Living with dementia with Lewy bodies: an interpretative phenomenological analysis.
dementia
geriatric medicine
neurology
old age psychiatry
qualitative research
Journal
BMJ open
ISSN: 2044-6055
Titre abrégé: BMJ Open
Pays: England
ID NLM: 101552874
Informations de publication
Date de publication:
29 01 2019
29 01 2019
Historique:
entrez:
1
2
2019
pubmed:
1
2
2019
medline:
20
2
2020
Statut:
epublish
Résumé
To explore the subjective experience of living with dementia with Lewy bodies (DLB). A qualitative study of in-depth interviews using interpretative phenomenological analysis. A memory clinic in Malmö, southern Sweden. A purposive sample of five male participants with DLB between the ages of 78 and 88 years and disease duration of 1.5-7 years. Three themes were identified in relation to the participants' experiences of living with DLB: (1) disease impact, in terms of symptom experience and restricted participation and activities; (2) self-perception and coping strategies; (3) importance of others, such as healthcare, family and friends. This study provides a broad insight into the first-hand experience of living with DLB and how it compares with other dementia types. Findings highlight factors characterising the disease experience and well-being, and how persons with DLB address challenges arising secondary to disease. These findings are important for both research and clinical practice, demonstrating the feasibility of direct involvement of DLB persons in identifying important aspects of care, which include improved healthcare services.
Identifiants
pubmed: 30700486
pii: bmjopen-2018-024983
doi: 10.1136/bmjopen-2018-024983
pmc: PMC6352787
doi:
Types de publication
Journal Article
Research Support, Non-U.S. Gov't
Langues
eng
Sous-ensembles de citation
IM
Pagination
e024983Informations de copyright
© Author(s) (or their employer(s)) 2019. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ.
Déclaration de conflit d'intérêts
Competing interests: None declared.
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