Understanding the dining experience of individuals with dysphagia living in care facilities: A grounded theory analysis.
Culture-change movement
Dysphagia
Ecological models
Mealtimes
Nursing homes
Person-centered care
Qualitative research
Journal
International journal of nursing studies
ISSN: 1873-491X
Titre abrégé: Int J Nurs Stud
Pays: England
ID NLM: 0400675
Informations de publication
Date de publication:
Apr 2019
Apr 2019
Historique:
received:
25
07
2018
revised:
17
01
2019
accepted:
30
01
2019
pubmed:
2
3
2019
medline:
14
8
2019
entrez:
2
3
2019
Statut:
ppublish
Résumé
Person-directed care in nursing homes, also known as the 'culture-change movement', aims to enhance dining-related quality of life. However, for residents with dysphagia, it is unclear how to best support this enhancement while balancing eating-related safety/risks. Thus, the purpose of this study was to explore the experience of and to define successful, person-centered dining for residents with dysphagia. Grounded theory methodology guided twenty-one 60-90 minute semi-structured interviews with participants across 7 stakeholder groups including residents, family members, and nursing, dietary, and therapy staff. We used a systematic and iterative approach for all data collection, analysis, and generation of theory. A theory emerged from the data that highlighted how individualization and socialization are the central tenants for improving residents' dining experiences and success, or 'focusing on the person: individualization and socialization during mealtimes'. We identified multiple facilitators and barriers to successful dining for residents with dysphagia such as the importance of positive social connections and invested, knowledgeable, and aware care team members. The focus of care was a salient theme suggesting that individualization of care that promotes residents' quality of life is a key facilitator of successful dining experiences. A social-ecological model for successful dining with dysphagia is ultimately proposed: optimizing health and well-being for these residents through successful dining experiences requires collaborative and coordinated care to address a variety of interrelated individual-, interpersonal-, and organizational-level facilitators and barriers.
Sections du résumé
BACKGROUND AND OBJECTIVES
OBJECTIVE
Person-directed care in nursing homes, also known as the 'culture-change movement', aims to enhance dining-related quality of life. However, for residents with dysphagia, it is unclear how to best support this enhancement while balancing eating-related safety/risks. Thus, the purpose of this study was to explore the experience of and to define successful, person-centered dining for residents with dysphagia.
RESEARCH DESIGN AND METHODS
METHODS
Grounded theory methodology guided twenty-one 60-90 minute semi-structured interviews with participants across 7 stakeholder groups including residents, family members, and nursing, dietary, and therapy staff. We used a systematic and iterative approach for all data collection, analysis, and generation of theory.
RESULTS, DISCUSSION, AND IMPLICATIONS
UNASSIGNED
A theory emerged from the data that highlighted how individualization and socialization are the central tenants for improving residents' dining experiences and success, or 'focusing on the person: individualization and socialization during mealtimes'. We identified multiple facilitators and barriers to successful dining for residents with dysphagia such as the importance of positive social connections and invested, knowledgeable, and aware care team members. The focus of care was a salient theme suggesting that individualization of care that promotes residents' quality of life is a key facilitator of successful dining experiences. A social-ecological model for successful dining with dysphagia is ultimately proposed: optimizing health and well-being for these residents through successful dining experiences requires collaborative and coordinated care to address a variety of interrelated individual-, interpersonal-, and organizational-level facilitators and barriers.
Identifiants
pubmed: 30822707
pii: S0020-7489(19)30033-1
doi: 10.1016/j.ijnurstu.2019.01.017
pii:
doi:
Types de publication
Journal Article
Langues
eng
Pagination
144-153Informations de copyright
Copyright © 2019 Elsevier Ltd. All rights reserved.