepted:
21
11
2018
pubmed:
25
11
2018
medline:
25
2
2020
entrez:
25
11
2018
Statut:
ppublish
Résumé
The aim of this study is to illustrate an evidence-based and theoretically informed mhealth resource (smartphone app) designed to provide communication support for informal cancer caregivers (friends or family members). An eight-step process was conducted: (a) review of existing print resources, (b) selection of theoretical framework for content development, (c) integration of stakeholder feedback and literacy assessment into an alpha print model, (d) review of existing mhealth resources, (e) development of prototype, (f) assessment of caregiver acceptability (n = 5), (g) assessment of quality and perceived impact by cancer providers (n = 26), and (h) acceptability testing with caregivers (n = 6). Key stakeholders were integrated throughout development and user testing of this iOS smartphone app. The smartphone app consists of talking tips and resources for caregiver communication with the patient, family, far away family, and health care providers, as well as general information sharing features. This study demonstrates feasibility and development of an evidence-based and theory-driven mhealth resource to support caregiver communication about cancer. This is the first theory-driven mhealth application created to support the communication burden experienced by cancer caregivers. A larger study is needed to establish the efficacy of the app as an intervention for caregivers.
Identifiants
pubmed: 30471236
doi: 10.1002/pon.4950
pmc: PMC6377293
mid: NIHMS999005
doi:
Types de publication
Journal Article
Research Support, N.I.H., Extramural
Langues
eng
Sous-ensembles de citation
IM
Pagination
365-371Subventions
Organisme : NCI NIH HHS
ID : R25 CA174627
Pays : United States
Organisme : NCI NIH HHS
ID : R25CA174627
Pays : United States
Informations de copyright
© 2018 John Wiley & Sons, Ltd.
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