Genetic Data, Two-Sided Markets and Dynamic Consent: United States Versus France.
Dynamic e-IC
Genetic data
Two-sided market
Journal
Science and engineering ethics
ISSN: 1471-5546
Titre abrégé: Sci Eng Ethics
Pays: England
ID NLM: 9516228
Informations de publication
Date de publication:
10 2019
10 2019
Historique:
received:
22
01
2018
accepted:
16
01
2019
pubmed:
14
3
2019
medline:
14
5
2020
entrez:
14
3
2019
Statut:
ppublish
Résumé
Networks for the exchange and/or sharing of genetic data are developing in many countries. We focus here on the situations in the US and France. We highlight some recent and remarkable differences between these two countries concerning the mode of access to, and the storage and use of genetic data, particularly as concerns two-sided markets and dynamic consent or dynamic electronic informed consent (e-IC). This brief overview suggests that, even though the organization and function of these two-sided markets remain open to criticism, dynamic e-IC should be more widely used, especially in France, if only to determine its real effectiveness.
Identifiants
pubmed: 30864046
doi: 10.1007/s11948-019-00085-4
pii: 10.1007/s11948-019-00085-4
doi:
Types de publication
Journal Article
Research Support, Non-U.S. Gov't
Langues
eng
Sous-ensembles de citation
IM
Pagination
1597-1602Références
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