Parental Conceptualizations of Autism and Deafness in British Deaf Children.


Journal

Journal of deaf studies and deaf education
ISSN: 1465-7325
Titre abrégé: J Deaf Stud Deaf Educ
Pays: United States
ID NLM: 9889915

Informations de publication

Date de publication:
01 07 2019
Historique:
received: 07 10 2018
revised: 20 01 2019
accepted: 29 01 2019
pubmed: 7 3 2019
medline: 18 7 2020
entrez: 7 3 2019
Statut: ppublish

Résumé

The co-occurrence of childhood deafness and autism raises complex challenges for diagnosis and family support. In this article, we explore with hearing and Deaf parents their observations of the interaction between deafness and autism and identify how the intersections of deafness and autism are conceptualized in everyday life. Eight parents participated (two of whom were Deaf BSL users) in semi-structured interviews in either BSL or spoken English. Data analysis was underpinned by a phenomenological approach in the hermeneutic tradition. Findings are discussed in terms of parents' perceptions of the relevance of deafness to their understanding of autism for their particular child, the effects of autism on sign and spoken language development and the relationship between deafness and autism in terms of their own and others' attributions of their children's characteristics. The significance of the findings for parental contributions' to diagnostic assessment and the tailoring of family support are considered.

Identifiants

pubmed: 30839059
pii: 5370050
doi: 10.1093/deafed/enz002
doi:

Types de publication

Journal Article Research Support, Non-U.S. Gov't

Langues

eng

Sous-ensembles de citation

IM

Pagination

280-288

Subventions

Organisme : Medical Research Council
ID : MR/K015435/1
Pays : United Kingdom

Informations de copyright

© The Author(s) 2019. Published by Oxford University Press. All rights reserved. For Permissions, please email: journals.permissions@oup.com.

Auteurs

Alys Young (A)

School of Health Sciences, University of Manchester.

Emma Ferguson-Coleman (E)

School of Health Sciences, University of Manchester.

Barry Wright (B)

Department of Health Sciences, University of York.

Ann Le Couteur (A)

Institute of Health and Society, Newcastle University.

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